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How Faith and Family Keep Jackson Going Amid Stage 4 Colon Cancer

How Faith and Family Keep Jackson Going Amid Stage 4 Colon Cancer

When Jackson was diagnosed with stage 4 colon cancer with BRAF mutation at 27 years old, life flipped upside down in ways he never saw coming. A former college athlete, outdoorsman, Brazilian jiu-jitsu practitioner, and self-proclaimed extrovert, Jackson was the last person anyone expected to face a stage 4 cancer diagnosis. But looking back, the signs were there. He just didn’t realize how serious they were.

Interviewed by: Carly Knowlton
Edited by: Katrina Villareal

Jackson had been experiencing stomach issues and hemorrhoids for years, so even when he noticed thinning stool and blood, he brushed it off. That changed quickly when severe stomach pain and projectile vomiting landed him in the emergency room. Scans revealed a tumor in his colon and more than 40 tumors in his liver. Later, genetic testing confirmed that he had a rare BRAF mutation, present in only about 8% of colorectal cancer patients.

Jackson L. stage 4 colon cancer with BRAF mutation

Understandably, the news hit hard. Jackson recalls the mental toll in those first few weeks, including the panic attacks, the anxiety, and the numbness. But what changed everything was a spiritual experience after reading Matthew 6:34 with his wife during a moment of deep fear and uncertainty. He describes feeling what he could only call a divine embrace, a peace that replaced panic, and a clarity that gave him purpose.

That spiritual moment became a turning point. Jackson began embracing each day without obsessing over the future. His mental health improved, his faith deepened, and his perspective on life transformed. He’s started a weekly Bible study, watched close friends get baptized, and even launched The 3929 Foundation to raise awareness, fund research, and provide financial assistance for those impacted by cancer.

While stage 4 colon cancer with BRAF mutation is a daunting diagnosis, Jackson hasn’t let it define him. He continues to work full-time, train, fish, and golf. He’s even recovered from colostomy reversal surgery and is eyeing a return to jiu-jitsu. Although he’s undergone intensive chemotherapy and faces ongoing tumors, including recent ones found on his peritoneal wall, he remains hopeful. His oncologists are amazed at his positive response to treatment, with nearly 90% of liver tumors now undetectable.

Through it all, Jackson advocates for others to listen to their bodies, get multiple medical opinions, and not hesitate to push for testing. He credits his wife, family, and faith for keeping him grounded. He’s not just surviving. He’s living fully, with a mission to educate, uplift, and inspire.

Watch Jackson’s video or read the transcript of his interview to find out more about his story:

  • Why Jackson says being diagnosed with stage 4 colon cancer with BRAF mutation may have been the wake-up call he didn’t know he needed
  • The emotional moment at his kitchen table that reshaped his entire outlook on life
  • How his wife, family, and friends became his loudest advocates, and why that made all the difference
  • The surprising reason he’s grateful to be the one facing cancer, not someone he loves
  • What changed after Jackson focused on today instead of fearing tomorrow, including the Bible verse that grounded him

  • Name: Jackson L.
  • Age at Diagnosis:
    • 27
  • Diagnosis:
    • Colon Cancer
  • Staging:
    • Stage 4
  • Mutation:
    • BRAF
  • Symptoms:
    • Severe stomach pain
    • Fatigue
    • Lack of motivation
    • Anemia
    • Blood in stool
    • Thinning stool
  • Treatments:
    • Surgeries: emergency bowel obstruction surgery with temporary colostomy (to discuss the possibility of HIPEC in 2026)
    • Chemotherapy
    • Immunotherapy
Jackson L. stage 4 colon cancer with BRAF mutation
Jackson L. stage 4 colon cancer with BRAF mutation
Jackson L. stage 4 colon cancer with BRAF mutation
Jackson L. stage 4 colon cancer with BRAF mutation
Jackson L. stage 4 colon cancer with BRAF mutation
Jackson L. stage 4 colon cancer with BRAF mutation
Jackson L. stage 4 colon cancer with BRAF mutation

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.



Hi, I’m Jackson

I’m from Kansas City. I got diagnosed on January 11, 2025, at the age of 27.

I’m a big outdoors person, so I do a lot of hunting, fishing, and farm work at my farm. I love spending time with my wife. I’m also a purple belt and trained in Brazilian jiu-jitsu, so that’s something that I’m very passionate about as well. I love spending time with my family and our three animals.

My friends would describe me as very outgoing, talkative, and energetic. Hopefully, they’d say I’m selfless. I like to do things for other people.

When I first knew something was wrong

I ignored a lot of them as they came through. I’ve always had stomach issues for a very long time, all the way back to high school and through college. I was always told that it was acid reflux or GERD (gastroesophageal reflux disease), or that I’ve got IBS (irritable bowel syndrome) or something like that.

Over the course of 2024, I started to see my stool thinning and had blood in it, but I didn’t realize it at the time. I’ve always dealt with hemorrhoids for a long time, so I thought it was just that.

The crazy thing is that my sister is an oncology nurse, so I would talk to her about it, ask her, and send her pictures to know if that was okay. She didn’t think anything of it either because I was healthy, a college athlete, and ate right. We thought it was something with my stomach.

Then I started feeling very fatigued and lethargic throughout the year. I didn’t feel motivated to go to the gym when I used to go every single morning and train in jiu-jitsu at night. That started fading away a little bit.

I would say that would probably be the anemia, which I didn’t realize at the time. I was very pale and even when I would go to the lake every week with my parents and out in the sun, I still was not getting a tan or any color. When I had to go to the hospital, I was starting to get tired all the time and grumpy. I was starting to notice the blood in my stool and that’s when I started freaking out a little bit.

At about that time, within a week, I was in the hospital from extreme stomach pain and I was projectile vomiting. They told me I needed to get a scan and go to the ER, and that’s when they told me they saw what they thought was a tumor. I officially got diagnosed the day after that, when I got transferred to the University of Kansas Hospital.

We thought it was appendicitis or some infection. Never in a million years would I have thought it was stage 4 colon cancer. What was wild is that he walked out and said, “There’s a big tumor in your colon, and we found spots all over your liver.” When I officially got diagnosed at KU, they told me that I had stage 4 colon cancer. I had a complete bowel blockage, so I couldn’t go to the bathroom and had to get emergency surgery. They stopped counting after finding 40 tumors on my liver.

I wanted a second opinion

In March 2025, I got a second opinion at MD Anderson. I also have a rare mutation, the BRAF mutation, which is only in about 8% of colon cancer patients. I asked my oncologist and he said, “We’ll never be able to tell you how long you’ve had this or when you got it.” The interesting thing is, when I went to MD Anderson, I asked the oncologist there, and he and his team said that they would be shocked if I had it longer than a year.

They told me that in their opinion, they thought that it turned on and spread like wildfire within a year, which honestly would make sense to me because I started getting those symptoms, the fatigue and the actual blood in stool, within that year, so it would make sense to me that I’ve maybe only had it a year. But I thought that it couldn’t be out of the realm of possibility, with all the stomach issues I’ve had, that maybe I’ve had it for five to 10 years and then it slowly grew.

Education is probably one of the most important things. I feel like it’s one of my callings and the reason I’m going through this is to help bring awareness and raise awareness about the signs and symptoms of colon cancer. One of the most rewarding things that has happened is that since I got diagnosed was I probably have had over 50 people who I either know or who I have never met in my life from across the country reach out to me and told me that because of my story and everything that I’ve shared, they’ve gotten checked out and have gotten colonoscopies or gotten them scheduled or gotten tests.

There was a kid a few years younger than me who I knew from high school, and he messaged me and said, “I know you don’t know me too well. I was younger than you on the baseball team, but because of your story, I was able to get a colonoscopy set up. I’ve had stomach issues forever. Luckily, nothing came back from it.” I’ve had dozens and dozens of people tell me that and share that with me, which is literally the most important thing to me. That’s why I started this foundation, partially to help people with financial assistance who are going through cancer and everything, but the main reason is to help raise awareness and provide resources for people to get education about it because it’s not talked about enough.

