Categories
Clinical Trials Kyphoplasty Liver Cancer Patient Stories Radiation Therapy Surgery Targeted Therapy Transarterial chemoembolization (TACE) Treatments

Will’s Experience with Stage 4 Liver Cancer is Marked by Moments of Joy

Will’s Experience with Stage 4 Liver Cancer is Marked by Moments of Joy

Will found out that he had stage 4 liver cancer in December 2022. Before that, his life felt like a blur. He struggled with unexplained exhaustion, frequent diarrhea, sporadic vomiting (especially after eating pork or rich food), and a sense of discomfort he couldn’t put his finger on.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

One day, in the middle of a badminton game, Will felt an unusual hardness in his abdomen. This led him to seek medical advice. He ended up going to a hospital, where doctors ran tests and procedures and eventually uncovered a massive tumor that took up nearly 70% of his liver.

Will M. stage 4 liver cancer

The ER doctor compassionately delivered the grim news that Will had liver cancer, and this thoughtfulness and consideration helped him find his footing despite the overwhelming odds. He also found solace in actionable steps. He initially underwent immunotherapy and targeted therapy. These treatments weren’t successful, but he and his medical team didn’t stop there. Clinical trials offered Will hope and insight into medical advancements. These trials were grueling, but they supported his resilience and determination to get better.

Stage 4 liver cancer introduced a new rhythm to Will’s life. He learned to accept his situation, which became his basis for adaptation and also formed a surprising foundation for moments of joy. He found that physical activity helped him feel free and helped him reclaim his autonomy. Despite Will’s physical limitations, sports, including swimming and cycling, became a refuge and source of comfort. His ambitions grew bolder: he aimed to complete a triathlon. Every move he made, further emboldened his defiance against any thoughts of despair and helped him enjoy life’s simple freedoms.

Will’s tumor shrank significantly, and his health stabilized remarkably, thanks to treatment, which was made available through applying for compassionate-use medication or using a new treatment not yet approved even if you are not taking part in the clinical trial. Uncertainties linger regarding his stage 4 liver cancer, but he remains laser-focused on living fully. He urges fellow patients to be proactive regarding their health management and to ask questions, prepare for medical appointments, and embrace discomfort as part of the process. He’s found that happiness isn’t dependent upon one’s health status; one can enjoy meaningful moments even during times of adversity.

Watch Will’s video to find out more about:

  • How badminton led him to uncover a stage 4 liver cancer growing right under the surface of his abdomen
  • The unexpected role that swimming and cycling played in his health transformation
  • Why a dead phone during Will’s diagnosis became an oddly pivotal moment
  • How he found happiness amid treatment for advanced cancer
  • The power of asking the right questions during medical appointments and pushing for compassionate use medication

  • Name:
    • Will M.
  • Age at Diagnosis:
    • 29
  • Diagnosis:
    • Liver Cancer
  • Staging:
    • Stage 4
  • Symptoms:
    • General uneasiness
    • Exhaustion
    • Diarrhea
    • Hard mass in the abdomen
    • Worsening abdominal pain in the upper right quadrant
  • Treatments:
    • Surgery: kyphoplasty
    • Chemotherapy
    • Targeted therapy
    • Transarterial chemoembolization (TACE)
    • Radiation therapy
    • Clinical trial
Will M. stage 4 liver cancer
Will M. stage 4 liver cancer
Will M. stage 4 liver cancer
Will M. stage 4 liver cancer
Will M. stage 4 liver cancer
Will M. stage 4 liver cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Will M. stage 4 liver cancer
Thank you for sharing your story, Will!

Inspired by Will's story?

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Dania M.

Dania M., Colon Cancer, Stage 4, with Liver and Peritoneal Carcinomatosis



Symptoms: Constipation, diarrhea, severe bloating, swollen belly as if pregnant
Treatments: Surgery, immunotherapy

Brittany B., Liver and Bile Duct Cancer, Stage 4



Symptoms: Amenorrhea, unexplained weight loss, loss of appetite, pain in right upper quadrant of abdomen

Treatments: Surgery, immunotherapy

Categories
Breast Cancer Chemotherapy Lymphadenectomy Mastectomy Metastatic Patient Stories Radiation Therapy Surgery Targeted Therapy Treatments

Maria’s Self-Advocacy and a 2nd Opinion Found Her Stage 4 Breast Cancer

Maria’s Self-Advocacy and a 2nd Opinion Found Her Stage 4 Breast Cancer

Maria’s experience being diagnosed with stage 4 breast cancer began when her young nephew accidentally kicked her breast while they were playing. She checked her breast afterwards and found a marble-sized lump. She first dismissed it as a cyst, partly because she has a history of ovarian cyst issues, and the doctors she’d seen before had told her that hormone fluctuations could cause benign growths. 

Part 1: Diagnosis

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Over the next few months, Maria started to experience more serious symptoms, including burning sensations, skin changes, the inversion of her nipple, and night sweats. After several ER visits and numerous tests, including ultrasounds, she was given a diagnosis of granulomatous mastitis, which was later found to be inaccurate. (Editor’s Note: Granulomatous mastitis is a rare, benign breast cancer condition that can cause symptoms like pain, tender lumps, and nipple inversion.)

Finally, Maria had an accidental encounter with a breast cancer survivor, who suggested the Every Woman Counts program, which offers free breast and cervical cancer screening and diagnostic services in California. Maria’s persistent self-advocacy paid off when she was correctly diagnosed with stage 3 ductal carcinoma, which later progressed to stage 4 breast cancer when it metastasized to her bones and lungs.

Maria S. stage 4 breast cancer

While Maria found her first chemotherapy sessions manageable, she experienced intense side effects during the next sessions: hair loss, severe nausea, neuropathy, skin changes, and emotional distress. Maria faced these challenges head-on, focusing on practices like meditation to help promote positivity and mindfulness.

