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Chronic Diseases Patient Stories Psoriasis Psoriatic Arthritis

How Alana Embraces Life with Psoriasis and Psoriatic Arthritis

How Alana Embraces Life with Psoriasis and Psoriatic Arthritis

Editor’s Note:
At The Patient Story, we share authentic stories that inspire and support individuals facing cancer. Now, we’re broadening our scope to include narratives from those living with other serious health conditions. We’re now focusing on chronic autoimmune diseases such as psoriasis and psoriatic arthritis, which are frequently misunderstood and often under-diagnosed, particularly among young adults. Share your story with us and grow our chronic disease patient video library.

In this feature, Alana shares her experience with both conditions, which began in her childhood. Her story delves into treatment hurdles, mental health struggles, and advocacy efforts, offering heartfelt honesty, motivation, and a powerful message: rely on your intuition, accept and love your flaws, and, above all, discover happiness despite the obstacles.

Alana is a vibrant New Yorker who’s navigated the complexities of psoriasis and psoriatic arthritis since childhood. Diagnosed with psoriasis at just seven, her early experiences were filled with confusion, itchy and sometimes bleeding spots, and countless doctor visits. Despite the physical discomfort, young Alana found clever ways to cope — frequenting the school nurse, learning to like Band-Aids, and even using her condition as a lighthearted escape from class.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

By age nine, Alana was placed on a strict anti-inflammatory diet to help her better manage her psoriasis, learning to read labels while her siblings enjoyed carefree snacks. Adolescence brought new challenges and ways to cope, like covering her skin with arm socks, stacking bracelets, and even wearing wigs to hide scalp psoriasis. But the emotional toll was heavier than the physical. Middle school bullying left scars deeper than her skin, shaking her self-worth.

Alana O. psoriasis and psoriatic arthritis

At 25, Alana had to face both psoriasis and psoriatic arthritis at the same time when she had her first psoriatic arthritis flare-up. Suddenly unable to walk, she found herself bewildered until her father, who had experienced the same thing when he was around the same age, recognized the symptoms. This painful episode was eye-opening, pushing her toward better health decisions.

Despite the hurdles, Alana’s resilience shines. She experimented with holistic diets, tried biologic medications (which treat psoriasis and psoriatic arthritis by targeting specific cells or proteins of the immune system), and experienced intense side effects like migraines and stomach issues. But it wasn’t until she embraced her condition openly that her world shifted. A chance modeling campaign showcased her authentic self — psoriasis and all — on billboards and buses, sparking a newfound confidence.

Mental health became a central focus. Therapy helped, but Alana acknowledges the ongoing struggle with depression, anger, and self-doubt. She emphasizes the importance of listening to your body, advocating for yourself, and finding outlets for emotional release, whether through laughter, crying, or creative expression.

Today, Alana manages her psoriasis and psoriatic arthritis with medication, mindfulness, and self-compassion. She encourages others to self-advocate, trust their instincts, embrace imperfections, and, most importantly, find joy amid the challenges.

Watch Alana’s video to learn about:

  • How embracing vulnerability transformed her path to resilience.
  • The surprising way her first psoriatic arthritis flare-up mirrored her dad’s experience.
  • From middle school bullying to billboards: Alana’s journey to self-love.
  • The mental health lessons she learned through years of living with an autoimmune condition.
  • Why laughter and tears are both key to Alana’s healing.

  • Name:
    • Alana O.
  • Age at Diagnosis:
    • 7 (psoriasis)
    • 25 (psoriatic arthritis)
  • Diagnosis:
    • Psoriasis and Psoriatic Arthritis
  • Symptoms:
    • Itchy and sometimes bleeding patches on skin
    • Joint pain
    • Inflammation
  • Treatments:
    • Medication: steroids, biologics
    • Laser treatments
Alana O. psoriasis and psoriatic arthritis
Alana O. psoriasis and psoriatic arthritis
Alana O. psoriasis and psoriatic arthritis
Alana O. psoriasis and psoriatic arthritis
Alana O. psoriasis and psoriatic arthritis

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.


