Tag: colectomy

What Does Crohn’s Disease Look Like? Kristin: Body Positivity!

Post author By Katrina Villareal
Post date June 12, 2025
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Kristen Opens Up About Crohn’s Disease, Her Ostomy, and Owning Her Story

Kristen was diagnosed with Crohn’s disease at just 12 years old. For anyone wondering what does Crohn’s disease look like, her story offers a vivid picture. Living with this chronic illness so young meant navigating growing pains and medical challenges simultaneously. She talks about how her world shifted from being a sports-loving, active kid to someone grappling with daily pain, blood in her stool, and emotional isolation. Her story is a heartfelt reminder that chronic illness changes more than your body — it affects how you relate to the world.

Interviewed by: Taylor Scheib
Edited by: Katrina Villareal

Throughout her teenage years, Kristen faced mounting symptoms and emotional struggles. By high school, her condition had worsened significantly. She bounced between treatments and doctors, often feeling let down. When she was in college, everything changed during an appointment when a doctor told her she needed an ostomy.

With her health deteriorating, Kristen agreed. That surgery, though overwhelming and unknown to her at the time, saved her life. She had no prior education about ostomy care and struggled initially, but she and her mom figured it out together.

Kristen is honest about the mental health toll of chronic illness, including medical PTSD and anxiety. She didn’t always advocate for herself, but she learned how to speak up. That shift empowered her. She realized that her voice mattered, especially when navigating multiple surgeries, including a total colectomy that made her ostomy permanent. While that decision was emotionally heavy, especially after being told it would be temporary, she eventually accepted it as necessary for her well-being.

Instead of letting shame or misinformation define her, Kristen started sharing her story online to educate and empower others. She uses Instagram as a blog, breaking stigmas around ostomy bags and showing the reality of life with one. She answers common questions about intimacy, product use, and body image. Kristen keeps it real but is always supportive, encouraging others to ask questions and never feel ashamed.

Body positivity plays a huge role in Kristen’s story. She’s chosen to love and appreciate her body for all it has endured. Even with an ostomy, she’s traveled the world, held full-time jobs, enjoys paddleboarding and rollerblading, and continues to thrive. She’s all about hope, mental health awareness, and creating inclusive spaces for people with invisible illnesses. Her message is clear: don’t be afraid to advocate for yourself, embrace your body, and know that even in the hardest moments, you’re not alone.

Watch Kristen’s video to find out more about her story:

What products she swears by for stoma care, and which ones she skips.
Her reaction when she found out that her ostomy, which she was initially told would be temporary, was going to be permanent.
What does Crohn’s disease look like and life with an ostomy, and how she lives fully and freely.
From hospital anxiety to medical PTSD, how Kristen’s mental health was impacted and how she’s healing.
How a single doctor changed Kristen’s entire life trajectory.

Name: Kristen F.
Age at Diagnosis:
- 12
Diagnosis:
- Crohn’s Disease
Symptoms:
- Fatigue
- Abdominal cramps
- Blood in stool
- Loss of appetite
- Frequent, painful bathroom visits
- Perianal disease (open wound)
- Mouth sores
- Joint pain
Treatments:
- Multiple medications
- Surgeries: Temporary ostomy, total colectomy (permanent ostomy), Barbie butt surgery (proctectomy)

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.

Thank you for sharing your story, Kristen!

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More Crohn’s & Colitis Stories

Kristen F., Crohn’s Disease (IBD)

Symptoms: Fatigue, abdominal cramps, blood in stool, loss of appetite, frequent and painful bathroom visits, perianal disease (open wound), mouth sores, joint pain

Treatments: Multiple medications, surgeries (temporary ostomy, total colectomy and permanent ostomy, Barbie butt surgery or proctectomy)

Jess G., Crohn’s Disease (IBD)

Symptoms: No appetite even when offered a favorite dessert, weight loss

Treatments: Steroids, blood transfusions, biologics, surgeries (colectomy, small bowel resection, colostomy)

Ariel D., Ulcerative Colitis (IBD)