Although Maria’s family has been there to support her, she has still felt lonely facing breast cancer without a partner or children of her own. A part of that is struggling with the harsh realities of the effect of illness on daily life and finances — dealing with evictions, having to live with family members, and missing her sense of self. She was also affected by the physical changes she experienced, including those due to surgical scars.

Maria wants to emphasize that stage 4 breast cancer patients and others in situations like hers should never lose hope. There are many helpful things that they can do for themselves, like self-advocating fiercely, trusting their instincts, and surrounding themselves with supportive people. She adds that cancer doesn’t determine whether one deserves love, rest, or joy.

Have a look at part 1 of Maria’s video and:

  • Discover how a playful moment led to her life-changing stage 4 breast cancer diagnosis
  • Learn why Maria’s persistence saved her life 
  • Feel the emotional impact of metastatic cancer
  • Explore the struggles of living with stage 4 breast cancer and its treatments
  • See how Maria’s strength and positivity shine, even in her most painful moments

Stay tuned for Part 2 where Maria tells her treatment story including chemo, radiation, surgery, and targeted therapy.


  • Name:
    • Maria S.
  • Age at Diagnosis:
    • 30
  • Diagnosis:
    • Breast Cancer
  • Staging:
    • Stage 4
  • Symptoms:
    • Intermittent but severe pain, including a burning sensation on the side of the breast
    • Appearance of a cyst and a lump
    • Abnormally warm and pink-colored breast
    • Nipple inversion
    • Strangely liquid menstrual periods
    • Unusual underarm odor
    • Darkening and dimpling of the nipple
    • Severe fatigue
    • Night sweats
  • Treatments:
    • Chemotherapy
    • Surgeries: mastectomy, lymphadenectomy
    • Radiation therapy
    • Targeted therapy
Maria S. stage 4 breast cancer
Maria S. stage 4 breast cancer
Maria S. stage 4 breast cancer
Maria S. stage 4 breast cancer
Maria S. stage 4 breast cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Maria S. stage 4 breast cancer
Thank you for sharing your story, Maria!

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More Metastatic Breast Cancer Stories

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Categories
Gastric Adenocarcinoma Lymphadenectomy Patient Stories Stomach Cancer Surgery Total Gastrectomy Treatments

Life Without a Stomach? Graham’s Stomach Cancer Surgery Story

Life Without a Stomach? Graham’s Stomach Cancer Surgery Story

At 61, Graham found out that he had stomach cancer. He’d been vigilant for years due to his family’s history with Lynch syndrome, and so he started having annual screenings. These reassured him, but eventually also brought him the life-altering news about his health.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Graham discovered he was positive for Lynch syndrome, a commonly inherited cancer syndrome that increases cancer risk, after his cousin was diagnosed with colon cancer and his family underwent genetic testing. Two decades followed, during which he had regular screenings. Nothing turned up suspicious, but everything changed in 2023. A routine endoscopy revealed something worrisome and, soon after, Graham was told he had stomach cancer, specifically early-stage diffuse gastric adenocarcinoma with signet ring cell features, poorly differentiated. (Editor’s Note: Signet ring adenocarcinoma is a rare and aggressive subtype of adenocarcinoma. Diffuse stomach cancer is a rare form of stomach cancer. Poorly differentiated adenocarcinomas spread faster than other carcinomas whose cells are better differentiated.) 

Graham L. stomach cancer

Graham was devastated by his stomach cancer diagnosis. Thankfully, his wife, Christina, was with him when he had that fateful conversation with his doctor. She absorbed all the crucial information and helped him stay calm when his mind drifted due to shock, fear, and uncertainty.

Dealing with everything after diagnosis involved coming to grips with stomach cancer and his treatment, which included adjusting both emotionally and physically. Graham underwent a total gastrectomy, which meant that he needed to learn to live without a stomach. Recovering from surgery wasn’t just about physical healing; it also involved redefining what was normal for him. Graham’s weight plummeted while he struggled to deal with the loss of his stomach. He also worked to find foods that his digestive system could manage, and he had to make do without the usual hunger cues.

Graham’s consultations with dietitians were crucial. Their guidance helped him learn to focus on nutrient-dense foods and supplements that could counter dietary deficiencies. He found that emotional support was also important. Graham found solace in counseling and an online support group where he connected with others, exchanged practical tips, and found mutual encouragement.

When Graham attempted to re-enter his social environment, he found new challenges. Because food is part and parcel of social gatherings, he faced “food anxiety” and thought twice about joining even friendly gatherings. Over time, though, he gradually became more confident as he found new ways to engage with his friends and family and became less pressured by eating norms.

Graham’s advice regarding stomach cancer is clear: talk to your doctor about screenings, regardless of your age. Early detection saved his life, and it may well save others’ lives, too.

Watch Graham’s video to learn more about:

  • How does one live without a stomach? Graham’s story reveals the answer
  • Graham’s candid reflections on life after stomach cancer
  • The unexpected challenges of social life after a total gastrectomy
  • The vital role of emotional support in Graham’s recovery from stomach cancer
  • Why talking to your doctor about screenings could save your life: Graham’s heartfelt plea

  • Name:
    • Graham L.
  • Age at Diagnosis:
    • 59
  • Diagnosis:
    • Stomach Cancer (Diffuse Gastric Adenocarcinoma with Signet Ring Cell Features, Poorly Differentiated)
  • Staging:
    • Stage T1bN0
  • Symptoms:
    • None; a stomach polyp discovered during his annual screening tested positive for cancer
  • Treatments:
    • Surgeries: total gastrectomy, lymphadenectomy
Graham L. stomach cancer
Graham L. stomach cancer
Graham L. stomach cancer
Graham L. stomach cancer
Graham L. stomach cancer
Graham L. stomach cancer
Graham L. stomach cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Graham L. stomach cancer
Thank you for sharing your story, Graham!

