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“I’m Still Here”: Daniel on Hodgkin Lymphoma, MDS, AML
Daniel H., Hodgkin Lymphoma, Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML) Symptoms: Chain of small, itchy nodes on the neck Treatments: Chemotherapy, radiation therapy, autologous and allogeneic stem cell transplants
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From Nighttime Chest Rattle to Boston Marathon: Roy’s KRAS+ Non-Small Cell Lung Cancer Story
Roy B., Non-Small Cell Lung Cancer (NSCLC) (Adenocarcinoma of the Lung with Mucinous Features), Stage 2B Symptom: Nighttime chest rattle when lying prone Treatments: Surgery (VATS lobectomy), chemotherapy (cisplain), immunotherapy
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From ‘Routine Hernia’ to Rare Cancer: Katie’s Stage 4 Alveolar Soft Part Sarcoma (ASPS) Story
Katie L., Alveolar Soft Part Sarcoma (ASPS), Stage 4 (Metastatic) Symptom: Appearance of lump in abdominal area Treatments: Radiation therapy, surgeries (abdominal resection with mesh placement, reconstruction), immunotherapy
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From Exhaustion to Answers: Daniel’s Metastatic Prostate Cancer Story
Daniel D., Prostate Cancer, Stage 4 (Metastatic) Symptoms: Unusual exhaustion, joint discomfort Treatments: Hormone therapy (abiraterone acetate, relugolix), radiation therapy, chemotherapy
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“I See This As a Chronic Disease, Not a Death Sentence”: Michelle’s HER2+ Stage 4 Breast Cancer Story
Michelle M., Breast Cancer, Stage 4 (Metastatic), HER2+ Symptoms: Bloody discharge from the nipple, appearance of a golf-ball-sized lump in the armpit Treatments: Chemotherapy (including through the HER2CLIMB clinical trial), surgeries (mastectomy, reconstruction, awake craniotomy), monoclonal antibody (trastuzumab), radiation therapy (Gamma Knife radiosurgery)
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From Crohn’s Flare to Incidental Kidney and Appendix Cancer: 30-Year-Old Mom Emily’s Experience
Emily M., Kidney Cancer (Renal Cell Carcinoma with Clear and Papillary Cell Properties), Stage 2; Appendix Cancer Symptom: Incidental discovery during treatments for Crohn’s disease Treatments: Ablation therapy (cryoablation), surgeries (colectomy, ostomy surgery)
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“Love is a Choice”: Gray’s Cancer Caregiver Perspective on His Late Wife Samantha’s Metastatic Breast Cancer
Gray M., Spouse of Samantha, Breast Cancer Patient ”They say love is not a feeling — it’s a choice. And we chose it. Samantha definitely chose it. She knew how to engage in the act of loving her family.”
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How John Navigated a Muscle-Invasive Bladder Cancer Diagnosis Alongside His Wife and Care Partner, Heike
John M., Muscle-Invasive Bladder Cancer, Stage T2 Symptoms: Intermittent appearance of blood in urine or hematuria Treatments: Surgeries (radical cystectomy, splenectomy, ileal conduit urinary diversion), chemotherapy
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“Listening to Your Body”: Kristen’s Stage 3 Colon Cancer Experience and Life After Treatment
Kristen B., Colon Cancer, Stage 3 Symptoms: Abdominal pain, constipation or difficulty using the bathroom, vomiting stool Treatments: Surgeries (colectomy, appendectomy, ileostomy), chemotherapy (oxaliplatin)
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When the Lump Wasn’t ‘Nothing’: Selina’s Stage 4 Parotid Gland Cancer Experience
Selina P., Parotid Gland Cancer (Mucoepidermoid Carcinoma of the Parotid Gland), Stage 4 (Metastatic) Symptoms: Appearance of a small, movable, eventually painful lump that would sometimes produce a “crackling” sensation when touched, persistent earache Treatments: Surgeries (parotidectomy, lymphanadectomy), targeted radiation therapy
