Tag: stage 4

From Foot Pain to Lung Cancer: Kathrin’s Unexpected Stage 4 ALK+ Diagnosis

Post author By Katrina Villareal
Post date July 6, 2025
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July 6, 2025

From Foot Pain to Lung Cancer: Kathrin’s Unexpected Stage 4 ALK+ Diagnosis

When Kathrin was diagnosed with stage 4 ALK+ lung cancer in 2024, it came as a complete shock. She didn’t have a cough, chest pain, or shortness of breath — none of the symptoms you’d expect. Instead, it all started with subtle signs: persistent fatigue, frequent illness, and a lingering pain in her left foot that she chalked up to an injury.

Interviewed by: Nikki Murphy
Edited by: Katrina Villareal

Being a fitness professional, Kathrin assumed it was nothing serious, but after the pain worsened, an MRI revealed something unexpected: a tumor in her foot. Initially thought to be benign, the biopsy showed it was a malignant metastasis. From there, a full-body PET/CT scan uncovered the real culprit: stage 4 ALK+ lung cancer, which had already spread to her bones, abdomen, and liver.

Despite the shock and the immediate fear of not surviving, biomarker testing provided a silver lining. Kathrin was ALK-positive, making her eligible for targeted therapy. Treatment began with radiation on her foot, followed by a daily ALK inhibitor pill. Within weeks, the treatment produced remarkable results.

Kathrin’s scans looked almost clear, which felt like being handed back her life. She describes this part as surreal, going from imagining death to being filled with hope. While the physical treatment has gone well, the emotional part has been more complex. Even though the cancer was under control, the reality of living with an incurable condition remains. She knows it may come back, so she consciously chooses to focus on what she can control: her mindset, her movement, and her moments of joy.

Exercise has been Kathrin’s anchor. Even during radiation, she kept moving. For her, movement isn’t just fitness; it’s therapy. It’s how she reconnects with herself, processes her emotions, and taps into her inner strength. She emphasizes the importance of staying active, not just for the body but for mental clarity and emotional balance.

Her story highlights a powerful truth: stage 4 ALK+ lung cancer doesn’t always look like what we expect, especially in women. Kathrin’s experience is a reminder of the importance of advocating for your health, listening to your body, and honoring your strength, even when life throws something unimaginable your way.

Watch Kathrin’s full interview to learn more about her story:

She had no cough, just foot pain. That’s how her stage 4 ALK+ lung cancer was discovered.
Kathrin opens up about the emotional whiplash of a sudden diagnosis.
How yoga and exercise became her daily lifeline through stage 4 ALK+ lung cancer.
Why Kathrin believes powerful treatments and positivity can change everything.

Name: Kathrin W.
Age of Diagnosis:
- 44
Diagnosis:
- Lung Cancer
Staging:
- Stage 4
Mutation:
- ALK+
Symptoms:
- Weakness
- Decline of performance in sports
- Depression
- Pain in left foot
Treatments:
- Radiation therapy
- Targeted therapy

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, Kathrin!

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More ALK+ Lung Cancer Stories

Kathrin W., Lung Cancer, ALK+, Stage 4

Symptoms: Weakness, decline of performance in sports, depression, pain in left foot
Treatments: Radiation therapy, targeted therapy

Stephanie W., Non-Small Cell Lung Cancer, ALK+, Stage 2B

Symptoms: Persistent cough, wheezing
Treatments: Surgery (bilobectomy), chemotherapy, targeted therapy

Lindsay W., Non-Small Cell Lung Cancer, ALK+, Stage 4

Symptom: Severe pain in her side

Treatments: Chemotherapy (targeted therapy), radiation

Shyreece Pompey, Non-Small Cell Lung Cancer, ALK+, Stage 4 (Update)

Symptom: Shortness of breath
Treatments: Chemotherapy (carboplatin, pemetrexed & bevacizumab), targeted therapy (crizotinib & alectinib), AT13387 (HSP90 inhibitor)

Dan W., Non-Small Cell Lung Cancer, ALK+, Stage 4

Symptoms: Cold-like symptoms, shortness of breath, chest pains
Treatments: Radiation, targeted therapy (alectinib)

Tags ALK+, Biomarker Testing, stage 4

Chemotherapy Clinical Trials Lung Cancer Patient Stories Treatments

Hasegawa Kazuo’s Stage 4 Lung Cancer Mission to Help Others

Post author By Chris Sanchez
Post date July 5, 2025
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Hasegawa Kazuo Turned His Stage 4 Lung Cancer Diagnosis Into a Mission to Help Others

July 5, 2025

It started with a cough that just wouldn’t go away. How can you tell if the symptoms are the common cold or something worse? (like stage 4 lung cancer) This was Kazuo Hasegawa’s concern after he continued to cough for weeks. But everything changed when he started to cough up blood.