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More Stomach Cancer Stories

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Chemotherapy Colorectal Metastatic Ostomy Patient Stories Radiation Therapy Rectal Surgery Treatments

Devon Confronted Stage 4 Rectal Cancer at 30

Devon Confronted Stage 4 Rectal Cancer at 30

Devon found out she had stage 4 rectal cancer in March 2023, when she was only 30 years old. She started to experience her first symptoms a month before that: frequent bathroom visits (up to 20 times a day), discomfort that became pain, and, in some instances, passing mucus instead of stool. She initially thought she had irritable bowel syndrome, but her gut feeling (literally and figuratively) convinced her to look for medical advice.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Devon took a proactive approach to her diagnosis. This included closely tracking her symptoms and how they progressed, as well as persistently communicating with doctors. Thanks to her approach, she was able to land a quick appointment with a gastroenterologist. Within just 20 minutes of meeting her and conducting an exam, the doctor detected something amiss and recommended that she undergo a colonoscopy immediately. The diagnosis? Stage 4 rectal cancer.

Devon B. stage 4 rectal cancer

Devon was shaken by her diagnosis. Because she had neither a family history of rectal cancer nor any of the typical risk factors, it felt surreal. However, she didn’t fixate on asking, “Why me?” Instead, she asked, “What’s next?” 

Devon’s doctors conducted a flurry of tests and scans and referred her to other doctors, but she ended up returning to Seattle for comprehensive care. However, her symptoms worsened while she was making her way back, resulting in an emergency ostomy surgery in San Francisco. It was a painful procedure, but she felt better afterwards.

After surgery, Devon’s stage 4 rectal cancer treatment plan included six weeks of daily pelvic radiation, low-dose chemo pills, and four months of traditional chemotherapy. Although she initially responded well to these treatments to the point of being declared no evidence of disease, the cancer returned. She then started a more intense second round of chemotherapy. But Devon has refused to buckle despite this setback and has managed this new phase of her treatment with courage and support from her loved ones.

Devon and her doctors now rigorously and closely monitor her health. She offers simple but powerful pieces of advice to others: listen to your body and find your community. Because the adolescent and young adult cancer community played such a crucial role in her emotional recovery as a young adult who faced cancer, thanks to offering understanding and solidarity that’s hard to find elsewhere, she recommends that other patients find their people, too.

Watch Devon’s video and:

  • Learn how the “small” but ominous symptoms she struggled with led to a big discovery
  • See what it’s like to face stage 4 rectal cancer, which is usually associated with older people, at just 30
  • Rethink what you think you know about rectal cancer — Devon has neither family history nor risk factors for it
  • Find out how she navigates life with rectal cancer: from symptoms to survival

  • Name:
    • Devon B.
  • Age at Diagnosis:
    • 30
  • Diagnosis:
    • Rectal Cancer
  • Staging:
    • Stage 4
  • Symptoms:
    • Pain when trying to move bowels
    • Increased frequency of bowel movements, alternating with periods of constipation
    • Passing mucus instead of feces
    • Narrow stools
  • Treatments:
    • Surgery: ostomy surgery
    • Radiation therapy
    • Chemotherapy
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer
Devon B. stage 4 rectal cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Devon B. stage 4 rectal cancer
Thank you for sharing your story, Devon!

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Categories
Appendectomy Appendix Cancer Low-grade appendiceal mucinous neoplasm (LAMN) Patient Stories Surgery Treatments

Trust Your Gut: Tor’s LAMN Appendix Cancer Story

Trust Your Gut: Tor’s LAMN Appendix Cancer Story

Tor is from the UK, but she lived in Taiwan for a little while, an experience made more memorable by a jolting diagnosis of appendix cancer. For years before that point, she had been struggling with baffling symptoms, including sporadic, stabbing stomach pains that doctors thought were due to overexercising or food allergies.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

In 2022, all of a sudden, Tor’s discomfort turned unbearable. She sought help at a Taiwanese hospital where she had ultrasounds and blood tests, all of which were clear. She kept insisting on more checks, though, because something inside her screamed that her condition was serious. She begged for and finally got a CT scan, which revealed a mass near her bowel. 

Tor K. appendix cancer

The medical team initially suspected a twisted bowel, but they conducted an emergency surgery. It unveiled the true culprit: appendix cancer — specifically, a low-grade appendiceal mucinous neoplasm or LAMN. (Editor’s Note: A LAMN is a rare, low-grade, mucus-producing tumor of the appendix.) Tor was terrified by this diagnosis, all the more since she was by herself in a foreign hospital, far from family, with few friends who could drop by to comfort her.

Tor felt better when the doctors told her the mass was benign. She flew back to the UK to recover, only to be blindsided when she found out that the mass was, in fact, malignant. The revelation hit her hard, filling her with confusion and fear, especially since her pain and uncertainty contrasted with the happiness of friends celebrating birthdays and other milestones. Since she was single, she also had to deal with fears about being unable to meet someone and her desire to have children.

Tor was determined to reclaim control over her health, so she focused on regaining her fitness. She used to be into running, and, after surgery, she struggled to return to her old routines. But while waiting for the results of MRI scans, she decided to take a personal training course, a long-time goal of hers. It kept her mind occupied, but also gave her a fresh sense of purpose. Through it, she discovered a course in cancer exercise rehabilitation, which gave her an avenue to help others within the appendix cancer community by offering them physical guidance and emotional comfort.

Tor’s appendix cancer experience highlights the power of self-advocacy. Her story might have ended quite differently if she had simply accepted what her first set of doctors had told her. She also underscores the importance of staying physically active. Because she had been into sports before surgery, she was able to recover faster afterwards, and it also gave her a way to help others. 

