Why Getting a Second Opinion Changed Joel’s Grade 2 Myxofibrosarcoma Treatment Plan
Joel has always valued family, faith, and community. Married for 31 years with a daughter and several foster children, he never imagined cancer would be part of his life. However, in a life-changing moment, in December 2024, at age 57, he was diagnosed with a grade 2 myxofibrosarcoma, a rare soft tissue cancer.
Interviewed by: Nikki Murphy
Edited by: Katrina Villareal
A small lump on his shin seemed minor at first, and he initially dismissed it as a fatty growth. However, over several months, it grew larger, prompting him to visit his doctor. As a precaution, though the doctor believed it was likely benign, they ordered tests to rule out any serious issues. An ultrasound came back inconclusive, leading to an MRI, which heightened concerns. Seeking a second opinion, Joel consulted a friend who connected him with a sarcoma specialist at the University of Iowa. Within hours, Joel received a call confirming that he had myxofibrosarcoma.
The uncertainty of his diagnosis was overwhelming. Not knowing whether he had months or years left to live was a heavy burden. However, after a biopsy confirmed it was grade 2 myxofibrosarcoma and contained, he felt a sense of relief. His doctor reassured him that they could treat his condition and manage it if it recurred.
Joel’s grade 2 myxofibrosarcoma treatment plan consists of radiation therapy, which he undergoes daily for a few minutes. Though he hasn’t experienced significant side effects yet, doctors have advised him that he may develop skin irritation in later weeks. After radiation, surgeons will remove the tumor and perform a skin graft and muscle repositioning to help the area heal properly.
Despite these medical interventions, Joel remains physically strong, continuing his workouts and daily routine without pain. Emotionally, Joel finds strength in his faith, family, and supportive community. His wife has been his rock and his close-knit group of friends offers him unwavering encouragement. His belief in God provides reassurance, removing the fear of death and allowing him to focus on living fully.
Beyond his experience with grade 2 myxofibrosarcoma, Joel emphasizes the importance of seeking medical advice early, especially for men who often downplay health concerns. He considers how his initial reluctance to get checked could have caused worse outcomes. Now, he encourages others to listen to their bodies and take proactive steps.
His outlook on life has shifted, centering on gratitude and using his experience to uplift others. He firmly believes in leveraging crises to bring awareness, comfort, and inspiration to those in need, rather than letting them go to waste. Instead of letting cancer define him, Joel is choosing to make a difference, reminding others that hope and purpose can thrive even in the face of adversity.
Joel’s Diagnosis Facts
- Name: Joel S.
- Age at Diagnosis:
- 57
- Diagnosis:
- Myxofibrosarcoma
- Grade:
- Grade 2
- Symptom:
- Lump on shin (gradual growth over several months)
- Treatments:
- Radiation therapy
- Surgery: tumor removal & reconstruction of affected area
This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.
This interview has been edited for clarity and length. The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story. This content does not replace professional medical advice.
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