Alana O. psoriasis and psoriatic arthritis
Thank you for sharing your story, Alana!

Inspired by Alana's story?

Share your story, too!


Victoria V. feature profile

Victoria V., Plaque Psoriasis



Symptoms: Painful cracked skin on the scalp, inflammation on the top of the foot, joint pain in the foot
Treatments: Shampoos, creams, injections, pills, prescription medications, biologics
Chaylee M. psoriatic arthritis

Chaylee M., Psoriatic Arthritis



Symptoms: Severe fatigue, swollen fingers and face, joint weakness, flaky skin, rashes, long-term scalp psoriasis
Treatments: Celecoxib, methotrexate, adalimumab injections
India B. psoriasis and psoriatic arthritis

India B., Psoriasis and Psoriatic Arthritis



Symptoms: Psoriasis: small red spots on thighs, face, and ears after catching strep throat; Psoriatic Arthritis: foot swelling, joint pain in toes, fingers, and hips

Treatments: Topical steroids, UVB light therapy, supplements (vitamin D, vitamin C, zinc, turmeric), diet modification, Epsom salt baths, heat therapy
Alana O. psoriasis and psoriatic arthritis

Alana O., Psoriasis and Psoriatic Arthritis



Symptoms: Itchy and sometimes bleeding patches on skin, joint pain, inflammation

Treatments: Medication (steroids, biologics), laser treatments


Categories
Chronic Diseases Guttate Psoriasis Patient Stories Psoriasis Psoriatic Arthritis

India’s Guttate Psoriasis & PsA Story: From Flare-Ups to Self-Love

India’s Guttate Psoriasis & Psoriatic Arthritis Story: From Flare-Ups to Self-Love

India’s experience with guttate psoriasis and psoriatic arthritis (PsA) is as real as it gets — messy, emotional, painful, and also full of growth, learning, and self-love. Diagnosed with guttate psoriasis in 2018 and with psoriatic arthritis in 2022, India didn’t always have the knowledge or support she needed. But now, she’s using her voice to advocate for awareness and self-acceptance, and to end the stigma surrounding these autoimmune conditions.

Interviewed by: Taylor Scheib
Edited by: Katrina Villareal

India’s first symptoms started after a bout of strep throat during college. What she thought were bug bites turned into patches spreading across her legs, face, and ears. A visit to the doctor confirmed guttate psoriasis, a form that infections can trigger. From there, she was prescribed topical steroids, which became her go-to for years, even though they eventually stopped working and left her overwhelmed and confused.

India B. psoriasis and psoriatic arthritis

In 2024, things got worse. After catching strep again (plus COVID and the flu), India’s body went into full-body flare mode. Steroids made her condition worse, so she turned to UVB light therapy, supplements like turmeric and vitamin D, and dietary changes. The result? She’s nearly clear now — not just physically, but emotionally too.

Managing visible flare-ups, especially on her face, was incredibly hard. People pointed, laughed, and made hurtful comments. But India found strength in self-love. She says, “Your skin doesn’t define you,” and she truly lives by it. The stigma began to break when she stopped hiding and started educating others. Now, when someone comments, she uses it as a teaching moment about psoriasis, helping to replace fear and misunderstanding with compassion.

India’s psoriatic arthritis diagnosis came after intense swelling in her foot, fingers, and hips. It was initially dismissed as being pregnancy-related. With a gene mutation that prevents her from taking methotrexate, she leans on holistic treatments like UVB, heat packs, Epsom salt baths, and careful diet adjustments.

Emotionally, India experienced rough patches. Pregnancy during flaring was one of the hardest periods. Still, she found hope in her children, her supportive partner, and a deeper understanding of her worth. “I love myself,” she says, “and I’m okay with myself.” Her message is clear: You can thrive with an autoimmune disease. Your diagnosis doesn’t change who you are — it just adds to the layers that make you uniquely strong.