Now it’s going to be the number one cause of death and cancer in people under 50 in men and women, behind breast cancer, and it’s never talked about. You see more younger people getting diagnosed with it and at a late stage, and nobody can tell us why. That’s the biggest thing for me. Part of our mission is to help get people connected with educational resources and actual care teams willing and able to help provide that.

When I got the news “you have cancer”

It still feels like it was yesterday. I was sitting in the emergency room with a screen in front of me and it was in the middle of one of the biggest snowstorms we’ve had in Kansas. My wife was at home. My parents’ house was not too far from the hospital I was at, so they drove to meet me there. When he told me, I sat there and didn’t know what to say or how to respond, to be honest. I sat with a blank stare on my face.

Then I called my wife and she started freaking out. She drove to the hospital and stayed the night before I got transferred. I felt super sick to my stomach. I didn’t know how to process it. My mom had breast cancer when I was very young. She’s 17 years clear, so she’s been doing great, but she felt just as sick, knowing that she has to watch me go through this now after she had to.

At that time, I was numb. Then, when I got the surgery and was recovering, I was trying to be optimistic and not be mad at the world. But then I started having a lot of panic attacks and anxiety attacks. Through my faith and the people I have, I’ve been able to overcome that. I’m probably too optimistic at this point, when I was told I got two years to live. A lot of people tell me they would have never guessed, with my energy levels and how I act and respond, that I was diagnosed with stage 4 colon cancer. But that’s a compliment because that’s how I want to live. I know people who are in the situation that are mad at the world and pessimistic and whatnot, and that’s not how I want to live.

My sister was working on the oncology floor of the University of Kansas Hospital. She worked there for three years. At the time, she was working at Mass General Hospital because her boyfriend and my future brother-in-law was a resident doctor at Mass General. Now they’re in New York City and both working at Mount Sinai. She’s working as a clinical research coordinator in oncology, and he’s a cardiology fellow. At the time, she was not, but a lot of her friends and connections were still there, and I’m very lucky because of that.

Her boyfriend had a friend who was working in the emergency room that day and was able to pull some strings and usher me back pretty quickly. By the time I got back, I had two doctors waiting for me, which never happens. They did some tests and were talking about doing scans. They immediately took me up to that cancer unit, and I was treated with the best care I could have ever asked for.

I’m still close with all those nurses up there. I keep in touch with them all the time. I just had my colostomy reversal surgery two weeks ago and I was getting wheeled up there to hang out with them and talk to them because I care about them deeply and they are amazing people. They are the best nurses in the world, in my opinion. They’re incredible.

I first went to urgent care and by the time I went, I was projectile vomiting and they said, “You need to go to the hospital,” so I had to drive myself while throwing up to the closest hospital and went to the emergency room. They did some blood tests and took me back for a CT scan. A couple of hours later, they told me they found what they believed were tumors but didn’t give me an official diagnosis.

I stayed overnight at that hospital. Their oncologist came down and told me that she believed that I had stage 4 colon cancer. At that point, there’s no other hospital. There’s only one option for me and that’s going to KU. They’re the best around here for that and one of the best in the country.

I had surgery right after I was diagnosed

My sister made calls and I had to discharge myself because they wouldn’t approve a transfer. My mom had to drive me over to KU and into the emergency room. I got admitted through there. That would have been on the 10th and the very next day, on the 11th, they officially diagnosed me. On Sunday, the 12th, that’s when they did surgery to remove the tumors and put in a temporary colostomy bag.

The plan moving forward

Recovery was not fun. On top of that, learning how to deal with a colostomy bag was a big challenge. Luckily, I have a brother who lives here and another brother who lives in Scottsdale, so he flew into town. My sister at Mass General, they gave her all the time off and said, “Go be with your brother,” so she flew in. She was like my second nurse. Her boyfriend was with me too. I was recovering for about a week and they said, “We typically don’t do this, but you need to start on chemotherapy as soon as possible.”

I started chemo three weeks post-op and finished my first round on my 28th birthday. I got discharged from the hospital a week after surgery. I believe a week or two after that was when I met my original oncologist. I’ve since switched to a new oncologist. I was thinking that they’ll say, “We’ve got a great chemo regimen. We’ll be able to get you past this. You’ll be good.” My oncologist looked me in the eye and told me that he doesn’t think I’ll live past two years. He straight up said, “You’d be lucky to live past two years with your mutation and how advanced your disease is.” Nope, I’m not accepting that.

I was with that oncologist for a little bit. I got a second opinion at MD Anderson. Unfortunately, they kind of told me the same thing. The only option for me was a BRAF-specific regimen and your only hope at living past three years. That hurt a little bit, as well as all the negativity around me. Everybody was telling me that I’ll be dead in two years and if I can live past that, I’ll be lucky.

But with this chemo regimen, doing a holistic approach of changing the way I eat, what I’m putting into my body, other supplements, and different types of alternative medicine, my oncologist estimated that about 90% of the disease on my liver is gone. With having more than 40 tumors originally, he’s mind-blown that I’ve had this good of a response to all the treatments and everything I’m doing so far.

Unfortunately, after the colostomy reversal, they found more tumors in my peritoneal wall. The response that I’ve been having to treatments and everything I’m doing has been very good so far. I continue to be optimistic about what I’m doing and think that eventually, I can get to no evidence of disease, against all odds that I’ve been given.

I changed my diet

When I talk to my colorectal surgeon and my new oncologist at KU, who’s incredible, I’ve asked multiple times, “Why are we getting this? Why are so many people getting colon cancer so advanced at such a young age?” He said, “We don’t know yet, but in my opinion and through a lot of research, it has to be environmentally-related to either the stuff that’s in our food supply,” like the chemicals that are getting sprayed, microplastics, all the additives and preservatives, or at least they think they could be a big factor into why so many young people are getting colon cancer, and it makes a lot of sense.

Ever since we’ve been kids, everything we’ve been eating has been pumped full of crap. They used to, at fast food restaurants, cook everything in beef tallow and now it’s all these different oils and other crap. The amount of stuff that is in our food is killing us and is being so harmful. My wife and I, as soon as I got home from the hospital, threw everything out of our pantry. We only order from Thrive Marketplace. We go to Sprouts and Whole Foods. We try to do everything organic. We started a garden at our house. Our neighbors have chickens and they give us their eggs. We try to do our best to know where our food is coming from and not get stuff that’s overly processed or has a bunch of stuff added to it. We’ve changed the way we eat for the most part. My wife falls off a little bit sometimes as she can’t help herself, but I’m very conscious now about what I put into my body.

I try to avoid a lot of gluten to reduce inflammation to fight against cancer. I take a lot of supplements, like B vitamin complex, vitamin C, vitamin E, milk thistle, turmeric, probiotics, and others. I’m trying to help my body fight this and I think a lot of it is contributing, outside of the chemotherapy and also helping me feel better from my chemo.

I urge everybody, whether you’re going through cancer or not, to change how you eat. Get all that crap out and fix it. That’s another goal of mine, too, which is to try to help people eat a lot better as well.

Getting multiple opinions is by far the best thing you can do. We’re still looking at options. We’ve got a friend who gets treated at Duke, and they do a lot of things with a HAI (hepatic artery infusion) pump for the liver. One of the best surgeons in the country is either at Mount Sinai or MSK who does HIPEC. In City of Hope and the Williams Cancer Institute in California, there are a bunch of places we look at to get opinions from because everybody has a different approach to how they do it, whether it’s traditional chemotherapy, repurposed medicine, alternative medicine, or whatever it is.

