Home > Patient Stories > Skin Cancer > Redefining Strength: How Ciarra Faces Dermatofibrosarcoma Protuberans (Rare Skin Cancer)

Redefining Strength: How Ciarra Faces Dermatofibrosarcoma Protuberans (Rare Skin Cancer)

Ciarra candidly shares her experience with dermatofibrosarcoma protuberans, a rare skin cancer she was diagnosed with in December 2024. Working in mental health, Ciarra’s passion for advocacy shines through as she opens up about her diagnosis, the challenges she faced, and the importance of trusting your instincts.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

It all started in late 2023 when Ciarra noticed a pea-sized lump on her left clavicle — painless and nestled under the skin. Despite initial tests showing nothing alarming, her gut told her something wasn’t right. Persistent night sweats, frequent fevers, and a feeling that her body was “off” pushed her to advocate for herself, even when medical professionals said it wasn’t concerning. After several tests and a biopsy, she received the unexpected diagnosis of this rare skin cancer.

Ciarra D. dermatofibrosarcoma

The news overwhelmed Ciarra. But her determination never wavered. She navigated her treatment for dermatofibrosarcoma protuberans, which primarily involved surgery to achieve clear margins, without hair loss or other hallmarks many associate with cancer. This led to feelings of impostor syndrome — wondering if her experience “counted” as cancer. But as she reflects, cancer doesn’t have a singular face or story, especially a rare skin cancer like hers.

Mental health played a crucial role in Ciarra’s healing process. Despite working in the field, she admits that coping wasn’t easy. She leaned heavily on her support system, finding comfort in family, friends, and even an online community of others living with rare skin cancer. Small joys, like laughter with her aunt or cuddles from her dog, became powerful reminders of resilience.

Ciarra’s story is a testament to the power of self-advocacy. She emphasizes the importance of trusting your body, pushing for answers, and not feeling guilty for being persistent. Her advice? Take things one day at a time, cherish small victories, and don’t hesitate to seek support. Because in the end, what truly matters is showing up for yourself, no matter what.

Watch Ciarra’s video for more on:

  • How a small lump turned into a life-changing discovery.
  • How Ciarra’s mental health background helped (and sometimes didn’t) in facing rare skin cancer.
  • The diagnosis no one expected: what her rare skin cancer taught her about self-advocacy.
  • Feeling dismissed by doctors? Ciarra’s experience proves why trusting your gut is vital.
  • From fear to empowerment: her candid take on living with rare skin cancer.

  • Name:
    • Ciarra D.
  • Age at Diagnosis:
    • 27
  • Diagnosis:
    • Dermatofibrosarcoma Protuberans (Rare Skin Cancer)
  • Symptoms:
    • Small lump on the clavicle
    • Night sweats
    • Weekly fevers
  • Treatment:
    • Surgery: removal of the tumor
Ciarra D. dermatofibrosarcoma
Ciarra D. dermatofibrosarcoma
Ciarra D. dermatofibrosarcoma
Ciarra D. dermatofibrosarcoma
Ciarra D. dermatofibrosarcoma
Ciarra D. dermatofibrosarcoma

This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.


Ciarra D. dermatofibrosarcoma
Thank you for sharing your story, Ciarra!

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