Kazuo ended up in the emergency room where doctors eventually ordered imaging. A scan revealed a shadow on his lungs. Reality became clear to him even though the doctor hesitated to say anything about cancer. The diagnosis would be stage 4 lung cancer.

Interviewed by: Stephanie Chuang
Edited by: Chris Sanchez & Jeff Forslund

Editor’s Note: This interview was conducted in Japanese. It has been translated for clarity into English.

His mind went first to his young children who were just five and seven years old at the time. He struggled to tell them exactly what he was dealing with, so he told them he was “sick.” At the same time, the father of two was also having a hard time figuring out how to navigate the healthcare system in his home country of Japan. He says many people there follow what doctors say, but he decided to advocate for himself, getting multiple “second” opinions.

Now he’s galvanized a group of thousands of other Japanese people who are dealing with cancer by creating the first patient advocacy group of its kind there called “One Step.” Dive into Kazuo’s incredible story of self-advocacy and empowerment, and how he’s trying to help strangers navigate a healthcare system to get the best outcomes for themselves and their loved ones.

Watch Hasegawa Kazuo’s video and read his story to take a deeper dive into:

A terrible cough led to a diagnosis of advanced lung cancer
The initial prognosis was ten months to live
Faced with uncertainty, he became an advocate for patient access to information
Kazuo founded One Step to support other patients
He now lives with intention, knowing each day is irreplaceable

Name:
- Hasegawa Kazuo
Diagnosis:
- Lung Cancer (Pulmonary Adenocarcinoma)
Staging:
- Stage 4
Symptoms:
- Persistent cough that lasted two months
- Coughed up blood on one occasion
- Worsening headache
Treatments:
- Chemotherapy
- Clinical trial

Thank you to Johnson & Johnson for supporting our patient education program. The Patient Story retains full editorial control over all content.

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider for treatment decisions.

Table of Contents

About Me
The Cough That Changed Everything
How I Found Out I Had Stage 4 Lung Cancer
How I Reacted to My Diagnosis
I Got Ten Different Second Opinions
Owning My Own Data
Shared Treatment Decisions
Stronger Patient Empowerment with 'One Step'
There is Hope in Stage 4 Lung Cancer
How I See the World Now

I’ve come to really feel the importance of time. Everyone only has one life.

About Me

My name is Hasegawa Kazuo. I’m a father of two. I used to work as a TV director in Japan.

I was diagnosed with stage 4 lung cancer (pulmonary adenocarcinoma) in 2010. And since, I’ve come to really feel the importance of time. Everyone only has one life.

The Cough That Changed Everything

It all started back in 2010, with a terrible cough. At first, I thought it was nothing, just a cold. I ended up having that cough for two months.

One night, it got so bad that I had to be taken to the hospital. There, I coughed up blood.

I had a terrible headache when the symptoms first appeared. It just kept getting worse. I remember thinking, “Something strange is happening.”

How I Found Out I Had Stage 4 Lung Cancer

In the examination room, I had a CT scan. It found a big shadow on my lungs.

The doctor was very silent about it, however, and seemed hesitant to tell me if I had pneumonia or something like that. He looked uncomfortable, like he wasn’t sure how to tell me. I kept wondering why he wouldn’t just say what he saw. A simple explanation like, “There might be something suspicious. We should do more tests,” would have helped. But he stayed quiet, and that left me to fill in the blanks myself.

My wife was with me when I found out. Our children were seven and five years old at the time. We struggled with how to tell them. In the end, I didn’t use the word “cancer.” I just said I had a serious illness, but that I was going to try my best to get better. And they supported me, even at that young age.

But even though the word “cancer” scared me, it was better than not knowing at all.

How I Reacted to My Diagnosis

Strangely, once I finally had a name for what was happening to my body, I felt some relief. When I was in the hospital, before I knew it was cancer, I couldn’t look anything up. The fear of the unknown overwhelmed me.

But even though the word “cancer” scared me, it was better than not knowing at all. I still think those few days of not knowing were worse than the diagnosis itself.

I Got Ten Different Second Opinions

A normal hospital visit takes just five to ten minutes. I’ve been told that the median survival time is 12 months, and the doctor told me that I have about ten months left to live if I keep going at this pace.

Given that, five to ten minutes in the examination room is not enough time to think about how I will face my cancer. What would my next move be?

So I ended up getting ten different second opinions so I could see every treatment option available to me for my stage 4 lung cancer.

Your health data should be in your hands… I wanted to make informed choices about my treatment, and I couldn’t do that without understanding what was going on inside my body.

Owning My Own Data

It shocked me how little time you actually get with a doctor. Five or ten minutes is not enough to make big decisions or understand your options. If you want to talk strategy, you have to pay extra or find time outside the system.