I’m open to anything to save my life and to get this out of my body. I’m not going to settle for what one person thinks. What’s great is that my new oncologist says, “I want you to get opinions from other places. If you need help getting those set up, let me know.” He’s not the type of person who says whatever he says goes. He wants me to get as many opinions as possible. If we can do it and they want to suggest something else, he says, “I’ll communicate with them and if we can do it here, I would love to. If not, get it done there.”

I’m glad I made the switch to him. He’s incredible. A lot of people don’t want to step on their doctor’s toes when in reality, it does not matter. It’s your health and your life. Do what you need to do. Do not settle for one person’s opinion. You have to see multiple people and get opinions from as many people as possible and find out different approaches as possible to see what may work and what may not. There are so many different treatment options outside of what your local or primary oncologist has or says.

My wife is the best advocate for that because sometimes I’m too scared because I don’t want to be mean or say something that I think is rude, my wife will say, “Why are you doing that? We should go look at that.” I tell her, “Thank you. I didn’t want to say it, so thank you.” She’s incredible at it. She’s not afraid to say what’s on her mind and to make sure that I’m getting the care I need.

I completed chemotherapy before my colostomy reversal. I was supposed to have another round, but one of the side effects of the regimen for my drug is a very bad skin rash on pretty much my entire body. It looks like I have painful acne, which it is. It has gotten so bad to the point where they couldn’t give me chemo because I had to see a dermatologist. Hopefully, I’ll get back on it, which will be my 16th round of chemo. For now, we keep doing it until it stops working. It depends on how long it can be effective for and then, eventually, we’ll look at other treatments. But so far, this chemo and everything I’ve been doing have been working out pretty well, so we’re not going to change course until it’s time.

With my chemo regimen, I was on a drug, oxaliplatin, Vectibix (panitumumab), and 5-FU, and then I take oral chemotherapy, so four different chemos. I take Braftovi (encorafenib) every single day, four pills of those. I am now off of oxaliplatin because it’s so toxic and has given me almost permanent neuropathy in my hands and feet, so I had to stop that after 10 rounds because it got so bad. Now I just do oral chemo every single day. Every 14 days, I go in for my immunotherapy infusion, which I get through my port, and then I get my 5-FU pump that I’ll have for 46 hours. I’ll usually go in every other Tuesday, get chemo, and then have my pump until Thursday, and then get unhooked on Thursday.

Every day, I take four pills in the morning for my oral chemo. Every 14 days, I was getting three hours’ worth of infusions. Now it’s just one and a 46-hour pump.

I take like 25 pills a day, which is wild. It looks like I have an 80-year-old man living with me with my weekly pills on the counter.

At first, I didn’t have time to think about it because I had so much going on with recovery and trying to figure out if we could find out about this disease and how to treat it, types of treatments, where to go, what to look for, etc.

How my diagnosis has impacted me mentally

After I got diagnosed, the first month or two were very rough on me mentally. But since then, I’ve been doing well, mentally and physically.

The chemo is not as harsh on me anymore now that I don’t take oxaliplatin, which is good. I go to work in the office every single day. My company has been great about giving me time off whenever I need it, but I’ve worked full-time through everything. I’ve been blessed with the company that I work for. They give me a lot of grace and a lot of opportunity to go to my appointments and chemotherapy, and to take days off if I’m not feeling well. Most times, I’m in the chemotherapy chair working, in meetings and stuff like that. I’ve never stopped working. I’ve been working the entire time, which has helped me a lot mentally to try to stay as normal as possible.

The colostomy bag reversal has helped me a lot in terms of my quality of life moving forward, which is great. Outside of neuropathy, I work out and I’m able to still hunt and do the things that I love to do. Without the bag now, I’m optimistic that I can get back to Brazilian jiu-jitsu training, which is one of my favorite things to do in life and helps me a lot mentally. It’s a big release for me. I’ve been able to golf through all of it. It hasn’t been too much of a difficult change besides what I’m allowed to eat or not eat. I don’t drink alcohol anymore, so that’s a big change. I feel a lot better not drinking, so that’s a good change for me.

The worst is sitting at home. The last two weeks, while recovering from surgery, I would ask my wife to go drive me around the neighborhood because I needed to get out of the house. I hate sitting at home and doing nothing for all hours of the day. She, on the other hand, can do that every single day. I can’t. I have to be up and talking to people, going and doing stuff. I still have staples in me, but I’ve been going to work, seeing people, and going to meetings. I try to live as normally as I can without any change as much as possible.

I had my colostomy bag removed

The bag reversal went well. Funny story, I was without pain meds after surgery for about 18 hours because they misplaced an epidural in me, so that wasn’t fun. But other than that, the recovery has been good so far. I’m up and moving around. I’m getting the staples out and I have a three-week follow-up, so it’s been great. I’m very blessed to be in this position to at least have this surgery.

All my cancer markers are still looking good, even with a break from chemo and having the surgery. I’m in a pretty good spot right now. I’m excited to get back on chemo and keep hacking away at the tumors. But as far as the reversal and everything, it’s gone very well so far.

They weren’t able to see the tumors and the peritoneal wall is very hard to see on scans. They could see something before, but we couldn’t tell if they were tumors or if it was scar tissue from my colostomy bag and the initial surgery. Unfortunately, when my doctor opened me up, he found four tumors right there, so he ended up taking four of them out, biopsying a couple, and then sending some off. He said those were definitely cancer. There could be more or there may not be. We don’t know how many are left in there.

The goal is to see on some PET scans coming up in September what we can try to find and the plan of attack is to continue what I’ve been doing as far as chemo and then look at HIPEC surgery potentially in 2026 to try to get all those out if we possibly can and continue to target the liver. My oncologist believed that with my scans from July that about 90% of my disease on my liver is either gone or dormant right now. My latest Signatera test came back as negative, so that’s good, meaning they’re stable and not active and spreading, so I’m very lucky for that.

The hardest part of my journey

The hardest moment was definitely the tail end of my hospital stay and then the first week at home, which is when it started hitting me that my life was changed forever. I was in a bad headspace and having very bad anxiety attacks and panic attacks. I was struggling.

I had a wild faith moment that changed everything for me following that, which is when everything changed for me and I was able to get rid of all of that anxiety, panic, and worry. Ever since then, I’ve been able to lean into that, my friendships, my family, and my wife. I was able to stay optimistic and faithful and keep moving forward and continue to focus on every single day. I used to get anxious thinking about the future. What is two months going to look like from now? What is a year from now going to look like? That gave me a lot of anxiety and worry. I now focus on every single day and not try to look too far ahead. I just enjoy what I have in front of me and not worry about what tomorrow is going to look like, so that’s helped me a lot.

I grew in my faith

I had a couple of friends who are college teammates of mine who flew into town after I got diagnosed. One of my friends and his wife brought me a new Bible and a new daily devotional, which was perfect. I have been asking and trying to get myself to hop back into my faith for a very long time. I was not happy with the person I was. It’s not like anything was super bad. I was empty and unfulfilled. I wasn’t happy with who I was and what I did. I used that as a good opportunity.

One day, I had a very bad panic attack and anxiety attack. The next morning, I sat down at the kitchen table with my wife and we opened up the devotional, and one of the verses in the devotional was Matthew 6:34. It was Jesus talking about anxiety and worry. He talked about why worry about tomorrow when tomorrow’s going to have its own troubles and today’s trouble is enough for today, so focus on today

I don’t know how to describe it other than this. In that exact moment, sitting with my wife at the table, I quite literally felt like a massive hug wrapped around me. It was crazy. I’ve never experienced anything like this in my life. The best way I can describe it is like a lake being perfectly flat and like glass. In that moment, I literally felt everything, all of the anxiety and worry, get pushed out of me. I was shaking and crying. It was the most overwhelming experience of my life.

I texted my friends. I looked at my wife Hannah and I said, “This is the craziest feeling ever.” At that moment, I have never in my life been more sure that God and Jesus are real, and that I’m going through this for a reason. The more I continued to think about it, I kept praying every single night, saying, “God, please do something in my life to bring me closer to you. Change my life and change my faith,” and then all of this happened.