Watch Tor’s video to take a deeper dive into:

  • How a gut feeling and insisting on it despite what others said saved her life
  • What it’s like facing an appendix cancer diagnosis alone and miles away from home
  • From half-marathons to healing: Tor’s fitness-fueled recovery
  • The emotional toll of cancer when your friends are celebrating life milestones
  • How self-advocacy became Tor’s most powerful health tool

  • Name:
    • Tor K.
  • Age at Diagnosis:
    • 29
  • Diagnosis:
    • Appendix Cancer (Low-Grade Appendiceal Mucinous Neoplasm or LAMN)
  • Symptoms:
    • Sporadic stabbing pains in the abdomen and groin after meals, occurring over several years
    • Fatigue
  • Treatment:
    • Surgery: appendectomy
Tor K. appendix cancer
Tor K. appendix cancer
Tor K. appendix cancer
Tor K. appendix cancer
Tor K. appendix cancer
Tor K. appendix cancer
Tor K. appendix cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Tor K. appendix cancer
Thank you for sharing your story, Tor!

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More Appendix Cancer Stories

Lindsay B. feature profile

Lindsay B., LAMN Appendix Cancer



Symptom: Increasing urge to urinate

Treatments: Cytoreductive surgery (CRS), Hyperthermic Intraperitoneal Chemotherapy (HIPEC)

Faye L., Pseudomyxoma Peritonei (Rare Appendix Cancer)



Symptoms: Severe bloating, bad stomachache, elevated CA 125 and tumor markers

Treatments: Chemotherapy, surgery

Alli M., Appendix Cancer, Stage 4



Symptom: Severe abdominal pain

Treatments: Surgeries (right hemisphere colectomy, appendectomy, HIPEC), chemotherapy

Ariel M., Appendix Cancer, Stage 4, High-Grade



Symptom: Sharp pain with gas & bowel movements

Treatments: Surgery (radical hysterectomy), chemotherapy, PIPAC clinical trial (pressurized intraperitoneal aerosol chemotherapy)

Hannah R., Appendix Cancer, Stage 4



Symptoms: Bloating, fullness, UTIs, blood in urine, pain during intercourse, high blood pressure, spotting

Treatments: Surgery (appendectomy, cytoreductive surgery), chemotherapy, radiation (to treat recurrence)

Categories
Chemotherapy Clinical Trials Colon Colorectal Partial colectomy Patient Stories Surgery Treatments

Curiosity and Self-Advocacy Shaped Ian’s Stage 3C Colon Cancer Experience

Curiosity and Self-Advocacy Shaped Ian’s Stage 3C Colon Cancer Experience

Toward the end of November 2022, Ian was diagnosed with stage 3C colon cancer. This diagnosis came after he experienced subtle but worrying signs: fatigue, strange blood test results during his annual physical, and the appearance of blood in his stool.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Ian’s family has a history of cancer (his father also had colon cancer), which has made him extra vigilant. Additionally, his wife and sister, both strong advocates for his health, supported him and encouraged him to seek prompt medical help. Ian advocated for himself from the start, insisting on having diagnostic procedures done immediately, including a colonoscopy he refused to delay.

Ian D. stage 3C colon cancer

Ian was emotionally devastated after receiving his stage 3C colon cancer diagnosis, especially after he learned that it had spread to some lymph nodes. The timing of the diagnosis worsened his emotional burden, as his wife was pregnant with their second child at the time. But Ian refused to back down in the face of these challenges. He not only had a can-do approach; he was also determined to understand every aspect of his condition. This gave him the strength, clarity, and confidence to navigate through his complex healthcare decisions.

Ian’s experience shows how crucial it is to have a medical team that’s aligned with one’s values. In his case, it was paramount that they focused on his quality of life during treatment. He was happy to find an oncologist who didn’t just prioritize effective cancer treatment but also considered his well-being key. This included undertaking strategies to minimize debilitating side effects like neuropathy. Ian was also able to take part in a clinical trial that aimed to reduce chemotherapy-induced neuropathy.

Through his stage 3C colon cancer experience, Ian has remained a staunch self-advocate. He firmly believes in being the “squeaky wheel” — outspoken, persistent, and informed — to help ensure that one receives timely, appropriate medical care. As a survivor, Ian takes his role as a husband and father to heart, actively participates in cancer support communities, and shares his story to help inspire and support others facing similar challenges.

Watch Ian’s video to get a better grasp of:

  • How Ian’s innate curiosity and intellectual approach turned out to be his greatest strength in facing stage 3C colon cancer
  • Why being a “squeaky wheel” can make all the difference in healthcare
  • How Ian balanced cancer treatment with family life, including a new baby on the way
  • Choosing an oncologist based on far more than just credentials
  • How clinical trials helped Ian maintain his quality of life during chemotherapy

  • Name:
    • Ian D.
  • Age at Diagnosis:
    • 38
  • Diagnosis:
    • Colon Cancer
  • Staging:
    • Stage 3C
  • Symptoms:
    • Fatigue
    • Unusual blood test results during annual physical
    • Blood in stool
  • Treatments:
    • Surgery: partial colectomy
    • Chemotherapy
    • Clinical trial
Ian D. stage 3C colon cancer
Ian D. stage 3C colon cancer
Ian D. stage 3C colon cancer
Ian D. stage 3C colon cancer
Ian D. stage 3C colon cancer
Ian D. stage 3C colon cancer
Ian D. stage 3C colon cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Ian D. stage 3C colon cancer
Thank you for sharing your story, Ian!

