Sarcoma Patient Stories
What is sarcoma? Sarcomas account for over 20% of all pediatric solid malignant cancers and less than 1% of all adult solid malignant cancers. The vast majority of diagnosed sarcomas will be soft tissue sarcomas, while malignant bone tumors make up just over 10% of sarcomas. (National Institutes of Health).
Explore below for in-depth sarcoma stories from our community members who share everything: first symptoms, treatment timeline, to navigating life with cancer.
- Soft Tissue Sarcoma Stories
- Ewing Sarcoma (bone and soft tissue)
- Gastrointestinal Stromal Tumor (GIST)
Our Featured Story
Living with Incredibly Rare Malignant PEComa and Having One Treatment Option
Resilience, advocacy, and the power of awareness. Two women, one glaring symptom of excessive uterine bleeding – each diagnosed with conditions that have overlapping symptoms to their eventual cancer diagnosis.
Michelle had excessive bleeding that was attributed to fibroids, while Jolene attributed her symptoms to menopause.
They both went through hysterectomies, leading to the shocking revelation that they each had cancer.
Soft Tissue Sarcoma
Soft tissue sarcoma is a broad term for cancers that start in soft tissues (muscle, tendons, fat, lymph and blood vessels, and nerves). These cancers can develop anywhere in the body but are found mostly in the arms, legs, chest, and abdomen. (National Cancer Institute)
Synovial Sarcoma
Undifferentiated Pleomorphic Sarcoma
Desmoid Tumor
Ewing Sarcoma
Gastrointestinal Stromal Tumor (GIST)
Gastrointestinal stromal tumor is a disease in which abnormal cells form in the tissues of the gastrointestinal tract. Genetic factors can increase the risk of having a gastrointestinal stromal tumor. (NCI)