I’m almost grateful that I got diagnosed with this because without this, none of this would have ever happened in my life. I feel like there are two reasons I’m going through this. One is to talk about my faith and the gospel. With that, I’ve started a weekly Bible study where I have six of my friends and two of them got baptized this year. That is the greatest thing for me. I was on a radio show talking about my diagnosis and I was able to share this story. That’s the first reason why I’m going through this is to grow in faith.

How I’m supporting others with cancer

The second thing is to be able to talk about colon cancer and raise awareness about it and legitimately try to save lives. We started The 3929 Foundation. The number 39 is for a family friend of mine, his name is Matt Fitzmorris. His dad, Al Fitzmorris, played for the Kansas City Royals and passed away from cancer in December, a few weeks before I got diagnosed. The number 29 was my number growing up throughout my entire life, so we decided to start this foundation.

We filed for our nonprofit 501(c)(3), so we’re waiting for that, but our goal for the foundation is to be able to help people and their families who are going through cancer by helping them financially. I know from experience. My chemo treatments every other week are $81,000. That’s how much it costs for my chemo every 14 days. $81,000, twice a month. Luckily, I have phenomenal insurance where it’s all after my deductible was hit in January, so it’s 100% paid for, so I’m very lucky. Otherwise, I’d probably have millions of dollars of medical debt.

We know how difficult it can be to make a payment on your mortgage or buy something for the house when you’ve got medical bills to pay, so that’s our priority. People can go to our website to apply for financial assistance. We’re also working on surprise donations to people at the KU Cancer Center, where I get treatments, to help them out.

We want to provide education and resources specifically about colon cancer to raise awareness. We formed the foundation in March and in May, we had a pickleball tournament and raised $15,000, which is super cool. We’ve got another event that’s more my style, which is trapshooting, that we’re doing on October 5th to raise money. We’re trying to do multiple events throughout the year. We’re starting to sell our merchandise on our website. We’re getting that all up and running.

I feel lucky and grateful that I’m going through this and able to help people. It’s crazy to me because I get told all the time by my friends and family, “I wish you didn’t have to go through this. I wish I were the one who got this and not you.” Absolutely not. I am grateful and lucky that I’m the one going through this because I wouldn’t be able to stand watching somebody I care about go through this. Watching somebody I cared about going through that would kill me, so I’m very glad that I’m the one who has it, because I know that I can deal with it and I’m strong enough to withstand it. I tell them, “Don’t ever say that. I’m glad I’m the one going through it and nobody else I know.”

I hope that I can help as many people as possible. I don’t know how long I will be here for. Hopefully, for a very long time. I hope that, however long I am here, I can help and impact as many people as I possibly can, so that’s what I’m here to do.

I have a new outlook on life

My perspective on everything in life has changed. It’s very wild. In a weird way, I needed this. I tell people all the time. I feel the best, but not necessarily physically. Sometimes I do, but mentally and spiritually, living with all these tumors and stage 4 cancer and all this going on, this is the best I’ve ever felt in my life. I genuinely mean that. It’s crazy for me to say that, but it’s true. I am so grateful that I’ve gotten this opportunity. Yes, it absolutely sucks. There’s a lot of stuff I can’t do anymore. Some days, chemo makes me want to feel like death might not be so bad, but I wouldn’t change anything about this.

What I want others to know

I was scared to go to the doctor, not because I was actually scared, but because I hated it. I thought it was pointless. Listen to your body. If you notice anything, pay attention to your body and to anything going on. If anything is different, go get checked out and see somebody. I would always push it off, no matter what it was, thinking that I didn’t need to go to the doctor and that it’d go away.

I often think about 2024. What if in July, when I started, I paid attention and cared about the things going on? If I noticed I was starting to feel fatigued and my stool was thinning, changing, and looking different, if I got checked out and they found something, maybe I wouldn’t have had a complete blockage. Maybe I wouldn’t have had 40 tumors on my liver. Maybe it would have been two and it would have been a lot different story. Maybe I would have been stage 2 or 3 instead of stage 4.

Listen to your body. If you feel like anything is off or wrong, don’t neglect it. Get checked because I was the exact opposite. Obviously, I regret it a little bit by not having myself checked earlier. Be aware of that. Take your body and your health seriously. Change the way you eat. Be conscious of what you’re putting into your body and how you’re treating it. Exercise as much as possible. Try to make a change in your life in a good way.


Jackson L. stage 4 colon cancer with BRAF mutation
Thank you for sharing your story, Jackson!

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More Metastatic Colon Cancer Stories

 
Raquel A. feature profile

Raquel A., Colorectal Cancer, Stage 4



Symptoms: Frequent bowel movements, pin-thin stools, mild red blood in stool
Treatment: Chemotherapy

Steve S., Colorectal Cancer, Stage 4



Symptoms: Blood in stool, changes in bowel habits, feeling gassy and bloated

Treatments: Surgery, chemotherapy, monoclonal antibody, liver transplant
Jessica T. feature profile

Jessica T., BRAF Mutation Colon Cancer, Stage 4



Symptoms: Severe stomach cramps, diarrhea, vomiting, anemia (discovered later)

Treatments: Surgery (hemicolectomy), chemotherapy

Jennifer T. feature profile

Jennifer T., Colon Cancer, Stage 4



Symptoms: Weight loss, coughing, vomiting, sciatica pain, fatigue

Treatments: Surgeries (colectomy, lung wedge resection on both lungs), chemotherapy, immunotherapy
Kasey S. feature profile

Kasey S., Colon Cancer, Stage 4



Symptoms: Extreme abdominal cramping, mucus in stool, rectal bleeding, black stool, fatigue, weight fluctuations, skin issues (guttate psoriasis)
Treatments: Surgeries (colectomy & salpingectomy), chemotherapy


Categories
Colon Colorectal Cystectomy Hysterectomy oophorectomy Patient Stories Surgery Treatments

Colon Cancer at 36: How Crystal Faced Diagnosis and Found Connection

Colon Cancer at 36: How Crystal Faced Diagnosis and Found Connection

Crystal’s account is a heartfelt narrative about confronting colon cancer, grappling with mental health, and letting in support.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

For years, Crystal noticed blood in her stool, but dismissed it as hemorrhoids. Fast forward to 2022, when symptoms she couldn’t shrug off, including excruciating abdominal pain and recurring urinary tract infections (UTIs), finally pushed her to seek medical help. A CT scan revealed something alarming — an abnormal mass intruding into her bladder. After several tests, the diagnosis was confirmed: colon cancer. The news, while devastating, wasn’t entirely shocking to Crystal, who had long neglected her health habits. Yet, the emotional weight of hearing, “You’ve got cancer,” hits differently, no matter how prepared one thinks one might be.

Crystal W. colon cancer

Getting on with life after a colon cancer diagnosis was far from easy. Crystal underwent surgeries to remove her bladder, right ovary, and uterus. She also endured the placement of both colostomy and urostomy bags. Adjusting to life afterward was daunting. The urostomy bag, in particular, brought anxiety about potential leaks in public, often triggering feelings of vulnerability and self-consciousness. However, Crystal realized that survival and quality of life trumped these fears.

Crystal’s mental health took significant hits throughout her experience with colon cancer, which weighed heavily on her. But it was during these dark times that she discovered the strength of her support system. Friends showed up, both emotionally and physically, breaking through the walls she had built around herself for years. She realized that accepting help wasn’t a sign of weakness but a testament to the deep connections she had with her loved ones.

Crystal’s story is a beacon for others facing similar challenges. She shares that while living with an ostomy bag can be tough, it’s not the end — it’s just another chapter. Her advice? Let people in, lean on your support system, and never underestimate the power of sharing your story.