That’s why I decided to take control of my own medical data. I started asking for my records: CT scans, PET scans, everything. I had to buy the reports. The data for one report costs about 3,000 Japanese yen. (a little more than $20 US dollars) The hospital put the files on a CD-ROM, and I kept them. I wanted to be in charge of my care. I didn’t understand why other patients just left their information with the hospital and only asked for it when they needed something.

Your health data should be in your hands. You should decide what to do with it. I wanted to make informed choices about my treatment, and I couldn’t do that without understanding what was going on inside my body.

Shared Treatment Decisions

I’ve learned that modern cancer care, especially lung cancer, isn’t just about doing what the doctor says. It’s about discussing your options together. The latest trend is for patients and doctors to consult and make decisions as a team. We have to understand what quality of life means to us. Treatment isn’t just about surviving, it’s about how we live.

Doctors should be clear and direct. They need to say, “This is what’s happening inside you. Here are your options.” Then patients can decide what matters most to them. That conversation is crucial.

kazuo hairloss from stage 4 lung cancer treatment

I’m taking my stage 4 lung cancer experience forward by helping other patients become empowered.

Stronger Patient Empowerment with ‘One Step’

Right now in Japan, most of the information available to patients comes from textbooks. But that’s not enough. It’s like learning boxing from a book and then being thrown into a match. You’d be terrified. You need practice first. Cancer treatment doesn’t give you that time to prepare. The match starts immediately. That’s why I want to provide better resources in that in-between space.

I’m taking my stage 4 lung cancer experience forward by helping other patients become empowered.

That’s why I helped start a patient group called One Step. The main vision of the group is to help create the courage to live. The group now reaches 12,000 people, mostly lung cancer patients and caregivers throughout Japan.

We try to provide useful information: details about treatment, financial support, and what’s happening in the world of cancer care. We also push for patient involvement in research. Instead of just leaving everything to doctors and scientists, we want patients to be part of the process.

We even helped propose a clinical trial, and it got approved. That showed me what’s possible when patients are involved from the start.

When you find yourself saying, “I’ve never faced such a dilemma before”… It helps to ask yourself: What are my values? What do I truly cherish?

There is Hope in Stage 4 Lung Cancer

When you find yourself saying, “I’ve never faced such a dilemma before,” it’s time to consult with others and make a decision. It helps to ask yourself: What are my values? What do I truly cherish? Or, if you were seeing a doctor, you’d bring in information about your physical condition or scientific evidence, and then you’d discuss it together. That’s the kind of process that’s the latest topic in lung cancer right now.

Treatment has evolved. The doctor’s decision or the patient’s decision is not the only decision, but now it’s the choice.

You are making a completely different choice based on your values. It’s very important that you look at the situation from a bird’s-eye view and let patients know that they have a choice to make right now. Of course, in some situations, you should just accept what the doctor says. If you have a major disease like cancer, you won’t know how to deal with it or treat it. You must learn about these things.

So patients are going to have an increasing amount of options for treatment, specific information that they can interpret, and choices regarding treatment and so on. And they are going to be able to think of how to make those choices for themselves. And those treatments are going to evolve more and more.

I want to live. And I believe I can. That belief drives my daily life. I keep going, one step at a time. Maybe this is the answer. Maybe it isn’t. But I’m going to try.

How I See the World Now

Motivation is a wonderful thing. I want to live my life with no regrets.

I think about that, and about my stage 4 lung cancer experience, when I wake up today, the first thing I do is to tell myself that I have only one today. I think it’s because it’s obvious to me that my life is shorter than others’ lives. So I want to do something that makes my life more satisfying.

You see scenes in dramas and on TV where people say goodbye to their families with grace, but I don’t feel that everyone gets to have that kind of ending. Some people die angry or confused, asking, “Why me?” I don’t want to live that way.

Even if my life is short, I want to be satisfied with it. I want to live. And I believe I can. That belief drives my daily life. I keep going, one step at a time. Maybe this is the answer. Maybe it isn’t. But I’m going to try.

Special thanks again to Johnson & Johnson for supporting our patient education program. The Patient Story retains full editorial control over all content.

Thank you for sharing your story, Hasegawa Kazuo!

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Nevin Isn’t Letting Stage 4 Hodgkin Lymphoma Define Him

Post author By Chris Sanchez
Post date June 17, 2025
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June 17, 2025

Nevin Isn’t Letting Stage 4 Hodgkin Lymphoma Define Him

Nevin’s story is one of resilience, self-advocacy, and navigating life’s unexpected turns having been diagnosed with stage 4 Hodgkin lymphoma. His experience underscores the importance of trusting your instincts when it comes to your health.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

It all began with a relentless cough that didn’t improve even after Nevin quit smoking. Then came the intense itchiness, feeling like bugs crawling under his skin, and a persistent fatigue that made simple tasks overwhelming. Doctors thought he had asthma and eczema, but Nevin knew something was off. It wasn’t until he discovered a hard lump on his neck before his best friend’s wedding that everything changed. An urgent care doctor quickly connected the dots, leading to tests and a biopsy confirming stage 4 Hodgkin lymphoma.

