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Brice Was Too Weak to Hold His Daughter; He Was Diagnosed with Multiple Myeloma at 31
Brice D., Multiple Myeloma Symptoms: Worsening fatigue and weakness, bone pain, lower back pain, inexplicable weight loss, poor appetite, shortness of breath, severe anemia Treatments: Chemotherapy (D-VRd, KRd, melphalan), autologous stem cell transplant, immunotherapy (lenalidomide)
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A Rash Only My Wife Worried About Turned Out to Be BPDCN, an Ultra-Rare Blood Cancer
Jim T., Blastic Plasmacytoid Dendritic Cell Neoplasm (BPDCN) Symptoms:Persistent itching, rash on the upper back Treatments: Targeted therapy (tagraxofusp/Elzonris), allogeneic stem cell transplant
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“I’m Still Here”: Daniel on Hodgkin Lymphoma, MDS, AML
Daniel H., Hodgkin Lymphoma, Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML) Symptoms: Chain of small, itchy nodes on the neck, low blood counts Treatments: Chemotherapy, radiation therapy, autologous and allogeneic stem cell transplants
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How Jesse Faced Acute Lymphoblastic Leukemia and a Bone Marrow Transplant
Jesse G., Early T‑cell Precursor Acute Lymphoblastic Leukemia (ETP‑ALL) Symptoms: Lump under the chin, progressive lymph node swelling above the clavicles, facial swelling, fatigue, malaise, “flu‑like” feeling Treatments: Chemotherapy (hyper-CVAD, pediatric/AYA regimen), allogeneic stem cell transplant, donor lymphocyte infusion + nelarabine
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Itchy Skin, Night Sweats, and a Neck Lump: Alexia’s Hodgkin Lymphoma Symptoms
Alexia S., Hodgkin’s Lymphoma Symptoms: Night sweats, intense itching and rash on wrists, legs, and feet, fatigue and falling asleep mid-conversation, shortness of breath, dizziness, blurry vision, appearance of neck lump and chest mass Treatments: Chemotherapy (ABVD, BV, and BEAM), monoclonal antibody (nivolumab), autologous stem cell transplant
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James Faced Recurrent Hodgkin Lymphoma While Becoming a Dad
James B., Relapsed Hodgkin Lymphoma Symptoms: Night sweats, itching, persistent lump in neck Treatments: Chemotherapy (ABVD, ICE, and BEAM), autologous stem cell transplant
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“I Knew It Was Back”: How Amanda Knew Her Hodgkin Lymphoma Was Back
Amanda P., Relapsed Hodgkin’s Lymphoma, Stage 4 Symptom: Sudden, unexplained weight loss Treatments: Immunotherapy, chemotherapy, stem cell transplant (autologous)
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Melissa’s Life After DLBCL Relapse: Finding Strength in the In-Between
Melissa B., Relapsed Diffuse Large B-Cell Lymphoma (DLBCL) Symptoms: Lump in the left breast, persistent rash (started near the belly button and spread), intense fatigue and energy loss Treatments: Chemotherapy (R-EPOCH), Neulasta, radiation therapy, surgery (to remove scar tissue and necrosis), autologous stem cell transplant
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How to Support Someone with Cancer: Karina & Jesse’s Myelofibrosis Story
How to Support Someone with Cancer: Karina & Jesse’s Myelofibrosis Story “I underwent a lot of sadness, hardship, and difficulty, and all that entails. But I pressed forward in hope for sure. There was a lot of hope that just kept me going all those years.”
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Emily’s Stage 4 Burkitt Lymphoma Story
Emily S., Burkitt Lymphoma, Stage 4 Symptoms: Constant fatigue, tongue deviated to the left, abscess in right breast, petechiae on legs, night sweats, nausea and vomiting, persistent cough Treatments: Chemotherapy, stem cell transplant, immunotherapy