Take a look at Crystal’s video to get into:

  • How she found strength after her devastating colon cancer diagnosis.
  • Why accepting help changed Crystal’s mental health for the better.
  • Living with a urostomy bag: her real talk on the challenges and triumphs.
  • The signs Crystal missed — could you recognize them?
  • From isolation to connection: How colon cancer reshaped her relationships.

  • Name:
    • Crystal W.
  • Age at Diagnosis:
    • 36
  • Diagnosis:
    • Colon Cancer
  • Symptoms:
    • Blood in stool
    • Intermittent severe lower abdominal pain
    • Urinary tract infection (UTI) with strong odor
    • Fistula
  • Treatments:
    • Surgeries: cystectomy, oophorectomy, hysterectomy
    • Chemotherapy
Crystal W. colon cancer
Crystal W. colon cancer
Crystal W. colon cancer
Crystal W. colon cancer

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Crystal W. colon cancer
Thank you for sharing your story, Crystal!

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More Colon Cancer Stories

 
Starr S. colon cancer

Starr S., Colon Cancer, Stage 4 (Metastatic)



Symptom: Abdominal pain

Treatments: Chemotherapy, surgeries (colectomy, hepatectomy, lymphadenectomy), targeted therapy
Jackson L. stage 4 colon cancer with BRAF mutation

Jackson L., BRAF Mutation Colon Cancer, Stage 4



Symptoms: Severe stomach pain, fatigue, lack of motivation, anemia, blood in stool, thinning stool

Treatments: Surgeries (emergency bowel obstruction surgery with temporary colostomy, possibility of HIPEC in 2026), chemotherapy, immunotherapy

Heather C. stage 4 colon cancer

Heather C., Colon Cancer, Stage 4 (Metastatic)



Symptoms: Severe bloating, indigestion, vomiting, rectal bleeding

Treatments: Chemotherapy, surgery (liver transplant, upcoming)
Nicole S. stage 3 colon cancer

Nicole S., Colon Cancer, Stage 3



Symptoms: Dull lower abdominal pain that sharpened and was focused on the lower left side, appearance of dark blood in stool, difficulty retaining food due to near-complete blockage of sigmoid colon

Treatments: Surgery (colectomy), chemotherapy
Ian D. stage 3C colon cancer

Ian D., Colon Cancer, Stage 3C



Symptoms: Fatigue, unusual blood test results during annual physical, blood in stool

Treatments: Surgery (partial colectomy), chemotherapy, clinical trial
Lauren G. stage 4 colon cancer

Lauren G., Colon Cancer, Stage 4



Symptoms: Frequent urges to have bowel movements (up to 27x/day), incomplete evacuation, abdominal bloating
Treatments: Surgeries (colectomy, colostomy bag placement), chemotherapy

Categories
Chemotherapy Colon Colorectal Patient Stories Surgery Treatments

Chloe’s Stage 3 Colon Cancer Story: It Started with Bloating

Living Boldly After Stage 3 Colon Cancer: Chloe’s Empowering Message

In early 2024, Chloe was unexpectedly diagnosed with stage 3 colon cancer (adenocarcinoma of the colon) after suffering from symptoms of bloating and other stomach issues. Later on she began to experience weight loss, fatigue, lack of appetite, and abdominal swelling. However, these symptoms were dismissed as effects of her pre-existing anemia. She regularly consulted her general practitioner throughout December to have tests conducted. They only revealed minor infections but didn’t uncover the underlying issue. Moreover, her health continued to worsen.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Chloe paid a visit to the local infirmary, where doctors subsequently discovered and were concerned about high ketone levels in her urine. However, she was still treated for gastroenteritis. Her symptoms persisted, leading her mother to realize that her condition was far more severe than everyone thought and insist on a hospital visit. Significantly, a CT scan revealed a mass in her large bowel and multiple perforations. Doctors accordingly performed emergency surgery, and Chloe woke up afterward with a stoma bag, an unexpected and significant adjustment for her.

The diagnosis was shocking: Chloe’s condition was stage 3 colon cancer. Furthermore, these findings were exacerbated by a rare genetic disorder, familial adenomatous polyposis (FAP), which had gone undetected until that point. This gene caused polyps to clump together and form a large tumor. Following her surgery, Chloe subsequently underwent four rounds of chemotherapy over three months, with sessions involving both IV and oral forms of treatment. Thankfully, post-treatment scans showed no remaining cancer cells. By June 2024, Chloe was finally declared in remission.

Emotionally, Chloe found the process challenging. She consequently had to grapple with the stigma of having cancer as a young individual and adjust to life with a stoma. She concurrently navigated the mental health impacts of her stage 3 colon cancer and bloating, including PTSD and anxiety, around hospitals through counseling and support from loved ones.

Watch Chloe’s video to learn more about:

  • How to embrace a bolder outlook on life and seize opportunities that you may once have feared.
  • The importance of listening to your body.
  • Why it’s crucial for you to persist with medical inquiries if you suspect stage 3 colon cancer and bloating.
  • How to avoid letting feelings of embarrassment stop you from seeking help.

  • Name: 
    • Chloe W.
  • Age at Diagnosis:
    • 25
  • Diagnosis:
    • Colon Cancer (Adenocarcinoma of the Colon)
  • Staging:
    • Stage 3
  • Symptoms:
    • Severe abdominal bloating due to stage 3 colon cancer
    • Weight loss
    • Lack of appetite
    • Fatigue
    • Vomiting
    • High ketone levels in urine
  • Treatments:
    • Surgery
    • Chemotherapy

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider for treatment decisions.


Thank you for sharing your story, Chloe!

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More Colon Cancer Stories

 
Starr S. colon cancer

Starr S., Colon Cancer, Stage 4 (Metastatic)



Symptom: Abdominal pain

Treatments: Chemotherapy, surgeries (colectomy, hepatectomy, lymphadenectomy), targeted therapy
Jackson L. stage 4 colon cancer with BRAF mutation

Jackson L., BRAF Mutation Colon Cancer, Stage 4



Symptoms: Severe stomach pain, fatigue, lack of motivation, anemia, blood in stool, thinning stool

Treatments: Surgeries (emergency bowel obstruction surgery with temporary colostomy, possibility of HIPEC in 2026), chemotherapy, immunotherapy

Heather C. stage 4 colon cancer

Heather C., Colon Cancer, Stage 4 (Metastatic)



Symptoms: Severe bloating, indigestion, vomiting, rectal bleeding

Treatments: Chemotherapy, surgery (liver transplant, upcoming)
Nicole S. stage 3 colon cancer

Nicole S., Colon Cancer, Stage 3



Symptoms: Dull lower abdominal pain that sharpened and was focused on the lower left side, appearance of dark blood in stool, difficulty retaining food due to near-complete blockage of sigmoid colon

Treatments: Surgery (colectomy), chemotherapy
Ian D. stage 3C colon cancer

Ian D., Colon Cancer, Stage 3C



Symptoms: Fatigue, unusual blood test results during annual physical, blood in stool

Treatments: Surgery (partial colectomy), chemotherapy, clinical trial
Lauren G. stage 4 colon cancer

Lauren G., Colon Cancer, Stage 4



Symptoms: Frequent urges to have bowel movements (up to 27x/day), incomplete evacuation, abdominal bloating
Treatments: Surgeries (colectomy, colostomy bag placement), chemotherapy

Categories
Chemotherapy Colorectal Patient Stories Radiation Therapy Treatments

Early Testing Could Have Changed My Colorectal Cancer Story—Don’t Ignore the Signs

Early Testing Could Have Changed My Colorectal Cancer Story—Don’t Ignore the Signs

Nicola is a mother and anesthetic technician who loves traveling and spending time with her dogs, cat, and 2 children. In 2020, doctors diagnosed her with colorectal cancer. By the end of 2021, she learned that her colorectal cancer had become stage 4 and had metastasized to her brain. After undergoing a craniotomy, she has been in remission for 9 months.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Initially, Nicola experienced rectal bleeding. Doctors thought it was nothing more than hemorrhoids, but eventually, they conducted a colonoscopy. The surgeon found a 4-cm tumor and performed surgery just before Christmas, and also discovered that 4 of her lymph nodes tested positive for cancer cells. She then underwent adjuvant chemotherapy, which is treatment to keep cancer from returning.