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More Colon Cancer Stories

 
Lindy A. feature profile

Lindy A., Colon Cancer, Stage 4



Symptoms: Blood in stool, changes in bowel movements, pencil-thin stool, severe abdominal pain, loss of appetite, rapid weight loss, anemia, fatigue
Treatment: Chemotherapy

Kate J., Colon Cancer, Stage 4



Symptoms: Bowel obstruction, bloating, exhaustion, severe cramps and period pain
Treatments: Surgery, chemotherapy

Monica A., Colon Cancer, Stage 4



Symptoms: Recurrent pain in side; severely swollen stomach

Treatments: Surgery (removal of tumor and cancerous lymph nodes), chemotherapy, immunotherapy

Casandra C., Colon Cancer, Stage 4



Symptoms: Rectal bleeding, extreme fatigue, severe loss in appetite, excessive pain in new areas, changes in bowel habits
Treatment: Chemotherapy
Jessica T. feature profile

Jessica T., BRAF Mutation Colon Cancer, Stage 4



Symptoms: Severe stomach cramps, diarrhea, vomiting, anemia (discovered later)

Treatments: Surgery (hemicolectomy), chemotherapy

Maddee M. feature profile

Maddee M., Colon Cancer, Stage 2



Symptoms: Severe fatigue, burning sensation in the stomach, intermittent lower right abdominal pain, dizziness, shortness of breath, difficulty walking up inclines, anemia
Treatment: Surgery (hemicolectomy & lymphadenectomy)

Categories
Adrenal Cancer Adrenalectomy Adrenocortical carcinoma Chemotherapy Immunotherapy Patient Stories Radiation Therapy Rare Surgery Treatments

Cassandra Balances Motherhood, Life, and Stage 4 Adrenal Cancer

Cassandra Balances Motherhood, Life, and Stage 4 Adrenal Cancer (Adrenocortical Carcinoma)

Cassandra’s life took a strange and unwelcome turn in October 2021 when she was diagnosed with stage 4 adrenal cancer. She was pregnant at the time, and her diagnosis was uncovered through blood tests she took to determine her baby’s gender. The test results were confusing, and they opened the door to many medical appointments. Ultimately, Cassandra found that she had a tumor the size of a softball on her adrenal gland.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Cassandra’s diagnosis stunned her, but it also allowed her resilience to come to the fore. As she deals with the complexities of adrenal cancer (a rare cancer that’s also known as adrenocortical carcinoma), she remains focused on her family, especially her young son, Paxton. Cassandra and her husband work tirelessly to ensure that Paxton’s days are full of love, laughter, and routine. She shares that when they talk to him about her illness, they frame it simply as “Mom not feeling well.” This keeps him innocent while Cassandra works to manage the physical and emotional effects of her condition.

Cassandra’s story isn’t about her health alone. It’s also about self-advocacy and the importance of trusting one’s instincts. She’s worked with multiple oncologists, each of whom has offered different perspectives and approaches to her treatment plan. She’s unafraid to seek second opinions and emphasizes what she’s done to form a medical team that shares her values and understands stage 4 adrenal cancer. Because of this empowered approach, she has been able to receive care tailored to her unique situation.

Mental health plays a key role in Cassandra’s experience. She embraces her vulnerability and lets herself feel raw emotions, often during the quiet baths she enjoys as a safe space to process her feelings. However, she balances these moments with positivity, knowing how much she influences those around her. Cassandra maintains her sense of humor and can laugh at herself, even during tougher days. For example, when she lost her hair after chemotherapy, she recounts how she embraced her baldness by joking about it with friends and family.

Cassandra doesn’t let cancer put her life on pause. In the midst of one of her treatments, she married her sweetheart in a heartfelt ceremony and celebrated with close family and friends. Cassandra continues to live fully in the face of stage 4 adrenal cancer, attending concerts, going on trips, and cherishing every moment with her family. But her advocacy goes beyond her situation. She encourages others who’ve been diagnosed to trust their support systems, look for second opinions, and make mental health a top priority.

Watch Cassandra’s video to find out more about:

  • How a routine blood test during pregnancy led to an unexpected stage 4 adrenal cancer diagnosis
  • Cassandra’s candid take on balancing motherhood with cancer
  • The pivotal role of self-advocacy in cancer treatment
  • Cassandra’s inspiring experience, from diagnosis to wedding vows
  • Her belief that cancer may alter life’s course, but it doesn’t define it

  • Name:
    • Cassandra R.
  • Age at Diagnosis:
    • 28
  • Diagnosis:
    • Adrenal Cancer (Adrenocortical Carcinoma)
  • Staging:
    • Stage 4
  • Symptoms:
    • None; inconclusive bloodwork during a blood test to determine her baby’s gender
  • Treatments:
    • Surgery: adrenalectomy
    • Radiation therapy
    • Chemotherapy
    • Immunotherapy
Cassandra R. stage 4 adrenal cancer
Cassandra R. stage 4 adrenal cancer
Cassandra R. stage 4 adrenal cancer
Cassandra R. stage 4 adrenal cancer
Cassandra R. stage 4 adrenal cancer
Cassandra R. stage 4 adrenal cancer
Cassandra R. stage 4 adrenal cancer
Cassandra R. stage 4 adrenal cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Thank you for sharing your story, Cassandra!

Inspired by Cassandra's story?

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Other Rare Adrenal Cancer Stories


Ashley S., Adrenal Cancer, Stage 4



Symptoms: Swollen ankles, very low potassium levels

Treatments: Surgery (removal of tumor, open-heart surgery), chemotherapy, immunotherapy, radiation
...
Ashley P. feature profile

Ashley P., Adrenal Cancer, Stage 4



Symptom: Mild back pain on her left side that escalated in severity
Treatments: Chemotherapy (etoposide, doxorubicin, and cisplatin), mitotane, surgery, lenvatinib
...
Cassandra R. stage 4 adrenal cancer

Cassandra R., Adrenal Cancer (Adrenocortical Carcinoma), Stage 4



Symptoms: None; inconclusive bloodwork during a blood test to determine her baby’s gender

Treatments: Surgery (adrenalectomy), radiation therapy, chemotherapy, immunotherapy
...

