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Acute Lymphoblastic Leukemia (ALL) Chemotherapy Leukemia Lumbar puncture Patient Stories Radiation Therapy T-cell Acute Lymphoblastic Leukemia (T-ALL) Treatments

Lauren’s T-cell Acute Lymphoblastic Leukemia (T-ALL) Treatment Story

How Lauren Found Clarity Beyond T-cell Acute Lymphoblastic Leukemia (T-ALL) and Treatment Challenge

Lauren, who hails from Ohio, was diagnosed with T-cell acute lymphoblastic leukemia (T-ALL) in May 2022, a twist she never saw coming. What started as a typical cold spiraled into severe symptoms, including persistent cough, chest pain, and fever, which led to multiple doctor visits and misdiagnoses. Eventually, a chest X-ray and CT scan revealed an enormous mass near her heart, which rocked Lauren’s world. Her cancer diagnosis came swiftly, delivered bluntly by an oncologist who had little bedside manner.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Adjusting to life with cancer was overwhelming. Lauren faced intensive treatments, including lumbar punctures, rounds of brain radiation, and weekly chemotherapy. The treatments caused dramatic physical changes, including hair loss, neuropathy, and severe nausea, which challenged her daily comfort. Yet, amidst the chaos, Lauren found clarity. She decided to stop drinking alcohol, embraced a more balanced approach to health, and left a business venture that no longer aligned with her values.

Lauren M. Acute Lymphoblastic Leukemia

Mental health played a significant role in Lauren’s recovery from T-cell acute lymphoblastic leukemia. She sought help from a palliative medicine doctor, not just for physical symptoms but for emotional support, too. Accepting this help was transformative, providing better management of her anxiety, depression, and physical side effects.

Lauren’s message is powerful: healing isn’t linear, and facing tough days is okay. She encourages others to focus on one day at a time, embrace the good moments, and reach out for support when needed. Her story underscores the importance of advocating for oneself, mentally and physically, during and after cancer treatment.

Watch Lauren’s video to discover:

  • How a common cold led to a life-changing T-cell acute lymphoblastic leukemia diagnosis.
  • Why Lauren says cancer became an unexpected blessing.
  • The role of mental health and palliative care in cancer recovery.
  • How leaving a business she co-owned helped Lauren find clarity during treatment.
  • How Lauren coped with T-cell acute lymphoblastic leukemia, one day at a time.

  • Name:
    • Lauren M.
  • Age at Diagnosis:
    • 33
  • Diagnosis:
    • T-cell Acute Lymphoblastic Leukemia (T-ALL)
  • Symptoms:
    • High fever
    • Trouble breathing while lying flat
    • Bad cough
    • Headaches
  • Treatments:
    • Chemotherapy
    • Radiation
    • Lumbar puncture
Lauren M. Acute Lymphoblastic Leukemia
Lauren M. Acute Lymphoblastic Leukemia
Lauren M. Acute Lymphoblastic Leukemia
Lauren M. Acute Lymphoblastic Leukemia
Lauren M. Acute Lymphoblastic Leukemia

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.


Lauren M. Acute Lymphoblastic Leukemia
Thank you for sharing your story, Lauren!

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More Acute Lymphoblastic Leukemia Stories

Lauren M. T-cell Acute Lymphoblastic Leukemia

Lauren M., T-Cell Acute Lymphoblastic Leukemia (T-ALL)



Symptoms: High fever, trouble breathing while lying flat, bad cough, headaches

Treatments: Chemotherapy, radiation, lumbar puncture

Christine

Christine M., Acute Lymphoblastic Leukemia (ALL)



Symptoms: Enlarged lymph nodes, pain in abdomen, nausea

Treatments: Chemotherapy, bone marrow transplant

Lauren J., Acute Lymphoblastic Leukemia (ALL)



Symptoms: Extreme fatigue, easily bruised
Treatments: Chemo pills, chemotherapy, spinal taps, total body radiation, bone marrow transplant
Renata R.

Renata R., B-Cell Acute Lymphoblastic Leukemia, Philadelphia chromosome-positive (Ph+ALL)



Symptoms: Fatigue, shortness of breath, nausea, fevers, night sweats
Treatments: Immunotherapy, chemotherapy, TKI, stem cell transplant (tentative)

Categories
Chemotherapy Metastatic Non-Hodgkin Lymphoma Patient Stories Treatments

Sandy’s Stage 4 Non-Hodgkin Lymphoma Story

Sandy’s Stage 4 Non-Hodgkin Lymphoma Story

Sandy was diagnosed with stage 4 non-Hodgkin lymphoma in 2024. Her initial symptoms included persistent coughing, weakness, and shortness of breath. After weeks of worsening symptoms and ineffective treatments, an MRI revealed a large mass in her chest, which eventually led to the collapse of her left lung due to a massive tumor. A biopsy confirmed the diagnosis of lymphoma, a cancer that Sandy later described as a blessing in disguise due to its responsiveness to chemotherapy.