With no significant family history of cancer, although her father also had bowel cancer, Nicola’s case involved a non-BRAF, wild-type adenocarcinoma. Her chemotherapy initially made her very sick, leading to weight loss and hospitalization. Eventually, she switched treatments and completed 5 rounds before doctors declared her NED (No Evidence of Disease) for her stage 4 colorectal cancer.

Months later, Nicola began to experience symptoms such as profound migraines and vision changes. These led to the discovery of a large brain tumor; her original cancer had metastasized to her brain. She promptly underwent a craniotomy, which was deemed successful. Afterward, she received targeted radiation therapy, which thankfully did not significantly affect her vision.

Nicola remains under high-risk monitoring. She advocates for personal vigilance and early testing, sharing that she might have pushed for a colonoscopy sooner despite her age, had she known that younger people can get colorectal cancer. Now, she focuses on being present with her family and friends, and cherishes each day with gratitude.


  • Name: 
    • Nicola H.
  • Diagnosis:
    • Colorectal cancer 2020
    • brain cancer
  • Staging:
    • Initial stage 3 in 2020
    • Metastasized to her brain in 2021 (stage 4)
  • Initial Symptoms:
    • Bleeding, pain (Colorectal cancer)
    • Focal migraines (Brain cancer)
  • Treatments:
    • Chemotherapy (Colorectal cancer)
    • Radiation (Brain cancer)

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider for treatment decisions.


Thank you for sharing your story, Nicola!

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Related Cancer Stories

More Colorectal Cancer Stories

Lindsay

Lindsay D., Colon Cancer, Stage 4



Symptoms: Lump in pelvic area, funny-smelling food, weight loss
Treatment: Chemotherapy, colectomy (surgery)

Categories
Colorectal Patient Stories Surgery Treatments

Rashawn’s Stage 1 Colorectal Cancer Story

Rashawn’s Stage 1 Colorectal Cancer Story

Rashawn, a mother of 4 from Augusta, GA, is a 10-year stage 1 colorectal cancer survivor who celebrates her journey to health each year on April 28. Despite initial struggles, she maintains a 4.0 GPA while pursuing middle grade education after years away from school.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Rashawn’s cancer story began in 2014, when persistent fatigue and blood in her stool led her to seek medical attention. A colonoscopy revealed a golf-ball-sized mass in her colon, which was later confirmed as cancer. Determined to attend her son’s graduation, Rashawn underwent surgery within weeks, during which doctors removed a significant portion of her colon as well as a large number of lymph nodes. Recovery was challenging but marked by resilience, with support from her family.

Rashawn faced emotional and mental challenges post-diagnosis of stage 1 colorectal cancer, including confusion, fear, anger, being diagnosed with a different kind of cancer, and a lack of readily available resources for colon cancer patients. The absence of support groups and tailored education at the time left her feeling isolated. Over time, she developed strength through self-advocacy, faith, and a desire to help others. Rashawn emphasizes the importance of knowing one’s body and seeking prompt medical attention when something feels off, as delayed action can have severe consequences.

Today, Rashawn continues to manage her health vigilantly, undergoing regular screenings and addressing any concerns immediately. She attributes her survival to her proactive approach and strong support system, which included her mother, a breast cancer survivor, and her extended family. Despite lingering anxiety about recurrence, Rashawn finds purpose in sharing her story to raise awareness about colon cancer and empower others to prioritize their health.

Rashawn’s recovery journey also involved adapting to physical changes, such as altered taste buds and dietary habits. While challenges linger, she finds joy in helping others and living a life of gratitude. Rashawn practices her faith daily, expressing thanks and paying her blessings forward by assisting others. Her transformation into her best self over the last decade exemplifies resilience, faith, and purpose.

Rashawn advises others to trust their instincts, know their bodies, and seek timely medical care. By doing so, she believes more lives can be saved, and individuals can live fuller lives despite adversity.


  • Name:
    • Rashawn M.
  • Diagnosis:
    • Colorectal cancer
  • Staging:
    • Stage 1
  • Age at Diagnosis:
    • 37
  • Initial Symptoms:
    • Extreme fatigue
    • Blood in stool
  • Treatment:
    • Surgery

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Thank you for sharing your story, Rashawn!

Inspired by Rashawn's story?

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Related Cancer Stories

More Colorectal Cancer Stories
Monica D. feature profile

Monica D., Colorectal Cancer, Stage 1



Symptoms: None; caught at a routine colonoscopy
Treatment: Surgery (low anterior resection with temporary diverting ileostomy)

Edie H. feature profile

Edie H., Colorectal Cancer, Stage 3B



Symptom: Chronic constipation

Treatments: Chemotherapy, radiation, surgeries (lower anterior resection & temporary ileostomy)
Shayla L. feature profile

Shayla L., Colorectal Cancer, Stage 4



Symptoms: Stomach sensitivity, food intolerances, exhaustion, blood in stool
Treatments: Chemotherapy, surgery (hepatectomy)
Tracy R. feature profile

Tracy R., Colorectal Cancer, Stage 2B



Symptoms: Bloating and inflammation, heaviness in the rectum, intermittent rectal bleeding, fatigue
Treatments: Chemotherapy, radiation, surgery
Paula C. feature profile

Paula C., Colorectal Cancer, Stage 3



Symptoms: Painful gas, irregular bowel movements, blood in stool, anemia, severe pain, weight loss, fainting spells
Treatment: Surgery (tumor resection)
Nick S. feature profile

Nick S., Colorectal Cancer, Stage 4A



Symptoms: Change in bowel habits, size & consistency, blood in stool, abdominal pain, fatigue
Treatments: Surgery (sigmoid colectomy), chemotherapy (capecitabine, oxaliplatin), immunotherapy (bevacizumab, pembrolizumab)

Categories
Chemotherapy Clinical Trials Colon Colorectal Eloxatin (oxaliplatin) FOLFIRI (folinic acid, fluorouracil, irinotecan) FOLFOX (folinic acid, fluorouracil, oxaliplatin) Immunotherapy Patient Stories Targeted Therapy Treatments

Emily’s Stage 4 Colon Cancer Story

Emily’s Stage 4 Colon Cancer Story

Emily, a 32-year-old from Alabama, was diagnosed with stage 4 colon cancer at age 27, despite having led an active and healthy lifestyle since her youth. Initially, she experienced abdominal pain and blood in her stool, which led to a life-changing ER visit. Doctors found a tumor in her colon, determined that it was cancerous, and also found that it had already spread to her lymph nodes. This discovery began a grueling series of surgeries, chemotherapy, and setbacks, including bowel obstructions and pancreatitis.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Emily endured multiple chemotherapy regimens with debilitating side effects like neuropathy, nausea, fatigue, and early menopause. Despite these challenges, her faith and determination kept her strong. When standard treatments failed, she turned to immunotherapy and clinical trials at Dana-Farber Cancer Institute. Although some therapies stopped working, she found hope in a clinical trial medicine that reduced her lung tumors by 20%. Despite the trial’s discontinuation, the treatment remains available to her, for which she feels immense gratitude.

Throughout her stage 4 colon cancer journey, Emily and her husband have relied on their faith, community, and a desire to help others. Recognizing the emotional and physical toll of cancer, they founded Fighting with Hope, a nonprofit that sends free chemo care boxes to patients worldwide. These boxes contain over 20 thoughtfully chosen items, such as blankets, ginger candies, and other sweets to help with port flushes, alongside handwritten notes of encouragement. With support from volunteers and media coverage, the organization has delivered just over 1,000 boxes to date.

Emily’s advocacy also emphasizes the importance of early detection. Reflecting on her missed diagnosis due to her young age, she urges healthcare professionals and patients alike to remain vigilant.