Hope L., Adrenal Cancer, Stage 2



Symptoms: High blood pressure, butterfly rash, joint pain and swelling, rapid heart rate

Treatments: Surgery (adrenalectomy), chemotherapy
...
Janelle C. stage 4 adrenal cancer

Janelle C., Adrenal Cancer (Adrenocortical Carcinoma), Stage 4



Symptoms: Excessive thirst and water intake, interrupted sleep due to waking to drink and urinate, suspicious weight gain despite working out

Treatments: Surgeries (adrenalectomy, nephrectomy), chemotherapy

...

Categories
Breast Cancer Chemotherapy Lumpectomy Patient Stories self-advocacy Surgery Treatments Triple Positive

Fiorella’s Role in Cancer Advocacy Started After Her Own Breast Cancer Diagnosis

Fiorella’s Role in Cancer Advocacy Started After Her Own Breast Cancer Diagnosis

Fiorella proudly champions cancer advocacy for patients in her country, Argentina. She was once a patient herself. In 2019, she discovered a lump in her breast during a routine self-exam. Trusting her instincts, she consulted doctors, leading to a biopsy that confirmed her diagnosis of triple positive stage 2 breast cancer. The diagnosis was shocking, but she leaned on her family and found solace and strength in their love and support.

Fiorella proactively sought a second opinion from a doctor at the Alexander Fleming Institute. In contrast with other doctors who recommended that she first have a mastectomy and then chemotherapy, the doctor recommended that she start with chemotherapy to shrink her tumor, sparing her from a mastectomy. It was sound advice. After just two chemotherapy sessions, the tumor vanished, and she underwent a lumpectomy.

Fiorella G. stage 2 breast cancer

Empowered by her stage 2 breast cancer experience, Fiorella emphasizes the importance of self-advocacy and informed decision-making. She believes that patients should take the initiative to research their conditions, seek second opinions, and participate in discussions about their treatment options. 

Fiorella’s experience made her realize that there was a gap in patient support. She first helped out and then took the lead at VICARE GU, Argentina’s first genitourinary cancer advocacy association that focuses on kidney cancer and bladder cancer, prostate cancer, testicular cancer, and penile cancer. VICARE GU offers resources, legal support, and assistance, and also organizes community events to help patients and families get to know their conditions better and navigate their diagnoses with dignity.

Fiorella’s passionate about shattering the stigma around cancer and supporting others through shared experiences. Read her story and watch her video to learn about:

  • How her self-exam changed her life
  • The second opinion that redefined Fiorella’s treatment plan
  • Overcoming fear and stigma after a stage 2 breast cancer diagnosis
  • From patient to cancer advocate: Fiorella’s mission in Argentina
  • The role of family support in navigating cancer and living with dignity

  • Name: 
    • Fiorella G.
  • Diagnosis:
    • Breast Cancer (Triple Positive)
  • Staging:
    • Stage 2
  • Symptom:
    • Lump in breast
  • Treatments:
    • Chemotherapy
    • Surgery: lumpectomy
Fiorella G. stage 2 breast cancer

Johnson & Johnson - J&J

Thank you to Johnson & Johnson for supporting our patient education program. The Patient Story retains full editorial control over all content.

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider for treatment decisions.



Interviewed by: Stephanie Chuang
Edited by: Chris Sanchez

… I [need to] give back, to help others gain a second chance at life.

About Me

Hello, I’m Fiorella. I’m from Argentina. I was diagnosed with triple positive stage 2 breast cancer in 2019.

I’m very passionate about everything I do. I never give up on anything. When I do something, I try and try again, until I get it perfect.

I’m quite passionate about my family as well. I’m married and I have a son. Family for me is one of the most important things in my life. I think of my family in everything I do. 

Fiorella G. stage 2 breast cancer
Fiorella G. stage 2 breast cancer

How I Found Out I Had Stage 2 Breast Cancer

I don’t remember all that much from the time I was diagnosed. I clearly recall, though, that I was quite frightened to have discovered my cancer. 

I was working then, and my son was five years old at the time. One day, I did a breast self-examination like I always do. I found what felt like a little ball in my breast. It was alarming.

I went to see my gynecologist. He palpated me and told me it felt suspicious. He then referred me to a breast surgeon, who said the same thing. And then he sent me to have a biopsy done, which uncovered my triple positive stage 2 breast cancer.

I don’t remember all that much from the time I was diagnosed. I clearly recall, though, that I was quite frightened to have discovered my cancer.

Telling My Friends and Family About My Diagnosis

The phrase “stage 2 breast cancer” was very new for me and my family. It wasn’t something we had encountered before. That made my diagnosis and subsequent treatment very difficult for everyone. I also ended up losing my job later on, in the middle of the treatment, which made things even tougher.

But my family — my mother and father, my husband and son — had my back. They rallied around me. Even though my son was little then, he was always with me. And my close friends supported me, too.

I also had plenty of support from my doctors and medical team  — the oncologist and hematologist, of course, but I had also begun to see a psycho-oncologist to provide emotional support to counter the difficulties I was starting to experience due to my breast cancer. 

Fiorella G. stage 2 breast cancer
Fiorella G. stage 2 breast cancer

I Looked for a Second Opinion

As I said, stage 2 breast cancer was new to me. No one close to me had cancer or anything like that. I had to find out more about it before I committed to my treatments. I couldn’t stick with the first thing they told me back then.

One of my cousins told me, “Why don’t you look at this doctor?” And then they recommended this place called the Alexander Fleming Institute, right here in Argentina. It’s dedicated solely to cancer. Other places, even though they’ve got oncologists or other doctors on staff, might not be as focused. So I said, “Well, this has to be the place.”

I wasn’t given a set path. I had spoken with other surgeons who had said that they would need to operate first and then start chemotherapy. But the doctor I spoke with told me differently. 

He said that the tumor was very large, but I was very young — and I didn’t need to have the whole breast removed. He added that it would be better to start with chemo and reduce the size of the tumor, and then operate later.