Watch India’s story and find out more:

  • What one flare taught her about the power of self-acceptance
  • The surprising reason she had to stop using steroids and what worked instead
  • How a strep infection changed the course of her health forever
  • Why she tells strangers about her condition and how it breaks stigma
  • The raw truth about being a young mom with psoriatic arthritis

  • Name: India B.
  • Age at Diagnosis:
    • 18 (psoriasis), 22 (psoriatic arthritis)
  • Diagnoses:
    • Psoriasis and Psoriatic Arthritis
  • Symptoms:
    • Psoriasis: Small red spots on thighs, face, and ears after catching strep throat
    • Psoriatic Arthritis: Foot swelling, joint pain in toes, fingers, and hips
  • Treatments:
    • Topical steroids
    • UVB light therapy
    • Supplements: Vitamin D, vitamin C, zinc, turmeric
    • Diet modification
    • Epsom salt baths
    • Heat therapy
India B. psoriasis and psoriatic arthritis
India B. psoriasis and psoriatic arthritis
India B. psoriasis and psoriatic arthritis
India B. psoriasis and psoriatic arthritis
India B. psoriasis and psoriatic arthritis
India B. psoriasis and psoriatic arthritis
India B. psoriasis and psoriatic arthritis

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.


India B. psoriasis and psoriatic arthritis
Thank you for sharing your story, India!

Inspired by India's story?

Share your story, too!


Victoria V. feature profile

Victoria V., Plaque Psoriasis



Symptoms: Painful cracked skin on the scalp, inflammation on the top of the foot, joint pain in the foot
Treatments: Shampoos, creams, injections, pills, prescription medications, biologics
Chaylee M. psoriatic arthritis

Chaylee M., Psoriatic Arthritis



Symptoms: Severe fatigue, swollen fingers and face, joint weakness, flaky skin, rashes, long-term scalp psoriasis
Treatments: Celecoxib, methotrexate, adalimumab injections
India B. psoriasis and psoriatic arthritis

India B., Psoriasis and Psoriatic Arthritis



Symptoms: Psoriasis: small red spots on thighs, face, and ears after catching strep throat; Psoriatic Arthritis: foot swelling, joint pain in toes, fingers, and hips

Treatments: Topical steroids, UVB light therapy, supplements (vitamin D, vitamin C, zinc, turmeric), diet modification, Epsom salt baths, heat therapy
Alana O. psoriasis and psoriatic arthritis

Alana O., Psoriasis and Psoriatic Arthritis



Symptoms: Itchy and sometimes bleeding patches on skin, joint pain, inflammation

Treatments: Medication (steroids, biologics), laser treatments


Categories
Chronic Diseases Patient Stories Psoriasis Psoriatic Arthritis

Chaylee’s Psoriatic Arthritis: Fatigue, Flares & Finding Hope

From Fatigue & Flares to Self-Advocacy: Chaylee’s Psoriatic Arthritis Experience

Editor’s Note:
At The Patient Story, we’ve built a platform where real stories empower people facing cancer—but that same storytelling power can uplift those living with other serious health conditions, too.

We’re expanding our reach to include chronic autoimmune diseases like psoriatic arthritis—a condition that’s often misunderstood and underdiagnosed, especially in young adults. In this story, Chaylee shares her experience navigating overwhelming fatigue, joint pain, and years of frustration before finally getting the right diagnosis. From treatment setbacks to mental health challenges and moments of advocacy, her story offers raw honesty, encouragement, and a reminder that no one should face chronic illness alone.

When Chaylee started feeling wiped out all the time and noticed her joints swelling, she knew something was wrong, but she didn’t expect it to be psoriatic arthritis. At the time, she had just graduated high school and was starting college. Instead of soaking up her independence, she found herself stuck on the couch, too fatigued to move and dealing with painful, swollen joints. It wasn’t just uncomfortable; it was life-disrupting.

Interviewed by: Taylor Scheib
Edited by: Katrina Villareal

Her first doctor brushed her off with a fibromyalgia diagnosis and a prescription that left her feeling foggy and unable to function. She dropped out within a week of starting college, losing her full-ride scholarship. That low point was painful, but it pushed her to take control. Chaylee moved six hours away to Boise for better care, which paid off. A new rheumatologist listened to her, took her symptoms seriously, and finally diagnosed her with psoriatic arthritis in January 2023.