Interviewed by: Nikki Murphy
Edited by: Katrina Villareal

Treatment began immediately, consisting of six intense rounds of chemotherapy, each lasting five days in the hospital followed by two weeks of recovery at home. The process was physically and emotionally grueling, marked by extreme fatigue, weight loss, and hair loss. Despite these challenges, Sandy focused on mental resilience, which she believes was critical to her survival. She emphasized the importance of maintaining movement, even during the most debilitating moments.

Sandy D. feature profile

To cope mentally with stage 4 non-Hodgkin lymphoma, Sandy turned to spirituality, meditation, and writing. She frequented a meditation garden where she found solace. Writing became a therapeutic outlet, leading to the creation of her book, Cancer Ramblings. Writing helped her process her experience and turn her pain into purpose.

Sandy celebrated her remission as a profound moment of liberation and gratitude, describing it as a second chance at life. She plans to monitor her health closely while maintaining a conscious lifestyle. She views sharing her story as a way to inspire others, providing hope and comfort to those facing similar challenges. Her key advice is to visualize a positive outcome and hold onto it as a guiding light through the darkest moments. Sandy’s enduring image was of herself running on the beach—a vision she ultimately realized.


  • Name: Sandy D.
  • Age at Diagnosis:
    • 45
  • Diagnosis:
    • Non-Hodgkin lymphoma
  • Staging:
    • Stage 4
  • Symptoms:
    • Persistent coughing
    • Weakness
    • Shortness of breath
  • Treatment:
    • Chemotherapy (six rounds)
Sandy D.
Sandy D.
Sandy D.
Sandy D.
Sandy D.
Sandy D.
Sandy D.

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.


Sandy D. feature profile
Thank you for sharing your story, Sandy!

Inspired by Sandy's story?

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More Metastatic Non-Hodgkin Lymphoma Stories

Stephanie V.

Stephanie V., Primary Mediastinal (PMBCL), Stage 4

Symptoms: Asthma/allergy-like symptoms, lungs felt itchy, shortness of breath, persistent coughing
Treatments: Pigtail catheter for pleural drainage, video-assisted thoracoscopic surgery (VATS), R-EPOCH chemotherapy (6 cycles)
...


Stephanie R., Mantle Cell Lymphoma (MCL), Stage 4



Symptom: Elevated white blood cell count



Treatment: 6 months of rituximab + ibrutinib, 4 cycles of hyper-CVAD chemotherapy
...

Sheryl B., Mantle Cell Lymphoma (MCL), Stage 4



Symptoms: (Over 15 years) Skin irritation from temperature changes, rising WBC levels, unexplained fatigue, retinal hemorrhage, hardened abdomen (from enlarged spleen)
Treatment: 6 cycles Hyper-CVAD chemotherapy
...

Shari B., Mantle Cell Lymphoma (MCL), Stage 4



Symptom: None; lymphoma discovered at unrelated doctor appointment
Treatments: 6 cycles R-CHOP, 5 cycles phase 3 trial of Velcade + Rituxan (normally for multiple myeloma), allogeneic bone marrow transplant (BMT)
...

Shahzad B., Refractory Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptom: Extreme fatigue
Treatments: R&B, R-ICE, R-EPOCH, CAR T-cell therapy (cell-based gene therapy)
...
Sandy D. feature profile

Sandy D., Non-Hodgkin’s Lymphoma, Stage 4



Symptoms: Persistent coughing, weakness, shortness of breath

Treatment: Chemotherapy
...
Sammie shares her non-hodgkin's lymphoma story
Sammie F., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4
Symptoms: Chest pain, back pain, bump on neck, night sweats Treatments: Chemotherapy, CAR T-cell therapy...

Richard P., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Relapse Symptoms: Swelling in leg, leg edema Treatments: R-CHOP chemotherapy, clinical trial (venetoclax-selinexor)
...
Paige C.

Paige C., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptoms: Weight loss, extreme fatigue, swollen lymph nodes in the neck
Treatment: R-EPOCH chemotherapy
...
Nolan W. feature profile

Nolan W., T-Cell/Histiocyte-Rich Large B-Cell Lymphoma (T/HRBCL), Stage 4



Symptoms: Debilitating fatigue, flu-like symptoms without a fever, swollen lymph node under the left arm

Treatments: Chemotherapy (R-EPOCH & RICE), bone marrow transplant
...

