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From Confusing Symptoms to Motherhood and Advocacy: Taja’s Polycythemia Vera Story
Taja S., Polycythemia Vera Symptoms: Chronic fatigue, fainting, stroke-like episodes, elevated hemoglobin, hematocrit, and platelet countTreatments: Emergency surgery for ruptured cyst & bowel obstruction, chemotherapy, radiation, stem cell transplant
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How Tabbie Faces Stage 4 Neuroendocrine Pancreatic Cancer at 25
Tabbie V., Pancreatic Neuroendocrine Tumor (pNET) Symptoms: Abdominal pain, unusual organ “inflammation” feeling when walking, fatigue Treatments: Chemotherapy (oral and IV), surgeries (Whipple procedure or pancreaticoduodenectomy, liver resection or partial hepatectomy)
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Emily Breaks Stigmas and Builds Awareness Around Stage 4 EGFR+ Lung Cancer
Emily N., Non-Small Cell Lung Cancer, EGFR+, Stage 4 (Metastatic) Symptoms: Chronic cough, persistent post-nasal drip, shortness of breath while doing simple activities, changes in voice, rib pain Treatments: Chemotherapy, targeted therapy (tyrosine kinase inhibitor), radiation therapy
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How Faith and Family Keep Jackson Going Amid Stage 4 Colon Cancer
Jackson L., BRAF Mutation Colon Cancer, Stage 4 Symptoms: Severe stomach pain, fatigue, lack of motivation, anemia, blood in stool, thinning stool Treatments: Surgeries (emergency bowel obstruction surgery with temporary colostomy, possibility of HIPEC in 2026), chemotherapy, immunotherapy
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Shauna’s Story of a Cold, a Cough, an X-ray, and Stage 4 ALK+ Lung Cancer
Shauna D., Non-Small Cell Lung Cancer, ALK+, Stage 4 (Metastatic) Symptom: Persistent dry cough following a cold Treatments: Targeted therapy (tyrosine kinase inhibitors), radiation therapy
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40 Years Living with an MPN: Jeremy’s Polycythemia Vera (PV) and Myelofibrosis Story
Jeremy S., Polycythemia Vera Jeremy Smith and Dr. Angela Fleischman share empowering insights on living well with polycythemia vera, from symptoms to treatment and patient advocacy.
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Ray Explores Earth’s Limits and His Own with Waldenström Macroglobulinemia
Ray Z., Waldenström Macroglobulinemia (WM) Symptoms: Constant fatigue, excessive napping, dizziness, memory issues, shortness of breath, anemia, frequent infections, skin rashes, digestive problems, numb and white fingers, “wool in head” sensation Treatments: Chemotherapy, monoclonal antibody
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Navigating Thyroid Cancer AND Chronic Myeloid Leukemia (CML): Jannette’s Story
Jannette J., Thyroid Cancer & Chronic Myeloid Leukemia Symptoms: (thyroid cancer) recurring sore throat, worsening throat pain, difficulty swallowing, swelling in the neck; (chronic myeloid leukemia) fatigue, nausea, vomiting, blood with bowel movements Treatments: Surgery (thyroidectomy), radiation, chemotherapy
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How Stage 4 Hodgkin Lymphoma Changed Amina’s 20s, But Not Her Spirit
Amina V., Hodgkin Lymphoma, Stage 4B Symptoms: Severe fatigue, shortness of breath, night sweats, bloating and stomach distension after eating, abdominal pain, little to no appetite, high fever, lump in the pelvic area Treatment: Chemotherapy