Through all the hospital visits, treatments, and life adjustments, like having to leave his job in Los Angeles and move back home, Nevin remained grounded. He found strength in self-advocacy, pushing for answers when the initial diagnoses didn’t sit right. Mental health became a priority, as did surrounding himself with supportive people. Even on tough days, he focused on staying active and cherishing his good days.

Nevin emphasizes not letting cancer define who you are. The activities you love, the dreams you chase — they’re still part of you. Although his treatments brought significant side effects like nausea, dizziness, and even red-colored urine, Nevin’s mindset stayed strong. He capitalized on his good weeks, maintained strong connections with loved ones, and kept hope alive.

Nevin also confronted tough topics like financial concerns, survivorship, and fertility, grappling with the possibility of not being able to have biological children post-chemo. It was a reminder of life’s unpredictability, but also of the privilege of choice, even when options are limited.

Nevin’s stage 4 Hodgkin lymphoma story is a testament to the power of hope, self-advocacy, and community. It’s about facing life head-on, even when the cards you’re dealt aren’t ideal. His experiences resonate with anyone navigating serious health challenges, highlighting the universal need to listen to your body, speak up, and hold on to what makes you you.

Watch Nevin’s video to find out more about:

How a simple cough led to his life-changing stage 4 Hodgkin lymphoma experience.
Why trust in your gut can be your best medical advocate.
How cancer doesn’t have to affect one’s self-identity.
The emotional challenges of putting your dreams on pause for health.
Nevin’s candid reflections on fertility, mental health, and hope.

Name:
- Nevin S.
Age at Diagnosis:
- 28
Diagnosis:
- Hodgkin Lymphoma
Staging:
- Stage 4
Symptoms:
- Bad cough
- Severe skin itch, especially on the legs
- Extreme fatigue and dizziness
- Night sweats
- Lumps in the neck and armpit
Treatments:
- Surgery: lymphadenectomy
- Chemotherapy

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, Nevin!

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Self-Advocacy and Stage 4 Colon Cancer: Jay’s Story

Post author By Chris Sanchez
Post date June 10, 2025
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June 10, 2025

Jay’s Path to Self-Advocacy and Healing Beyond Stage 4 Colon Cancer

Jay, an ex-athlete and father of three, was diagnosed with stage 4 colon cancer when he was 43. It all started with a symptom many might overlook: intermittent blood in his stool. But rather than dismiss it, Jay consulted his doctor. This touched off a series of medical tests. A CT scan and colonoscopy revealed a mass, marking the beginning of his life-altering experience.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Despite the shock, Jay embraced the process with resilience, navigating surgeries, chemotherapy, and countless medical procedures. His ordeal wasn’t just physical. The mental toll of living with stage 4 colon cancer reshaped his identity. He describes feeling like the sole survivor of a plane crash, grappling with survivor’s guilt as he watched fellow patients succumb to the disease.

This emotional weight prompted Jay to seek mental health support, helping him process not just survival but the loss and changes around him. He discovered that PTSD doesn’t only follow traumatic events like war — it can also stem from enduring a significant illness.

Throughout his treatment for stage 4 colon cancer, Jay focused on self-advocacy. He actively participated in treatment decisions and opted for advanced tests like the KRAS test to personalize his care. This approach to self-advocacy also meant embracing help from family and friends, acknowledging that support isn’t a sign of weakness but an integral part of healing. Jay noted that in his view, his wife and close family bore emotional burdens just as heavy as his own.

Physically, the long-term side effects of treatment linger. Jay describes his fatigue, altered taste sensations, and sensitivity to cold drinks— all reminders of what his body has been through. Yet, his mindset remains empowered. He stresses the importance of being active and cherishes the people who walked beside him, whether offering physical or emotional support.

Jay’s story isn’t just about surviving stage 4 colon cancer — it’s about what he did starting at his diagnosis. From the moment he received the news, Jay became a fierce advocate for his own care. He asked questions, sought out advanced testing, and made sure his voice was part of every treatment decision.

Watch Jay’s story and discover:

The importance of listening to your body
The role of self-advocacy in shaping a treatment path
The unexpected mental hurdles that can come from beating stage 4 colon cancer
Why accepting help is one of the strongest things you can do
How it might be possible to turn an unsettling diagnosis into a life of gratitude and self-awareness

Name:
- Jay W.
Age at Diagnosis:
- 43
Diagnosis:
- Colon Cancer
Staging:
- Stage 4
Symptom:
- Occasional presence of blood in stool
Treatments:
- Chemotherapy
- Surgery: installation of port and liver infusion pump, colectomy, hepatectomy, liver ablation, removal of liver infusion pump

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, Jay!

