New Options for Non-Hodgkin Lymphoma
What to Know in NHL Care in 2024
Watch an empowering patient event and discover the latest advancements in non-Hodgkin lymphoma care, including Diffuse Large B-Cell Lymphoma (DLBCL) and Follicular lymphoma.
Watch Dr. Kulsum Bano and Dr. Nilanjan Ghosh from Atrium Health Levine Cancer Center, along with Dr. Justin Favaro from Oncology Specialists of Charlotte, discuss the latest advances with 3 times DLBCL survivor and patient advocate Dr. Robyn Stacy-Humphries.
Video Chapters
- 00:00 – Doctor + Patient Introductions
- 07:34 – DLBCL Current Treatment Options
- 10:07 – Follicular Lymphoma Current Treatment Options
- 15:39 – R/R Treatment Options (Follicular Lymphoma)
- 17:39 – Bispecific Antibodies
- 21:42 – Bispecific Antibodies Side Effects
- 30:00 – DLBCL Bispecific Antibody Clinical Trials
- 35:43 – CAR T-Cell Therapy
- 41:39 – CAR T-Cell Therapy Side Effects
- 53:40 – FL Bispecific Antibody Clinical Trials
- 1:01:30 – Can We Have Chemo Free Treatments?
- 1:04:06 – Access to CAR T-Cell Therapy
- 1:16:11 – Defining Medical Roles
- 1:22:53 – Questions & Answers
- 1:22:55 – Getting a Second Opinion
- 1:24:40 – Bispecifics vs. CAR T-Cell Therapy
- 1:43:45 – Monoclonal antibodies as options
Thank you to Genmab, AbbVie, and Incyte for their support of our patient education program! The Patient Story retains full editorial control over all content.
This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider for treatment decisions.
Learn Through Non-Hodgkin Lymphoma Patient Stories
Lena V., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 1
Symptoms: Blood in urine
Treatment: Surgery, chemotherapy (R-CHOP), radiation
Cindy M., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4
Symptoms: Itchy skin on the palms and soles of feet; yellow skin and eyes
Treatment: Chemotherapy (R-CHOP)
Harriet C., Diffuse Large B-Cell Non-Hodgkin Lymphoma (DLBCL) Cancer Diagnosis: Diffuse Large B-Cell Lymphoma (DLBCL)Symptoms: Weight loss, difficulty walking, stomach pain, feeling unwell Treatment: Chemotherapy, EPOCH, methotrexate
Sammie F., Diffuse Large B-Cell Non-Hodgkin Lymphoma (DLBCL) Cancer Diagnosis: Diffuse Large B-Cell Lymphoma (DLBCL)Symptoms: Chest pain, back pain, bump on neck, night sweats Treatment: Chemotherapy, CAR T-Cell therapy
Alesia A., Diffuse Large B-Cell Lymphoma (DLBCL) Cancer Diagnosis: Diffuse Large B-Cell Lymphoma (DLBCL)Symptoms: Fatigue, shortness of breath, swelling, night sweats, anxiety Treatment: Chemotherapy
Tony W., Relapsed T-Cell/Histiocyte-Rich Large B-Cell Lymphoma (T/HRBCL)
1st Symptoms: A lot of effort needed cycling, body wasn’t responding the same; leg swelling
Treatment: R-CHOP chemotherapy, CAR T-cell therapy
Jonathan S., Diffuse Large B-Cell (DLBCL), Stage 4
1st Symptoms: Severe shoulder pain
Treatment: 6 rounds of R-CHOP chemotherapy, 10 rounds of methotrexate, 12 rounds of focal radiation, autologous stem cell transplant
Leanne T., Follicular Lymphoma Transformed to DLBCL, Stage 3B
1st Symptoms: Fatigue, persistent cough
Treatment: R-CHOP chemotherapy, 6 rounds
Paige C., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4
Symptoms: Weight loss, extreme fatigue, swollen lymph nodes in the neck
Treatment: R-EPOCH chemotherapy
Stephanie Chuang
Stephanie Chuang, founder of The Patient Story, celebrates five years of being cancer-free. She shares a very personal video diary with the top lessons she learned since the Non-Hodgkin lymphoma diagnosis.
Kris W., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4
1st Symptoms: Pain in the side of the abdomen
Treatment: R-CHOP chemotherapy
Robyn S., Relapsed Diffuse Large B-Cell Lymphoma (DLBCL), Stage 2E
Symptoms: Enlarged lymph nodes
Treatments: Chemotherapy: R-CHOP, R-ICE, intrathecal, BEAM; autologous stem cell transplant, head and neck radiation, CAR T-cell therapy
Barbara R., Diffuse Large B-Cell (DLBCL), Stage 4
1st Symptoms: Abdomen and gastric pain
Treatment: Chemotherapy R-CHOP, CAR T-cell therapy, study drug CYT-0851
Luis V., Diffuse Large B-Cell (DLBCL), Stage 4
1st Symptoms: Persistent cough, fatigue, unexplained weight loss
Treatment: Chemotherapy R-CHOP and methotrexate
Nina L., Diffuse Large B-Cell (DLBCL), Stage 4
1st Symptoms: Hip and lower extremities pain, night sweats
Treatment: Chemotherapy R-CHOP
Richard P., Relapsed/Refractory Follicular Lymphoma & DLBCL
1st Symptoms of relapse: Swelling in leg, leg edema Treatment:1st line - R-CHOP chemotherapy, 2nd line - clinical trial of venetoclax-selinexor
Shahzad B., Refractory Diffuse Large B-Cell (DLBCL), Stage 4
1st Symptoms: Extreme fatigue
Treatment: R&B, R-ICE, R-EPOCH, CAR T-cell therapy (cell-based gene therapy)
FDA approved: October 2017
Erin R., DLBCL & Burkitt Lymphoma, Stage 4
Cancer details: Characteristics of both subtypes
1st Symptoms: Lower abdominal pain, blood in stool, loss of appetite
Treatment: Chemotherapy (Part A: R-CHOP, HCVAD, Part B: Methotrexate, Rituxan, Cytarabine)
Emily G., Diffuse Large B-Cell (DLBCL), Stage 4
1st Symptoms: Pain in left knee
Treatment: R-CHOP chemo (6 cycles), high-dose methotrexate chemo (3 cycles)
David K. Diagnosis: Stage 4 Follicular LymphomaSymptoms: Sharp abdomen pains, frequently sick, less stamina Treatment: Chemo, R-CHOP, rituximab, radiation, bendamustine, stem cell transplant
Nicky G. Diagnosis: Follicular LymphomaSymptoms: Fatigue, weight loss, lumps in the neck and groin Treatment: Quarterly infusions of rituximab, radioactive iodine 131 infusion, platelet transfusionn
Kim S., Follicular Lymphoma, Stage 4
1st Symptoms: Stomach pain
Treatment:Chemotherapy (rituximab & bendamustine), rituximab for 2 additional years
