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Nan Was a Caregiver Through Her Sister’s Pancreatic Cancer and Her Husband’s BPDCN Diagnosis
Nan T., Caregiver (Spouse) of Jim T., Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) Patient “You show up for the people you love, period. If you love somebody, you show up in whatever way they need you. That’s part of your relationship.”
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Brice Was Too Weak to Hold His Daughter; He Was Diagnosed with Multiple Myeloma at 31
Brice D., Multiple Myeloma Symptoms: Worsening fatigue and weakness, bone pain, lower back pain, inexplicable weight loss, poor appetite, shortness of breath, severe anemia Treatments: Chemotherapy (D-VRd, KRd, melphalan), autologous stem cell transplant, immunotherapy (lenalidomide)
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A Rash Only My Wife Worried About Turned Out to Be BPDCN, an Ultra-Rare Blood Cancer
Jim T., Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) Symptoms:Persistent itching, rash on the upper back Treatments: Targeted therapy (tagraxofusp/Elzonris), allogeneic stem cell transplant
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“I’m Still Here”: Daniel on Hodgkin Lymphoma, MDS, AML
Daniel H., Hodgkin Lymphoma, Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML) Symptoms: Chain of small, itchy nodes on the neck, low blood counts Treatments: Chemotherapy, radiation therapy, autologous and allogeneic stem cell transplants
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How Jesse Faced Acute Lymphoblastic Leukemia and a Bone Marrow Transplant
Jesse G., Early T‑cell Precursor Acute Lymphoblastic Leukemia (ETP‑ALL) Symptoms: Lump under the chin, progressive lymph node swelling above the clavicles, facial swelling, fatigue, malaise, “flu‑like” feeling Treatments: Chemotherapy (hyper-CVAD, pediatric/AYA regimen), allogeneic stem cell transplant, donor lymphocyte infusion + nelarabine
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Itchy Skin, Night Sweats, and a Neck Lump: Alexia’s Hodgkin Lymphoma Symptoms
Alexia S., Hodgkin’s Lymphoma Symptoms: Night sweats, intense itching and rash on wrists, legs, and feet, fatigue and falling asleep mid-conversation, shortness of breath, dizziness, blurry vision, appearance of neck lump and chest mass Treatments: Chemotherapy (ABVD, BV, and BEAM), monoclonal antibody (nivolumab), autologous stem cell transplant
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James Faced Recurrent Hodgkin Lymphoma While Becoming a Dad
James B., Relapsed Hodgkin Lymphoma Symptoms: Night sweats, itching, persistent lump in neck Treatments: Chemotherapy (ABVD, ICE, and BEAM), autologous stem cell transplant
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“I Knew It Was Back”: How Amanda Knew Her Hodgkin Lymphoma Was Back
Amanda P., Relapsed Hodgkin’s Lymphoma, Stage 4 Symptom: Sudden, unexplained weight loss Treatments: Immunotherapy, chemotherapy, stem cell transplant (autologous)
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Melissa’s Life After DLBCL Relapse: Finding Strength in the In-Between
Melissa B., Relapsed Diffuse Large B-Cell Lymphoma (DLBCL) Symptoms: Lump in the left breast, persistent rash (started near the belly button and spread), intense fatigue and energy loss Treatments: Chemotherapy (R-EPOCH), Neulasta, radiation therapy, surgery (to remove scar tissue and necrosis), autologous stem cell transplant
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How to Support Someone with Cancer: Karina & Jesse’s Myelofibrosis Story
How to Support Someone with Cancer: Karina & Jesse’s Myelofibrosis Story “I underwent a lot of sadness, hardship, and difficulty, and all that entails. But I pressed forward in hope for sure. There was a lot of hope that just kept me going all those years.”