Chaylee M. psoriatic arthritis

Looking back, the signs were all there, especially the scalp psoriasis Chaylee had dealt with since she was a pre-teen. But no one ever told her that psoriasis and psoriatic arthritis often go hand in hand. That lack of awareness was frustrating, especially since early intervention makes such a big difference.

While navigating chronic illness as a young adult isn’t easy, Chaylee found ways to adapt. Community played a huge role. Connecting with others online who understood what she was going through made her feel less alone. She also tapped into creativity, making spoon jewelry to connect with fellow patients and joining the Young Patients Autoimmune Research and Empowerment Alliance (YPAREA) to help make research more accessible for people her age.

Chaylee’s treatment took time to figure out. Celecoxib didn’t work and methotrexate helped but came with heavy side effects. Eventually, she started adalimumab injections, which gave her more consistent relief from psoriatic arthritis symptoms. While flare-ups still happen — especially in cold weather or under stress — she’s found ways to manage them.

Some of Chaylee’s biggest lessons? Self-advocacy is everything. Learning to speak up, ask questions, and request better care changed her life. She’s also passionate about mental health — reminding others that your worth isn’t defined by productivity and that it’s okay to rest. Psoriatic arthritis may have changed her plans, but it’s also helped her discover new passions, connect with others, and live more intentionally.

Watch Chaylee’s story to learn more:

  • Discover how Chaylee rebuilt her life after her chronic illness disrupted her future plans.
  • See how a correct diagnosis turned confusion into clarity and relief.
  • Learn how finding creative outlets helped transform isolation into empowerment.
  • Explore how Chaylee is breaking stereotypes about psoriatic arthritis and young adults.
  • Get inspired by how she balances work, advocacy, and well-being despite chronic pain.

  • Name: Chaylee M.
  • Age at Diagnosis:
    • 19
  • Diagnosis:
    • Psoriatic Arthritis
  • Symptoms:
    • Severe fatigue
    • Swollen fingers and face
    • Joint weakness
    • Flaky skin
    • Rashes
    • Long-term scalp psoriasis
  • Treatments:
    • Celecoxib
    • Methotrexate
    • Adalimumab injections
Chaylee M. psoriatic arthritis
Chaylee M. psoriatic arthritis
Chaylee M. psoriatic arthritis
Chaylee M. psoriatic arthritis
Chaylee M. psoriatic arthritis
Chaylee M. psoriatic arthritis
Chaylee M. psoriatic arthritis

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.


Chaylee M. psoriatic arthritis
Thank you for sharing your story, Chaylee!

Inspired by Chaylee's story?

Share your story, too!


Victoria V. feature profile

Victoria V., Plaque Psoriasis



Symptoms: Painful cracked skin on the scalp, inflammation on the top of the foot, joint pain in the foot
Treatments: Shampoos, creams, injections, pills, prescription medications, biologics
Chaylee M. psoriatic arthritis

Chaylee M., Psoriatic Arthritis



Symptoms: Severe fatigue, swollen fingers and face, joint weakness, flaky skin, rashes, long-term scalp psoriasis
Treatments: Celecoxib, methotrexate, adalimumab injections
India B. psoriasis and psoriatic arthritis

India B., Psoriasis and Psoriatic Arthritis



Symptoms: Psoriasis: small red spots on thighs, face, and ears after catching strep throat; Psoriatic Arthritis: foot swelling, joint pain in toes, fingers, and hips

Treatments: Topical steroids, UVB light therapy, supplements (vitamin D, vitamin C, zinc, turmeric), diet modification, Epsom salt baths, heat therapy
Alana O. psoriasis and psoriatic arthritis

Alana O., Psoriasis and Psoriatic Arthritis



Symptoms: Itchy and sometimes bleeding patches on skin, joint pain, inflammation

Treatments: Medication (steroids, biologics), laser treatments