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LeeAnn Found Meaning After Her Adult Diffuse Intrinsic Pontine Glioma (DIPG) Brain Tumor Diagnosis
LeeAnn T., Brain Tumor (Diffuse Intrinsic Pontine Glioma or DIPG), Grade 2 Symptoms: Facial tingling, double vision Treatment: Radiation therapy
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Rebuilding Her Identity: Alicia’s Pancreatic Neuroendocrine Cancer (pNET) Experience
Alicia S., Pancreatic Neuroendocrine Tumor (pNET), Stage 4, Grade 3 Symptoms: Abdominal pain, nausea, swelling, extreme fatigue, hormone-related changes, severe acne, flushing Treatments: Chemotherapy (CAPTEM and FOLFOX), surgeries (distal pancreatectomy, splenectomy), radiation therapy (Y-90 radioembolization), hormone therapy (lanreotide), bland embolization
Bland embolization, CAPTEM (capecitabine and temozolomide), Chemoembolization, Chemotherapy, Distal pancreatectomy, FOLFOX (folinic acid, fluorouracil, oxaliplatin), Hormone Therapies, Lanreotide, Metastatic Neuroendocrine Cancer, Pancreatectomy, Pancreatic Cancer, Patient Stories, Radiation Therapy, Splenectomy, Surgery, Treatments, Y-90 radioembolization -
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Kelsey’s Stage 4 EGFR+ and ALK+ Non-Small Cell Lung Cancer Story
Kelsey D., Non-Small Cell Lung Cancer, EGFR+, ALK+, Stage 4 (Metastatic) Symptoms: Severe back pain, falling due to collapsed spinal vertebrae Treatments: Radiation therapy, targeted therapy (tyrosine kinase inhibitor, osimertinib), surgery (spinal fusion surgery), chemotherapy (through a clinical trial)
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“I Was Weeks Away from Liver Failure”: Jim’s Stage 4 Colon Cancer
Jim S., Colon Cancer, Stage 4 (Metastatic) Symptom: Back pain, especially when sleeping for long periods Treatments: Surgery (partial colectomy), chemotherapy (FOLFIRINOX, fluorouracil, oxaliplatin, irinotecan), monoclonal antibody (bevacizumab)
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Living With Follicular Lymphoma: Tawanna and Barry on Watch & Wait, Marriage, and Faith
Tawanna T., Follicular Lymphoma, Stage 3 Symptoms: Incidental finding during pre-kidney donation scan Treatment: Watch and wait/active surveillance
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How an Athlete’s Mindset Guided Marina’s Triple-Negative Breast Cancer Experience – Twice
Marina B., Triple-Negative Breast Cancer, Stage 2, BRCA1+ Symptoms: Month-long twinge of pain in breast (first diagnosis), appearance of lump in armpit (second diagnosis) Treatments: Chemotherapy (AC and paclitaxel), surgery (mastectomy and reconstruction), radiation therapy
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Hope and Self‑Advocacy: Holly’s Stage 4 Endometrial Cancer Experience
Holly J., Endometrial Cancer, Stage 4 (Metastatic) Symptoms: Severe fatigue, depression, decreased appetite, feeling full quickly, abnormal bleeding, severe pelvic pain, persistent skin infection Treatments: Chemotherapy, surgery (hysterectomy)
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Colon Cancer at 24: Meagan’s Story of Listening to One Symptom
Meagan M., Colon Cancer, Stage 3C Symptom: Appearance of blood in stool Treatments: Surgery (partial colectomy), chemotherapy (FOLFOX)
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Metastatic Thyroid Cancer in College: Grace’s Story of Self‑Advocacy and Softball
Grace B., Thyroid Cancer (Papillary Thyroid Carcinoma), Metastatic Symptoms: Significant and unexplained weight gain, persistent fatigue, brain fog, bloating Treatments: Surgery (subtotal thyroidectomy with central neck dissection), watch and wait/active surveillance
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Kalei’s Stage 4 Rectal Cancer Story: Has My Cancer Returned?
Kalei M., Rectal Cancer, Stage 4 (Metastatic) Symptoms: More frequent bowel movements, presence of mucus, tissue-like substance, and blood in stool, stomach cramping and sharp pains Treatments: Radiation therapy, chemotherapy (FOLFOX), surgeries (two lung resections)