Despite ongoing treatments and the unpredictable nature of cancer, Emily remains a beacon of hope. Her faith provides her with peace and strength, enabling her to inspire others through her story and nonprofit work. She advises fellow patients to fight relentlessly, embrace their support systems, and accept help when needed.

Emily’s mission goes beyond her personal battle. She hopes her journey demonstrates the power of resilience, community, and faith in facing life’s greatest challenges. Through her advocacy, she continues to bring light and support to countless individuals navigating the trials of cancer.


  • Name:
    • Emily K.
  • Diagnosis:
    • Colon cancer
  • Staging:
    • Stage 4
  • Age at Diagnosis:
    • 27
  • Symptoms:
    • Abdominal pain
    • Blood in stool
  • Treatments:
    • Surgery
    • Immunotherapy
    • Targeted therapy
    • Clinical trials

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Thank you for sharing your story, Emily!

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Related Cancer Stories

More Colon Cancer Stories
 
Raquel A. feature profile

Raquel A., Colorectal Cancer, Stage 4



Symptoms: Frequent bowel movements, pin-thin stools, mild red blood in stool
Treatment: Chemotherapy

Steve S., Colorectal Cancer, Stage 4



Symptoms: Blood in stool, changes in bowel habits, feeling gassy and bloated

Treatments: Surgery, chemotherapy, monoclonal antibody, liver transplant
Jessica T. feature profile

Jessica T., BRAF Mutation Colon Cancer, Stage 4



Symptoms: Severe stomach cramps, diarrhea, vomiting, anemia (discovered later)

Treatments: Surgery (hemicolectomy), chemotherapy

Jennifer T. feature profile

Jennifer T., Colon Cancer, Stage 4



Symptoms: Weight loss, coughing, vomiting, sciatica pain, fatigue

Treatments: Surgeries (colectomy, lung wedge resection on both lungs), chemotherapy, immunotherapy
Kasey S. feature profile

Kasey S., Colon Cancer, Stage 4



Symptoms: Extreme abdominal cramping, mucus in stool, rectal bleeding, black stool, fatigue, weight fluctuations, skin issues (guttate psoriasis)
Treatments: Surgeries (colectomy & salpingectomy), chemotherapy

Categories
Chemotherapy Colon Colorectal FOLFOX (folinic acid, fluorouracil, oxaliplatin) Patient Stories Surgery Treatments

Rachael’s Stage 4 Sigmoid Colon Cancer Story

Rachael’s Stage 4 Sigmoid Colon Cancer Story

Rachael, a 34-year-old mother of three, shares her experience with stage 4 sigmoid colon cancer, which has spread to her ovaries and liver. Her journey began unexpectedly when she visited the emergency room due to severe stomach pain. After undergoing a CT scan, she was abruptly informed of her diagnosis, a moment that left her in disbelief and shock. Despite this, Rachael quickly shifted her focus to taking control of her treatment, scheduling procedures like a liver biopsy and partial colectomy. She underwent emergency surgery with the help of robotic technology, which included a total hysterectomy and the placement of a colostomy bag.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Rachael describes the difficult emotional decision to undergo a hysterectomy, knowing it meant she would no longer be able to have more children. However, she prioritized her health and the need to be there for her 3 children. She talks about her intense chemotherapy regimen, which was both physically and mentally challenging. One of her greatest fears was not being able to be the same mother to her children during this time, but with the support of family and friends, she was able to manage her treatments and maintain a sense of normalcy for her kids.

Rachael reflects on the strange and sudden symptoms she experienced before her diagnosis of sigmoid colon cancer, including the loss of taste, appetite, and intense stomach pain. She also recalls how her dog seemed to sense something was wrong, constantly staying close to her in the months leading up to her diagnosis.

Rachael expresses a determination to keep moving forward despite the numbness and emotional difficulty of the situation. After completing her chemotherapy, she now faces the uncertainty of whether her tumors will grow again. She is awaiting further scans and potential liver surgery as well as HIPEC treatments. While she feels anxious about the future, she remains resilient and has accepted that she cannot control everything. She now possesses a sense of peace and a more positive outlook on life.

Despite moments of frustration and asking, “Why me?”, Rachael has found strength in her acceptance of her condition. She is grateful for her family, friends, and support system, and continues to focus on spending quality time with her children, making the most of the present while preparing for any challenges that may lie ahead.


  • Name:
    • Rachael M.
  • Age at Diagnosis:
    • 33
  • Diagnosis:
    • Colorectal cancer
  • Staging:
    • Stage 4
  • Initial Symptoms:
    • Loss of sense of taste and smell
    • Loss of appetite and vomiting
    • Stomach pain
    • Bloating
    • Headaches
    • Fatigue
  • Treatment:
    • Surgery (total hysterectomy, sigmoid colon removed, tumor removed in colon, stoma configuration, port placement)
    • Chemotherapy

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Thank you for sharing your story, Rachael!

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Related Cancer Stories

More Colorectal Cancer Stories
Lindsay

Lindsay D., Colon Cancer, Stage 4



Symptoms: Lump in pelvic area, funny-smelling food, weight loss
Treatment: Chemotherapy, colectomy (surgery)

Categories
Cetuximab Chemotherapy Colectomy Colon Colorectal FOLFIRI (folinic acid, fluorouracil, irinotecan) FOLFOX (folinic acid, fluorouracil, oxaliplatin) Immunotherapy Lung wedge resection Metastatic Patient Stories Surgery Treatments

Jennifer’s Stage 4 Colon Story

Jennifer’s Stage 4 Colon Cancer Story

Jennifer was diagnosed with early onset colon cancer in 2017 (stage 3) at the age of 23, which progressed to stage 4 in 2020. Her diagnosis came after an iron deficiency flagged by her endocrinologist led to further testing and a colonoscopy revealing a 5 cm tumor. Before her diagnosis, she experienced scattered symptoms including weight loss, coughing, vomiting, sciatica pain, and persistent fatigue, which were initially attributed to depression, stress, and other conditions.

Interviewed by: Taylor Scheib
Edited by: Katrina Villareal

Treatment began with a colectomy in December 2017, followed by six months of FOLFOX chemotherapy. Despite an initial remission, Jennifer’s cancer returned in her lungs in 2020, discovered during post-stroke scans after a medical complication left her blind in one eye. Subsequent treatments included FOLFIRI chemotherapy, cetuximab immunotherapy, and two lung wedge resections to remove nodules.

Jennifer T. feature profile

Jennifer candidly discusses the challenges of navigating complex medical care that came with her early onset colon cancer diagnosis, including periods of insufficient oncology support, medical advocacy struggles, and emotional tolls. She credits her recovery to persistence, family support, and pushing for surgeries against her oncologist’s preference for extended chemotherapy. A wake-up call from her health crises led her to improve her lifestyle, take control of her medical care, and stay deeply involved in her treatment plans.

Reflecting on her experiences, Jennifer emphasizes the importance of advocating for oneself, accepting past circumstances, and maintaining a focus on the present. Her message to others is clear: trust your medical team but actively participate in decisions, avoid panic over statistics, and focus on actionable steps toward treatment and recovery.


  • Name: Jennifer T.
  • Age at Diagnosis:
    • 23
  • Diagnosis:
    • Colon Cancer
  • Staging:
    • Stage 3 (2017)
    • Stage 4 (2020)
  • Symptoms:
    • Weight loss
    • Coughing
    • Vomiting
    • Sciatica pain
    • Fatigue
  • Treatments:
    • Surgeries: colectomy, lung wedge resection on both lungs
    • Chemotherapy: FOLFOX, FOLFIRI
    • Immunotherapy: cetuximab
Jennifer T.
Jennifer T.
Jennifer T.
Jennifer T.
Jennifer T.
Jennifer T.
Jennifer T.

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Jennifer T. feature profile
Thank you for sharing your story, Jennifer!