Nina L., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptoms: Hip and lower extremities pain, night sweats
Treatment: Chemotherapy (R-CHOP)
...
Headshot of Nicky, who's living with stage 4 follicular lymphoma
Nicky G., Follicular Lymphoma, Stage 4
Symptoms: Fatigue, weight loss, lumps in the neck and groin

Treatments: Chemotherapy, radiation, platelet transfusion...

Mike E., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptom: Persistent, significant back pain

Treatments: Surgery, chemotherapy
...

Mags B., Primary Mediastinal (PMBCL), Stage 4



Symptoms: Exhaustion, migraines, persistent coughs, swelling and discoloration in left arm
Treatment: Chemotherapy (R-CHOP, 6 cycles)
...

Luis V., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptoms: Persistent cough, fatigue, unexplained weight loss



Treatment: Chemotherapy (R-CHOP and methotrexate)
...

Laurie A., Follicular Non-Hodgkin Lymphoma, Stage 4



Symptoms: Frequent sinus infections, dry right eye, fatigue, lump in abdomen

Treatments: Chemotherapy, targeted therapy, radioimmunotherapy
...
Kris W.

Kris W., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptom: Pain in the side of the abdomen
Treatment: R-CHOP chemotherapy
...
Kim

Kim S., Follicular Lymphoma, Stage 4



Symptom: Stomach pain
Treatments: Chemotherapy (rituximab & bendamustine), immunotherapy (rituximab for 2 additional years)
...

Jonathan S., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptom: Severe shoulder pain

Treatments: R-CHOP chemotherapy, methotrexate, focal radiation, autologous stem cell transplant
...

John S., Follicular Lymphoma, Stage 4



Symptom: Swollen lymph nodes

Treatments: Clinical trial, chemotherapy
...

Jason W., Mantle Cell Lymphoma (MCL), Stage 4



Symptoms: Hives, inflamed arms



Treatments: Calabrutinib, Lenalidomide, Rituxan
...

Harjeet K., Subcutaneous Panniculitis-like T-Cell-Lymphoma (SPTCL), Stage 4



Symptoms: Persistent, high fevers; red, tender rashes on legs
Treatments: High-dose chemotherapy, allogeneic stem cell transplant
...

Erin R., Diffuse Large B-Cell Lymphoma (DLBCL) & Burkitt Lymphoma, Stage 4



Symptoms: Lower abdominal pain, blood in stool, loss of appetite
Treatments: Chemotherapy (Part A: R-CHOP, HCVAD, Part B: Methotrexate, Rituxan, Cytarabine)
...

Emily G., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptom: Pain in left knee

Treatments: Chemotherapy (R-CHOP and high-dose methotrexate)
...

Emily S., Burkitt Non-Hodgkin Lymphoma, Stage 4



Initial Symptoms: Constant fatigue, tongue deviated to the left, abscess in right breast, petechiae on legs, night sweats, nausea and vomiting, persistent cough

Treatment: Chemotherapy, stem cell transplant, immunotherapy
...
David shares his stage 4 follicular lymphoma diagnosis
David K., Follicular Lymphoma, Stage 4 Symptoms: Sharp abdominal pains, frequently sick, less stamina Treatments: Chemotherapy, immunotherapy, radiation, clinical trial, autologous stem cell transplant...
Cindy M. feature profile

Cindy M., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptoms: Itchy skin on the palms and soles of feet; yellow skin and eyes
Treatment: Chemotherapy (R-CHOP)
...

Cherylinn N., Mantle Cell Lymphoma (MCL), Stage 4



Symptom: None



Treatments: R-CHOP chemotherapy, rituximab
...

Bobby J., Mantle Cell Lymphoma (MCL), Stage 4



Symptoms: Fatigue, enlarged lymph nodes
Treatments:Clinical trial of ibrutinib + rituximab, consolidated chemo of 4 cycles of Hyper-CVAD
...

Barbara R., Diffuse Large B-Cell Lymphoma (DLBCL), Stage 4



Symptom: Abdominal and gastric pain



Treatments: Chemotherapy R-CHOP, CAR T-cell therapy, study drug CYT-0851
...
Ashlee K. feature profile

Ashlee K., Burkitt Lymphoma, Stage 4



Symptoms: Abdominal pain, night sweats, visible mass in the abdomen

Treatments: Surgery (partial colectomy to removed 14 inches of intestine), chemotherapy
...