Rare Cancer Stories
Fewer than 40,000 people are diagnosed with a rare cancer each year in the United States. Altogether, they make up just over 25% of all cancers in the country (National Cancer Institute).
Explore below for stories from patients diagnosed with rare cancers. They describe the first symptoms, going through different treatments and therapies, and navigating life with a rare cancer.
Hear from people living with rare cancer
Real experiences with diagnosis, treatment choices, side effects, and life beyond rare cancer — in their own words.
Neuroendocrine Tumors
A tumor that forms from cells that release hormones into the blood in response to a signal from the nervous system. Neuroendocrine tumors may make higher-than-normal amounts of hormones, which can cause many different symptoms. (NCI)





