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How Phil is Living with ROS1+ Stage 4 Lung Cancer
Phil P., Non-Small Cell Lung Cancer, ROS1+, Stage 4 (Metastatic) Symptoms: Persistent cough, nasal drip, shortness of breath, inability to speak in full sentences Treatments: Chemotherapy, targeted therapy, radiation therapy, next-generation ROS1 inhibitor (clinical trial)
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Bill Faces Neuroendocrine Rectal Cancer With a Strong Community
Bill T., Neuroendocrine Carcinoma of the Rectum, Stage 4, ATM+ Symptom: Drops of blood in stool, recurrent over several months Treatments: Chemotherapy (carboplatin, etoposide, capecitabine, FOLFOX, FOLFIRI), radiation therapy, surgeries (liver ablation, permanent urostomy, permanent colostomy), targeted therapies (PARP inhibitor, ATR inhibitor, peptide receptor radionuclide therapy or PRRT), monoclonal antibody (vedolizumab), hormone therapy (somatostatin analog)
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“Never Give Up, Never Surrender”: How Cora Finds Hope After Six Colorectal Cancer Relapses
Cora V., Colorectal Cancer, Stage 4 (Metastatic) Symptoms: Fatigue, unintentional weight loss, blood and mucus in stool Treatments: Chemotherapy, chemoradiation, surgeries (temporary ileostomy and reversal, liver surgeries and ablation)
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Stage 4 Bowel Cancer to No Evidence of Disease: Nina’s Honest Experience
Nina H., Bowel Cancer, Stage 4 (Metastatic) Symptoms: Longstanding IBS-like symptoms,> skin flare-ups, blood and mucus in stool, dark stool Treatments: Surgeries (bowel surgery, removal of both ovaries, partial bladder resection, liver surgery with removal of two liver sections), chemotherapy
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Ruchira’s Stage 4 ALK+ Lung Cancer Experience, Biomarker Testing, and Breaking the Stigma
Ruchira A., Non-Small Cell Lung Cancer, ALK+, Stage 4 (Metastatic) Symptoms: Mild intermittent cough while talking, low-grade fever, severe nonstop cough, coughing up blood, collapsed left lung Treatments: Surgery (lobectomy), targeted therapy
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“It’s Just Constipation” Turned Out to Be Stage 2 Small Bowel Cancer
John R., Small Bowel Cancer, Stage 2 (High-Risk), SMAD4 Mutation Symptoms: Severe abdominal pain, especially after eating, vomiting, significant weight loss (about 40 pounds), inability to tolerate solid food, requiring a liquid-only diet Treatments: Surgeries (small bowel resection, lymphadenectomy), chemotherapy (CAPOX)
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Living Scan to Scan with Follicular Lymphoma: Laura’s Experience with Watchful Waiting
Laura C., Follicular Lymphoma, Stage 4 (Metastatic), Grade 1 to 2; Papillary Thyroid Carcinoma Symptoms: Incidental finding after hysterectomy (follicular lymphoma), thyroid nodule detected on imaging (papillary thyroid carcinoma) Treatments: Immunotherapy (rituximab and lenalidomide or R² regimen), surgery (thyroidectomy)
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Rebuilding After Pediatric Cancer: Anxiety, Isolation, and Finding Purpose Through Storytelling
Ali Wolf, Parent of Pediatric Liver Cancer Patient “What helped most was time and learning to live with and fight my demons as I rebuilt my life.”
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Parenthood, Persistence, and Rare Cancer: Ali’s Adenoid Cystic Carcinoma Experience
Ali C., Adenoid Cystic Carcinoma Symptom: Small lump under the jaw Treatments: Surgery, radiation therapy
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Acute Myelomonocytic Leukemia (AMML): Russ’s Clinical Trial Story
Russ D., Acute Myelomonocytic Leukemia (AMML), with NPM1 Mutation Symptoms:Flu‑like symptoms, profound fatigue, blood pressure drop, shortness of breath Treatments:Chemotherapy, clinical trial (menin inhibitor)