Inspired by Jay's story?

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Choosing Quality of Life in Her Rhabdomyosarcoma Treatment

Post author By Katrina Villareal
Post date June 2, 2025
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June 18, 2025

How Brittany Chooses Quality of Life in Her Stage 4 Rhabdomyosarcoma Treatment Decisions

Brittany received a life-altering diagnosis of stage 4 rhabdomyosarcoma in July 2024. What started as a small lump on her jaw quickly escalated into a whirlwind of hospital visits, major surgeries, and tough decisions. But throughout it all, Brittany has remained grounded in her values, fiercely committed to preserving her mental health, self-worth, and autonomy.

Interviewed by: Nikki Murphy
Edited by: Katrina Villareal

When Brittany first noticed the lump, doctors thought it might be a cyst. But after it rapidly swelled during a biopsy, further testing confirmed it was cancer. That moment, she recalls, shattered her sense of normalcy. Getting that phone call was a deeply painful turning point. From there, she had to quickly learn how to advocate for herself.

Initially, Brittany’s first oncologist didn’t offer many choices. She sought a second opinion, and that’s when things began to shift. Despite being a young adult, Brittany learned that stage 4 rhabdomyosarcoma is often treated as a pediatric condition, which brought its own emotional weight. But the new oncologist gave her options, including fertility preservation, which was emotionally and physically taxing but important to her.

Brittany started chemotherapy and endured severe nausea, weight loss, and exhaustion, only to find out that the treatment wasn’t effective. In October, doctors removed the tumor surgically, replacing her jaw with titanium and using bone and muscle from her leg for reconstruction. She lost some facial movement in the process, a harsh reminder of the physical toll this diagnosis has taken.

Radiation therapy came next, damaging her salivary glands without improving her condition. Then the cancer spread to her lungs. After more chemo and even a clinical trial, Brittany made the decision that her treatments and their impact on daily life were stealing the quality of life she wanted. She bravely chose to stop her clinical trial treatments and take a more holistic approach, focusing on diet, lifestyle, and emotional healing. She is monitoring her lungs and scheduling a second surgery to work on her jaw.

Mental health has been the toughest part. Losing her physical strength, independence, and even pieces of her identity has been crushing at times. But Brittany has also grown immensely. With unwavering support from her boyfriend and his community, she’s learning to trust herself again, reclaiming her life on her own terms.

Brittany wants others to know they aren’t alone. Stage 4 rhabdomyosarcoma is terrifying, but fear doesn’t get to make the rules. You do. And she’s living proof that, even in the darkest hours, hope and strength can coexist.

Watch Brittany’s video to find out more about:

How Brittany found clarity and control after a devastating diagnosis
Why she has a titanium jaw
The emotional toll of stage 4 rhabdomyosarcoma
Why Brittany walked away from treatment to protect her quality of life
What it means to find your voice when the world tells you what to do

Name:
- Brittany C.
Age at Diagnosis:
- 22
Diagnosis:
- Rhabdomyosarcoma
Staging:
- Stage 4
Symptom:
- Small, sharp lump on the right side of the jaw
Treatments:
- Surgeries: tumor removal & planned corrective jaw surgery
- Chemotherapy
- Radiation therapy
- Clinical trial

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, Brittany!

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Jennifer’s Mental Strength living with Kidney & Ovarian Cancer

Post author By Katrina Villareal
Post date June 1, 2025
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June 8, 2025

Jennifer’s Mental Strength Living with Stage 3 Kidney and Stage 4 Ovarian Cancer

In 2023, Jennifer was blindsided by a dual diagnosis of stage 3 kidney cancer and stage 4 ovarian cancer. Her life was turned upside down in an instant. But rather than let fear take over, she leaned into the present moment and shifted her mindset toward gratitude, growth, and healing.

Jennifer’s story began with a mysterious, rapidly growing abdominal swelling, which led her to urgent care, then the ER, and finally a whirlwind of scans and surgery. Despite being healthy, active, and symptom-free weeks earlier, Jennifer’s world changed overnight.

Interviewed by: Nikki Murphy
Edited by: Katrina Villareal

At first, Jennifer felt emotionally frozen. She was never explicitly told, “You have cancer,” but the weight of the diagnosis was undeniable. She didn’t even learn the exact staging until much later, intentionally avoiding medical reports to protect her mental well-being. Eventually, she discovered her stage 3 kidney cancer and stage 4 ovarian cancer diagnoses, but by then, her focus was already on healing.

