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Navigating Stage 4 Breast Cancer: Betty’s Experience with Bone and Liver Metastases
Betty Jean A., Breast Cancer, Stage 4 (Metastatic), ER+, PIK3CA, ESR1 Symptom: Lingering severe back pain Treatments: Surgery, chemotherapy (capecitabine), radiation therapy, hormonal therapy (fulvestrant), targeted therapy (ribociclib)
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College Freshman and Suddenly Fighting Leukemia: Anni’s APL Diagnosis Story
Anni A., Acute Promyelocytic Leukemia (APL) Symptoms: Severe night sweats, extreme fatigue, hypersomnia, sudden muscle weakness and leg failure, slurred speech, inability to raise arms, unintentional weight loss, critically low white blood cell count Treatments: Chemotherapy (arsenic trioxide, all trans-retinoic acid or ATRA)
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Navigating an MDS Diagnosis and Severe Fatigue After Losing My Spouse to AML
Linda M., Myelodysplastic Syndrome (MDS), SF3B1 Symptoms: Severe fatigue, weight loss, breathlessness, anemiam joint pain Treatments: Watch and wait, vitamin B12, hormone therapy (erythropoietin-stimulating agent)
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Meg’s Stage 4 Non-Hodgkin Lymphoma Story: I Said Yes to Bispecific Antibodies
Meg L., Follicular Lymphoma, Stage 4 Symptoms: Lower back pain, general feeling of unwellness Treatments: Clinical trial (bispecific antibody and immunotherapy)
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14 Years Later and Still Here: How Katie Smith Has Survived ‘Inoperable’ Brain Cancer
Katie S., Glioblastoma, Grade 4, IDH1+ Symptoms: Left arm heaviness and weakness, reduced fine motor control in the left hand, intermittent tingling in the left fingers Treatments: Surgeries (craniotomy, twice), radiation therapy, chemotherapy (temozolomide, CCNU), monoclonal antibody (bevacizumab)
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How ALK‑Positive Targeted Therapy Changed Nancee’s Life with Lung Cancer
How ALK‑Positive Targeted Therapy Changed Nancee’s Life with Lung Cancer ALK‑positive lung cancer with brain metastases, neuropathy, and fatigue, and Nancee’s targeted therapy experience and focus on quality of life.
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No Symptoms, No Warning: How a Fertility Scan Revealed Lynn’s Stage 4 HLRCC Kidney Cancer
Lynn T., Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC), FH-Deficient Renal Cell Carcinoma (FHdRCC), Stage 4 (Metastatic) Symptoms: None; caught during a pelvic MRI for uterine fibroids Treatments: Surgery (nephrectomy, right), clinical trial (bevacizumab, atezolizumab, erlotinib)
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Living Longer With Lung Cancer: Jill’s Experience with Targeted Therapy
Jill Feldman, Non-Small Cell Lung Cancer (NSCLC), Stage 4 (Metastatic), EGFR+ Symptoms: None; nodule found during periodic scan Treatments: Surgery, targeted therapy, chemotherapy
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The Pain Felt Like Food Poisoning: Lori’s Path to a Stage 4 Bladder Cancer Diagnosis
Lori M., Bladder Cancer, Stage 4 (Metastatic) Symptoms: Stomach issues resembling food poisoning, extreme lower back pain, dramatic weight loss, declining kidney function, inability to eat Treatments: Surgery (nephrectomy), chemotherapy, immunotherapy
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Why “Doing Nothing” is Actually a Plan: Nicky Greenhalgh and Dr. Jonathan Friedberg on Watch and Wait (Active Surveillance for Follicular Lymphoma)
Why “Doing Nothing” is Actually a Plan: Nicky Greenhalgh and Dr. Jonathan Friedberg on Watch and Wait (Active Surveillance for Follicular Lymphoma) Living with follicular lymphoma on watch and wait, Nicky shares how she manages scanxiety, tracks key symptoms, and builds a trusted care team.