And this regimen worked. After the second session of chemotherapy, the tumor disappeared. After that, I just needed a breast-conserving surgery, a lumpectomy, to remove any tumor remnants.

I Believe in Empowered Care

“Listen to what the doctor says and do what he tells you.” I’m not very much into doing that blindly.

In all areas of my life, I prefer to find things out and get educated before deciding on something. I guess most people don’t find these things out or ask about them.

I only managed to find out about patients’ associations and patients’ rights after all my treatments were done. They don’t seem to be well-known. I kept discovering a lot of things like this afterwards.

Of course, if a treatment has to be done, it needs to be done just as the doctor says. But I would recommend speaking with others and doing a little more research before making any treatment decision. 

Fiorella G. stage 2 breast cancer

… I would recommend speaking with others and doing a little more research before making any treatment decision. 

Fiorella G. stage 2 breast cancer

Getting Involved in Cancer Advocacy in Argentina

I’m working to help patients in Argentina as part of a realization I had when I was finishing up with the treatment, and even after I was done. I felt I needed to give back, to help others gain a second chance at life.

I took my stage 2 breast cancer experience forward by getting involved in VICARE GU, which is the first association in Argentina for genitourinary cancer patients and their family members and friends.

Initially, I was just helping the president of VICARE GU out. But she passed away, and no one could follow in her footsteps. So I got more involved. I’m now the president.

At VICARE GU, I’ve learned so much about patients and, in general, about dedicating oneself to patients’ concerns. And connected with how I felt, that I needed to support patients getting a second chance at life, is that we provide crucial information that cancer patients, their family members, and their friends can easily access and browse.

We started with kidney cancer, then went into the bladder cancer space next, and then genitourinary cancer. And we’ve also added information on other kinds of cancer: kidney, bladder, prostate, penile, testicular, and urethral cancer.

We’ve started organizing congresses — medical meetings or conferences — for each of the cancers, and specifically aimed at patients. We started with kidney and bladder cancer, and this year, in 2025, we’ve begun to organize congresses for the other kinds of cancers. These congresses provide what patients need to understand and keep up to date about treatments for each of the cancers and learn about cancer advocacy.

We run a psychologist-managed WhatsApp group where patients can join different chats and discussions. We also participate in different international organizations, such as the International Kidney Cancer Coalition.

On the legal side, we help patients in case some kind of treatment isn’t covered. We also help patients access medication. And we also organize other activities like community talks and walks — we do two of these yearly — and mindfulness activities as well.

Fiorella G. stage 2 breast cancer
Fiorella G. stage 2 breast cancer

“Cancer” is Such a Dreaded Word

There’s still so much fear of cancer. The term really does carry some stigma. People might find it uncomfortable to know that someone has cancer.

Many patients and their family members participate in the online events or talks we organize. But when we put up an in-person event, not as many people come. It does take a bit more for people to show up in person, but people may also be a little ashamed to come.

When we speak of empathy and find that this can be missing, it’s because cancer really is stigmatized. Some people can’t even say its name, and when I invite them to events or even just say you’re helping cancer patients, they more or less give me their condolences.

I do understand this fear. I was also quite frightened in the early part of my stage 2 breast cancer experience. I equated cancer with death because I was scared of what I didn’t know. 

But now that I’ve been through my experience, I know so much more about it, such as the fact that cancer isn’t necessarily a death sentence; some kinds can be managed.

Men can have a particularly hard time with cancer, even just the idea of it. They don’t like to speak up and find it hard to see a doctor for check-ups. More than anything, for them, it’s the prostate.

There’s still so much fear of cancer. The term really does carry some stigma.

Fiorella G. stage 2 breast cancer

My Message For Other Cancer Patients in Latin America

Those of us who’ve suffered from cancer should talk about what we went through, because experience is what counts. It’s best to share what they learned with others.

It happened to me when I had stage 2 breast cancer, and I got past it. And here I am, getting on with my life and working in cancer advocacy. It seems to me that the important thing for those who’ve had cancer, as well as those who currently have it, is to talk about it and share their experiences.

Doing so can help those who might be struggling with it, especially those who are so scared that they can’t see their way through and who could really use a little guidance and support.

I would like other patients to participate in the patients’ associations. These associations can provide powerful support that families and friends might not be able to. This is a different sort of support than oncologists and doctors can provide.

Of course, oncologists have a key role to play. They’re the only ones who might understand and with whom we have to work to make cancer better known and to make the stigma surrounding it disappear.

How Spreading Cancer Advocacy Through VICARE GU Can Help People

The most important thing VICARE GU can provide is to capture the knowledge of cancer patients and provide a resource for them and others like them. Not only for patients, but also for their family members and friends.

Speech shares information, and information is knowledge. And knowledge can decrease over time. This can lead to ignorance and fear — fear that supports the stigma of the word “cancer” for the rest of society.

VICARE GU is available to help both patients with whatever they need, to be able to live better with cancer. And it’s also free of charge for patient organizations to participate in as well.

Fiorella G. stage 2 breast cancer
Fiorella G. stage 2 breast cancer

Johnson & Johnson - J&J

Special thanks again to Johnson & Johnson for supporting our patient education program. The Patient Story retains full editorial control over all content.


Fiorella G. stage 2 breast cancer
Thank you for sharing your story, Fiorella!