One of the most striking parts of Jennifer’s story is how deeply isolation impacted her. With her daughter temporarily living with her father and no family close by, Jennifer went through nearly every step of surgery and chemotherapy alone. Yet, she also found a quiet strength in that solitude. It forced her to self-advocate, connect with supportive professionals like Dr. James Kendrick, and trust her own resilience.

Physically, the process was intense. Jennifer underwent major surgery that removed multiple organs, including her kidney, gallbladder, spleen, and reproductive system. Still, she recovered surprisingly well and chose to forgo heavy pain meds out of caution, relying mostly on acetaminophen and the support of her spiritual community.

Her mental and emotional recovery became just as important. She prioritized walking, listening to her body, and staying emotionally grounded.

Jennifer emphasizes the importance of staying present, advocating for yourself, and refusing to let a diagnosis define who you are. While there are days she still feels afraid, especially around scan times, her approach remains one of empowerment and emotional honesty.

The road ahead includes continued monitoring, a PARP inhibitor regimen, and lifelong surveillance. But what keeps her grounded is her daughter, her deepened gratitude, and her determination not to let fear take the wheel.

Jennifer’s advice to others? Don’t let yourself spiral. Let your mindset lead with curiosity, strength, and presence. You’re allowed to feel everything, but you’re also capable of more than you know.

Watch the video to find out more about Jennifer’s story:

What the worst part of her cancer experience was (it wasn’t surgery or chemo)
Why she refused to look at her medical records after diagnosis.
What helped her cope when the hospital room was quiet and fear was loud.
Why she couldn’t say the C-word and how she found her strength.
How she turned fear, isolation, and uncertainty into radical gratitude and growth.

Name:
- Jennifer W.
Age at Diagnosis:
- 52
Diagnosis:
- Kidney Cancer and Ovarian Cancer
Staging:
- Stage 3 (Kidney Cancer) and Stage 4 (Ovarian Cancer)
Mutation:
- BRCA1
Symptom:
- Abdominal bloating
Treatments:
- Surgeries: hysterectomy, splenectomy, nephrectomy (left kidney removed), cholecystectomy
- Chemotherapy
- Targeted therapy: PARP inhibitor

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, Jennifer!

Inspired by Jennifer's story?

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Kelly’s Subtle Symptoms of Stage 4 Colon Cancer

Post author By Chris Sanchez
Post date June 1, 2025
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June 1, 2025

Kelly Navigates Life With Stage 4 Colon Cancer

Kelly was diagnosed with stage 4 colon cancer. She reflects on the subtle signs she overlooked — persistent constipation, bloating, and occasional severe abdominal cramps. Like many, she chalked these symptoms up to diet choices and life stress. However, her worsening condition after a recent move pushed her to visit the emergency room. There, a CT scan revealed her diagnosis, and it changed everything.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

When she heard the words, “colon cancer”, Kelly felt like the room collapsed around her. Alone in a new state, miles from family, she faced the overwhelming news head-on. Despite her initial denial, especially about undergoing major surgery and having a temporary colostomy bag, the stark reality was clear: accept the treatment or face life-threatening consequences. That pivotal moment shifted her mindset, igniting a determination to do what was necessary to survive.

Initially diagnosed as stage 2, Kelly had the option to undergo chemotherapy but chose not to, feeling hopeful after her surgery. Unfortunately, a year later, she discovered the cancer had metastasized to her liver, upgrading her diagnosis to stage 4 colon cancer. This news devastated her. Yet, amid the emotional whirlwind, she found out she was eligible for surgery to remove the liver tumors, offering a glimmer of hope.

Kelly’s health journey wasn’t just about cancer. Post-surgery, she battled a severe liver infection that left her physically depleted. Surprisingly, that infection felt more life-threatening than cancer itself. Through relentless fevers, night sweats, and unyielding fatigue, Kelly persevered, leaning on sheer willpower and the support of her loved ones.

Reflecting on her experience, Kelly emphasizes the importance of self-advocacy. She wishes she’d pushed harder when symptoms emerged much earlier, like rectal bleeding, once dismissed by her doctor as a minor issue due to her age. She urges fellow patients to trust their instincts, ask questions, and advocate fiercely for their health.

Today, despite the lingering fears that scans and blood tests bring, Kelly embraces life with renewed passion. She cherishes every moment with her children, finds solace in nature, and seeks out new experiences with an invigorated spirit. While there’s a shadow of uncertainty, she remains hopeful and encourages others not to give up. Kelly’s story is a powerful reminder that even in the face of stage 4 colon cancer, life can still be filled with beauty, growth, and purpose.

Watch Kelly’s video for more on:

How a routine ER visit unveiled her unexpected stage 4 colon cancer diagnosis.
The overlooked symptoms that Kelly wishes she’d paid more attention to.
What’s harder — battling cancer or an unexpected post-surgery infection? She shares her truth.
The emotional toll of living with cancer and why self-advocacy matters.
How Kelly’s love for nature became her therapy amid life’s toughest health battles.

