Myelofibrosis Patient Stories & Oncologist Interviews
Myelofibrosis is a rare cancer of the bone marrow that starts with an abnormal production of blood cells. It’s one of three of the most common myeloproliferative neoplasms or MPNs.
Myelofibrosis, commonly referred to as “MF,” often leads to severe lack of healthy red blood cells, also known as anemia. That’s why common first symptoms of myelofibrosis include fatigue and weakness.
Explore below to hear from myelofibrosis patients on their experiences and top myelofibrosis specialists who share the latest in promising and emerging MF treatments and clinical trials.
Table Of Contents
What is myelofibrosis?
Myelofibrosis is a rare cancer of the bone marrow. Learn more about myleofibrosis symptoms, diagnosis, treatment and more.
Myelofibrosis patient stories
Stacy S.
Diagnosis: Myelofibrosis with CALR and ASXL1 mutations
Symptoms: Fatique, cold hands and feet
Treatment: Agrylin (for thrombocythemia), Ruxolitinib (Jakafi), Fedratinib (INREBIC), stem cell transplant
Ruth R. Diagnosis: Myeloproliferative Neoplasms (MPN) Treatment: Chemotherapy, Bone marrow biopsy, clinical trial
Natalia A. Diagnosis: Myelofibrosis Symptoms: Anemia, fatigue, weakness, shortness of breath Treatment: Phlebotomies, iron pills, blood transfusion
Mary L.
Diagnosis: Myelofibrosis (MPN)
1st Symptoms: Fatigue, extreme dizziness (later diagnosed as vertigo)
Treatment: Pegasys, hydroxyurea (current)
Jeremy S.
Diagnosis: Myeloproliferative Neoplasm (MPN), Polycythemia vera (PV) and Chronic Lymphocytic Leukemia (CLL)
Cathy T.
Diagnosis: Myelofibrosis
Symptoms: None; caught at a routine blood test
Treatment: Stem cell transplant
Andrew SchorrDiagnosis: Myelofibrosis, Chronic Lymphocytic Leukemia (CLL)Treatment: Clinical trial, Gazyva, Jakafi, Increbic, Reblozyl and steroids