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Categories
Bacillus Calmette-Guérin (BCG) Bladder Cancer Immunotherapy Patient Stories Surgery Transurethral resection of bladder tumor (TURBT) Treatments

Michael’s Experience with Stage 1 Non-Muscle Invasive Bladder Cancer

Michael’s Experience with Stage 1 Non-Muscle Invasive Bladder Cancer (High-Grade)

Michael offers a glimpse into his life after he was diagnosed with stage 1 non-muscle invasive bladder cancer in 2023. It all started with an urgent and frequent need to rush to the bathroom, even while he was in the middle of a conversation, and a burning sensation during urination. He had already been known for needing to urinate more frequently than others. In retrospect, these symptoms raised questions about missed early signs.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Michael had an uncomfortable first foray into the unfamiliar world of urology. He felt out of place in waiting rooms filled with older patients. Tests, including a CT scan and a cystoscopy, revealed a suspicious spot in his bladder. They led to his first TURBT (transurethral resection of bladder tumor) treatment. He was ultimately diagnosed with non-invasive, high-grade, stage 1 bladder cancer

Michael V. stage 1 bladder cancer

Michael was stunned to read the dreaded word ‘carcinoma’ in his report. He and his wife had to wait through the holiday season for this confirmation, which made his diagnosis even harder to take. But his family and friends rallied around him and helped him manage his emotional and logistical challenges. His wife, for example, pushed for and successfully got quicker appointments for him. 

Aside from several TURBT sessions, Michael’s treatment for stage 1 non-muscle invasive bladder cancer included BCG (Bacillus Calmette-Guérin) treatments. (Editor’s Note: BCG treatments deliver special immunotherapy drugs directly to the bladder through a catheter. They trigger an inflammatory response that prevents the tumor from returning.) These treatments came with tough side effects, like flu-like symptoms. But Michael was determined to keep his and his family’s life as normal as he could. For instance, he insisted on attending family activities even though he had to collapse into bed afterwards.

Michael’s advocacy extends beyond his personal experience. He shares his story on TikTok, offering support and information to other bladder cancer patients. He’s frank and open about his experience — the emotional toll, the constant worry with every bathroom visit, and the anxiety surrounding follow-up visits to the doctor. His strength and commitment to living happily and fully despite bladder cancer are inspiring.

Watch Michael’s non-muscle invasive bladder cancer story and take a deep dive into:

  • How seeing the word “carcinoma” changed everything
  • When Michael’s wife became his greatest healthcare advocate
  • How he touches the lives of fellow bladder cancer patients
  • The support that carried Michael through
  • How his story proves that bladder cancer isn’t just an older person’s disease

  • Name: 
    • Michael V.
  • Age at Diagnosis:
    • 46
  • Diagnosis:
    • Bladder Cancer (Non-Invasive High-Grade Papillary Urothelial Carcinoma or HGPUC)
  • Staging:
    • Stage 1
  • Symptoms:
    • Frequent urination
    • Burning sensation when urinating
  • Treatments:
    • Surgery: Transurethral Resection of Bladder Tumor or TURBT
    • Immunotherapy: Bacillus Calmette-Guérin or BCG Treatment
Michael V. stage 1 bladder cancer
Michael V. stage 1 bladder cancer
Michael V. stage 1 bladder cancer
Michael V. stage 1 bladder cancer
Michael V. stage 1 bladder cancer
Michael V. stage 1 bladder cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Michael V. stage 1 bladder cancer
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Categories
Chemotherapy Esophageal Cancer Esophagectomy Patient Stories Surgery Treatments

Stage 2 Esophageal Cancer Changed My Life for the Better

Stage 2 Esophageal Cancer Changed Mark’s Life for the Better

When Mark was diagnosed with stage 2 esophageal cancer in June 2024, his life took a scary, unexpected turn. But despite the initial shock, he was able to find a sense of peace amid all the chaos. That’s because he used his diagnosis as a catalyst to slow down and reflect on what truly mattered to him.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Before his diagnosis, Mark was thriving and healthy. He ran and worked out regularly and was healing from past emotional wounds. However, subtle, ominous signs started to emerge in February 2024. He started to experience difficulty swallowing, and initially dismissed this symptom as being due to dehydration.

He found it increasingly difficult to swallow, prompting him to seek medical advice. Doctors reassured him, though, due to his young, healthy appearance. It wasn’t until he was unable to swallow liquids that he rushed to the emergency room. A CT scan revealed a mass the size of a strawberry in his chest, and the biopsy confirmed stage 2 esophageal cancer.

Mark received the news alone in his hospital room. He was overwhelmed and faced a deluge of questions, for which he found few immediate answers. However, he didn’t succumb to his fear; he openly communicated with his children, answering their questions honestly and warmly.

Mark’s treatment plan for stage 2 esophageal cancer included four initial rounds of chemotherapy, surgery, and four additional chemo sessions. Initially, he followed his doctors’ advice without questioning it. But during a break before surgery, when he was able to reflect and research, he learned to self-advocate and make informed decisions about his treatment.

Armed with this knowledge and thinking of his personal health goals, he chose to undergo fewer of the additional chemo sessions. Chemotherapy was grueling. The side effects, like fatigue and nausea, were immense and took both a physical and emotional toll. But Mark was determined to stay positive and present for his family. He managed his stress by focusing on the present, taking each day at a time so he wouldn’t overwhelm himself by worrying about the future.

Mark urges others to realize that he didn’t just survive stage 2 esophageal cancer. He also learned to navigate his life: to live authentically, advocate for himself, and find meaning in adversity. He wants others to know that early detection, listening to one’s body, and seeking second opinions when necessary are all crucial.

Watch Mark’s video and delve into his story:

  • Discover how a simple swallowing issue led to a life-changing diagnosis.
  • Mark’s candid conversation with his kids will touch your heart.
  • See how Mark found peace and clarity through the chaos of cancer.
  • Discover the moment Mark realized he could advocate for his health.
  • Learn the stress management tips that helped Mark stay positive.

  • Name:
    • Mark S.
  • Age at Diagnosis:
    • 40
  • Diagnosis:
    • Esophageal Cancer
  • Staging:
    • Stage 2
  • Symptom:
    • Difficulty swallowing that got progressively worse
  • Treatments:
    • Chemotherapy
    • Surgery: esophagectomy
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer
Mark S. stage 2 esophageal cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Thank you for sharing your story, Mark!

Inspired by Mark's story?

Share your story, too!



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