Name:
- Kelly C.
Age at Diagnosis:
- 47
Diagnosis:
- Colon Cancer
Staging:
- Stage 4
Symptoms:
- Constipation
- Bloating
- Severe abdominal pain
Treatments:
- Surgeries: colectomy, colostomy, hepatectomy
- Chemotherapy

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, Kelly!

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How Stage 4 Appendix Cancer Transformed Erica’s Life

Post author By Chris Sanchez
Post date May 1, 2025
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May 1, 2025

How Stage 4B Appendix Cancer Transformed Erica’s Life

Erica’s story is one of resilience, self-discovery, and perspective shifts. When she was diagnosed with stage 4B appendix cancer in 2021, her life took a turn she never anticipated. Having moved to a different state during the peak of COVID-19 as a new single mom, she channeled her energy into rigorous workouts, juggling a new job she loved, and raising her two kids. Despite leading what appeared to be a healthy and active lifestyle, subtle signs, like fatigue, sharp pain in her side, and unusual early fullness while eating, were easy to dismiss.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Erica’s stage 4B appendix cancer diagnosis came unexpectedly, during what was supposed to be a routine hysterectomy. Waking up from anesthesia to hear the stunning statement, “We think you have cancer,” was surreal, a moment etched in her memory. Despite being asymptomatic for the most part, Erica’s intuition had nudged her toward surgery — an inner voice that, in hindsight, was a lifesaver.

Navigating stage 4B appendix cancer hasn’t been easy. Erica underwent extensive treatments, including various surgeries, hyperthermic intraperitoneal chemotherapy (HIPEC), which involved administering chemotherapy directly into the abdominal cavity, and additional grueling rounds of chemotherapy. The side effects were intense; the fatigue was unlike anything she’d ever known — not just physical exhaustion but a deep, pervasive weariness. Yet, she persisted, returning to work after treatments, determined to reclaim normalcy. However, the cancer’s return was a harsh reminder that survivorship is complex.

Mental health has been a cornerstone of Erica’s experience. She’s transparent about the emotional toll: grappling with the fear of limited time, making tough decisions about her children’s future, and balancing hope with reality. Despite moments of feeling robbed of her spirit, she embraces the blessings cancer has brought, namely, the courage to say yes to new experiences, deeper self-reflection, and meaningful connections with loved ones.

Erica’s message is powerful: choices exist, even when it feels like they don’t. Changing her perspective has been transformative, finding joy in small victories and peace in acceptance. She encourages others to live fully, embrace vulnerability, and rest when needed. Her story isn’t just about battling stage 4B appendix cancer; it’s about living authentically, finding strength in unexpected places, and advocating for mental health awareness alongside rare cancer understanding.

Watch Erica’s video and learn more about:

How her intuition uncovered a rare cancer diagnosis.
How subtle and easily brushed-off signs led to a life-changing discovery.
The unexpected blessings Erica found through stage 4B appendix cancer.
What survivorship really looks like beyond the diagnosis.
Choosing joy: Erica’s journey of resilience and rare cancer awareness.

Name:
- Erica R.
Age at Diagnosis:
- 48
Diagnosis:
- Appendix Cancer
Staging:
- Stage 4B
Symptoms:
- Bloating
- Sharp pain in the side
- Fatigue
- Vomiting after one alcoholic drink
- Early satiety (feeling full)
Treatments:
- Surgeries: cytoreductive surgery (CRS) and hyperthermic intraperitoneal chemotherapy (HIPEC)
- Chemotherapy

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, Erica!

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Gleason 9, Stage 4 Prostate Cancer: John’s Path to Living Well

Post author By Chris Sanchez
Post date May 1, 2025
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May 1, 2025

Diagnosed with Gleason 9, Stage 4 Prostate Cancer: John’s Blueprint for Living Well

John’s life took an unexpected turn in 2021 when he was diagnosed with Gleason score 9, stage 4 prostate cancer (stage 4A). His experience has been anything but easy, yet his story is packed with lessons on resilience, hope, and the power of proactive health management.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

John’s signs that something was amiss were nocturia (frequent nighttime urination) and a weak stream of urine. Despite visiting his doctor and undergoing a prostate-specific antigen (PSA) test, his results were misleading due to a medication called finasteride, commonly used for hair loss. Unfortunately, neither he nor his regular doctor realized that the PSA levels should have been doubled for accurate interpretation. This oversight delayed his diagnosis and, as they realized later, the cancer spread beyond his prostate in the interim.

After a biopsy of his prostate, John received the challenging diagnosis of Gleason score 9, stage 4A prostate cancer along with the revelation of positive margins (cancer left even after surgery), lymph node involvement, and other aggressive cancer indicators. But instead of dwelling on “Why me?”, he shifted his mindset to, “What can I do about it?” This pivot led him to embrace what he calls TIDES: treatment, inspiration, diet, exercise, and sleep, as his personal blueprint to slow down the progression of prostate cancer.