Inspired by Jennifer's story?

Share your story, too!


More Metastatic Colon Cancer Stories

 
Raquel A. feature profile

Raquel A., Colorectal Cancer, Stage 4



Symptoms: Frequent bowel movements, pin-thin stools, mild red blood in stool
Treatment: Chemotherapy

Steve S., Colorectal Cancer, Stage 4



Symptoms: Blood in stool, changes in bowel habits, feeling gassy and bloated

Treatments: Surgery, chemotherapy, monoclonal antibody, liver transplant
Jessica T. feature profile

Jessica T., BRAF Mutation Colon Cancer, Stage 4



Symptoms: Severe stomach cramps, diarrhea, vomiting, anemia (discovered later)

Treatments: Surgery (hemicolectomy), chemotherapy

Jennifer T. feature profile

Jennifer T., Colon Cancer, Stage 4



Symptoms: Weight loss, coughing, vomiting, sciatica pain, fatigue

Treatments: Surgeries (colectomy, lung wedge resection on both lungs), chemotherapy, immunotherapy
Kasey S. feature profile

Kasey S., Colon Cancer, Stage 4



Symptoms: Extreme abdominal cramping, mucus in stool, rectal bleeding, black stool, fatigue, weight fluctuations, skin issues (guttate psoriasis)
Treatments: Surgeries (colectomy & salpingectomy), chemotherapy


Categories
Chemotherapy Colorectal Patient Stories Radiation Therapy Rectal Surgery Treatments

Roshonda’s Stage 4 Rectal Cancer Story

Roshonda’s Stage 4 Rectal Cancer Story

Roshonda shares her story as an “ostomy warrior” after she was diagnosed with rectal cancer in 2022. Her initial symptoms included blood in her stool and a sensation of incomplete bowel movements in 2021. When she first visited a doctor, she attributed the symptoms to hemorrhoids. As her symptoms progressed, including seeing blood after sexual activity and worsening discomfort, she switched to Medicaid and a new healthcare provider, eventually leading to a colonoscopy in March 2022. The procedure revealed a mass and 3 polyps in her rectum, resulting in a rectal cancer diagnosis that devastated her, as memories of her late father’s battle with cancer resurfaced. She also had a spot on her lung which brought her diagnosis to stage 4.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Following her diagnosis, Roshonda met her team of specialists and began 6 weeks of daily radiation and oral chemotherapy. Despite the challenges, including burning pain, skin darkening, and intense discomfort, she persevered. Unfortunately, she lost her longtime job, and her unemployment benefits ended shortly after her diagnosis, complicating her financial situation. Thankfully, her mother and grandmother provided support, covering bills and easing some of the burden.

Despite the intense treatment, Roshonda’s tumor did not initially shrink enough. Her oncologist advised further treatment with intravenous chemotherapy, which involved 8 sessions over 4 months. These sessions were grueling, leaving her nauseated and exhausted. Reflecting on the mental toll, Roshonda stresses the importance of maintaining a positive outlook, which she believes helps many cancer patients manage their journey.

Facing surgery to remove her rectum and anus due to the tumor’s location, Roshonda had to decide between keeping the anal area, risking potential recurrence, or opting for a complete removal with a lifelong colostomy bag. She chose the latter, enduring significant pain after the procedure, with limited mobility and initial difficulty sitting.

Roshonda joined an online ostomy support group before surgery, learning from others’ experiences and finding comfort in a community of people facing similar challenges. This network has been invaluable, especially since she is the only one in her family with an ostomy bag.

Sharing her rectal cancer journey on TikTok and Facebook, Roshonda aims to raise awareness about colorectal cancer, particularly within the Black community, which faces higher incidence rates. She encourages early screenings and prompt medical attention for symptoms. Gospel music and faith have helped her find peace, especially a song that resonated deeply with her, helping her surrender her worries before surgery.

Adjusting to life with a colostomy bag, Roshonda emphasizes listening to her body and finding what works best for her. Though the journey has been painful and challenging, she remains grateful for her support network, faith, and the resilience she’s developed throughout her battle.


  • Name:
    • Roshonda C.
  • Age at Diagnosis:
    • 37
  • Diagnosis:
    • Rectal cancer
  • Staging:
    • Stage 4
  • Initial Symptoms:
    • Blood in stool
    • Blood from rectum after intercourse
    • Sensation of incomplete bowel movements
  • Treatment:
    • Chemotherapy
    • Surgery
    • Radiation

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Thank you for sharing your story, Roshonda!

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Share your story, too!


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Symptoms: Changes in bowel movements, blood in stool, abdominal pain, back pain, difficulty sitting comfortably, constipation, feeling of incomplete evacuation (as if some stool remained after bowel movements), mucus-like stool consistency, bloating

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Treatments: Chemoradiation (for rectal cancer), surgery (ileostomy, combined bowel and kidney surgery), immunotherapy (for kidney cancer)

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Categories
Chemotherapy Colorectal CRC Hepatectomy Patient Stories Surgery Treatments

Shayla’s Metastatic Colorectal Cancer Story

Shayla’s Metastatic Colorectal Cancer Story

Interviewed by: Nikki Murphy
Edited by: Katrina Villareal

Shayla L. feature profile

Shayla was diagnosed with metastatic colorectal cancer at 33 years old after years of experiencing unexplained digestive issues. Initially, symptoms like stomach sensitivity, exhaustion, and food intolerances were attributed to a sensitive stomach. Over time, she sought medical attention, including multiple gastroenterologist consultations but received inconclusive diagnoses. She was diagnosed with celiac disease, but despite cutting out gluten, she continued to feel unwell.

After more months of fatigue, Shayla noticed blood in her stool, which persisted for several weeks. When her husband insisted she seek medical help, a colonoscopy revealed polyps. While initially told that they weren’t cancerous, a biopsy later confirmed that one was malignant. Further tests revealed lesions in her liver and lungs, prompting additional biopsies. The lesions in her lungs were clear, but the cancer had metastasized to her liver, resulting in a stage 4 colorectal cancer diagnosis.

Her treatment plan included four rounds of chemotherapy, followed by a hepatectomy or liver resection to remove 25% of her liver. After the surgery, Shayla began her chemotherapy again, with plans for more rounds to finish her treatment. Although she initially struggled with side effects, such as hot flashes, nausea, and fatigue, her doctors adjusted her treatment plan to help her manage better. However, cold sensitivity, neuropathy, and physical weakness persisted.

Despite these challenges, Shayla remained focused on her healing and recovery, even as the emotional toll of her diagnosis began to weigh on her mental health. She shared that the isolation during recovery and the struggle with seeing her children react to her illness was particularly difficult.

Shayla advocates for others to take their symptoms seriously, stressing the rising rates of colorectal cancer in younger adults. She encourages others to seek second opinions and advocate for themselves if they’re not satisfied with their medical care. Through her experience, she has seen the importance of a strong support network and the need for proactive health care, urging others to catch cancer early to increase treatment success.


  • Name: Shayla L.
  • Age at Diagnosis:
    • 33
  • Diagnosis:
    • Colorectal Cancer
  • Staging:
    • Stage 4
  • Symptoms:
    • Stomach sensitivity
    • Food intolerances
    • Exhaustion
    • Blood in stool
  • Treatments:
    • Chemotherapy
    • Surgery: hepatectomy  (liver resection)
Shayla L.
Shayla L.
Shayla L.
Shayla L.
Shayla L.
Shayla L.
Shayla L.

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story.


Shayla L. feature profile
Thank you for sharing your story, Shayla!

Inspired by Shayla's story?

Share your story, too!


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Symptoms: None; caught at a routine colonoscopy
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Symptom: Chronic constipation

Treatments: Chemotherapy, radiation, surgeries (lower anterior resection & temporary ileostomy)
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Symptoms: Change in bowel habits, size & consistency, blood in stool, abdominal pain, fatigue
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