John underwent surgery, hormone therapy (androgen deprivation therapy or ADT), and radiation. These treatments came with intense side effects — hot flashes, joint issues, urinary incontinence, and even the onset of Charcot-Marie-Tooth disease, a rare disease affecting the nerves linking the brain and spinal cord to the rest of the body. Yet, he managed to find new meaning in life despite these challenges. His secret? Focusing on what he could control.

John took a comprehensive approach to navigating his life after diagnosis. Optimizing his diet became a priority. He moved towards plant-based foods, inspired by studies showing that healthier lifestyles reduce prostate cancer mortality risk significantly. Exercise was another key element, helping him manage weight changes due to decreased metabolism from ADT. John also prioritized sleep and mental health, practicing daily gratitude, and finding joy in life’s simplest moments.

Now in remission, John is more determined than ever. His message to others facing stage 4 prostate cancer is simple, yet powerful: don’t let the fear of side effects stop you from seeking treatment. Life after a diagnosis isn’t over; it’s just different and can still be fulfilling.

Watch John’s video to find out about:

How he found hope after his stage 4 prostate cancer diagnosis.
The five lifestyle changes John swears by to manage his health.
Why he says life is still great after a tough cancer experience.
The overlooked PSA test factor that delayed John’s diagnosis.
His secret weapon against cancer blues.

Name:
- John B.
Age at Diagnosis:
- 58
Diagnosis:
- Prostate Cancer
Staging:
- Stage 4A
Gleason Score:
- Gleason 9
Symptoms:
- Nocturia (frequent urination at night)
- Weak stream of urine
Treatments:
- Surgery: prostatectomy
- Hormone therapy: androgen deprivation therapy (ADT)
- Radiation

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, John!

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Janelle’s Stage 4 Adrenal Cancer Story of Connection

Post author By Chris Sanchez
Post date April 30, 2025
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April 30, 2025

Janelle’s Stage 4 Adrenal Cancer Story: The Power of Persistence and Connection

Janelle is a spirited 42-year-old whose resilience shines through despite her rare diagnosis of stage 4 adrenal cancer. Her experience underscores the importance of self-advocacy, mental health, and the power of community support.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Janelle’s health concerns began in 2013 with an unusual thirst — she was drinking as much as 300 oz of water daily. Despite numerous doctor visits, misdiagnoses, being gaslit, and even being dismissed as “attention-seeking,” her persistence never wavered. She navigated through multiple endocrinologists until her trusted primary care physician took her symptoms seriously. In 2021, a sudden sharp pain from a kidney stone led to a CT scan, revealing a four-centimeter mass on her adrenal gland — a life-saving discovery hidden behind unexpected agony.

The diagnosis? Stage 3 adrenal cancer (adrenocortical carcinoma), which later advanced to stage 4 adrenal cancer after it was found to have spread to Janelle’s lungs. The emotional weight of the news, compounded by family health crises and feelings of isolation, was overwhelming. But she found solace in connecting with others across the globe facing the same rare cancer. These connections became her anchor, offering an invaluable sense of belonging in a sea of uncertainty.

With a treatment plan involving an oral chemotherapy medicine derived from a compound as controversial as its history (it’s related to the banned pesticide DDT), Janelle faces harsh side effects: relentless fatigue, nausea, and more. Despite these challenges, her mental fortitude remains strong. She copes with the invisible nature of her illness, combating not just stage 4 adrenal cancer but also the misconceptions of those around her. Her husband’s unwavering support and the thought of her beloved niece fuel her determination.

Janelle’s message is clear: self-advocacy is non-negotiable. Her story is a testament to the importance of trusting your instincts, pushing for answers, and never settling when it comes to your health.

Watch Janelle’s video and find out more about:

How a kidney stone turned out to be the unexpected hero of her life.
The rare cancer community that spans continents and hearts.
How Janelle’s persistence saw her through, even though she kept getting dismissed by doctors.
The unseen battles and silent strength that are part and parcel of living with stage 4 adrenal cancer.
The everyday heroes behind Janelle’s fight — family, friends, and fierce self-advocacy.

Name:
- Janelle C.
Age at Diagnosis:
- 38
Diagnosis:
- Adrenal Cancer (Adrenocortical Carcinoma)
Staging:
- Stage 4
Symptoms:
- Excessive thirst and water intake
- Interrupted sleep due to waking to drink and urinate
- Suspicious weight gain despite working out
Treatments:
- Surgeries: adrenalectomy, nephrectomy
- Oral chemotherapy
- Steroids

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.

Thank you for sharing your story, Janelle!

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