Symptoms: Overactive bowel, heavy cramps in stomach area, abdominal pain

Treatment: Surgery (ileostomy)

Alli R., Ulcerative Colitis

Symptoms: Blood in stool, unexplained weight loss, stomach pain, constant defecation

Treatment: Surgery (ileostomy)

Sarah A., Ulcerative Colitis

Symptoms: Bowel irregularity, severe stomachaches, blood in stool

Treatments: Surgery (ostomy surgery), steroids, anti-inflammatory medication (mesalamine), biologic therapy

Dana D., Crohn’s Disease (IBD)

Symptoms: Abdominal pain, diarrhea, blood in stool

Treatments: Surgeries (colon resection, total proctocolectomy with end ileostomy,
abdominal perineal resection, myocutaneous flap), steroids, biologic therapy

Understanding IBS, IBD, and Colorectal Cancer Symptoms

Tags body positivity, colectomy, IBD, ostomy, ptsd

Ablation therapy Chemotherapy Colectomy Colon Colorectal Hepatectomy Patient Stories Surgery Treatments

Self-Advocacy and Stage 4 Colon Cancer: Jay’s Story

Post author By Chris Sanchez
Post date June 10, 2025
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June 10, 2025

Jay’s Path to Self-Advocacy and Healing Beyond Stage 4 Colon Cancer

Jay, an ex-athlete and father of three, was diagnosed with stage 4 colon cancer when he was 43. It all started with a symptom many might overlook: intermittent blood in his stool. But rather than dismiss it, Jay consulted his doctor. This touched off a series of medical tests. A CT scan and colonoscopy revealed a mass, marking the beginning of his life-altering experience.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Despite the shock, Jay embraced the process with resilience, navigating surgeries, chemotherapy, and countless medical procedures. His ordeal wasn’t just physical. The mental toll of living with stage 4 colon cancer reshaped his identity. He describes feeling like the sole survivor of a plane crash, grappling with survivor’s guilt as he watched fellow patients succumb to the disease.

This emotional weight prompted Jay to seek mental health support, helping him process not just survival but the loss and changes around him. He discovered that PTSD doesn’t only follow traumatic events like war — it can also stem from enduring a significant illness.

Throughout his treatment for stage 4 colon cancer, Jay focused on self-advocacy. He actively participated in treatment decisions and opted for advanced tests like the KRAS test to personalize his care. This approach to self-advocacy also meant embracing help from family and friends, acknowledging that support isn’t a sign of weakness but an integral part of healing. Jay noted that in his view, his wife and close family bore emotional burdens just as heavy as his own.

Physically, the long-term side effects of treatment linger. Jay describes his fatigue, altered taste sensations, and sensitivity to cold drinks— all reminders of what his body has been through. Yet, his mindset remains empowered. He stresses the importance of being active and cherishes the people who walked beside him, whether offering physical or emotional support.

Jay’s story isn’t just about surviving stage 4 colon cancer — it’s about what he did starting at his diagnosis. From the moment he received the news, Jay became a fierce advocate for his own care. He asked questions, sought out advanced testing, and made sure his voice was part of every treatment decision.

Watch Jay’s story and discover:

The importance of listening to your body
The role of self-advocacy in shaping a treatment path
The unexpected mental hurdles that can come from beating stage 4 colon cancer
Why accepting help is one of the strongest things you can do
How it might be possible to turn an unsettling diagnosis into a life of gratitude and self-awareness

Name:
- Jay W.
Age at Diagnosis:
- 43
Diagnosis:
- Colon Cancer
Staging:
- Stage 4
Symptom:
- Occasional presence of blood in stool
Treatments:
- Chemotherapy
- Surgery: installation of port and liver infusion pump, colectomy, hepatectomy, liver ablation, removal of liver infusion pump

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.

Thank you for sharing your story, Jay!

Inspired by Jay's story?

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Life Despite Stage 4 Colon Cancer: Albita’s Honest, Hopeful Story

Post author By Chris Sanchez
Post date April 25, 2025
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April 25, 2025

Living Fully with Stage 4 Colon Cancer: Albita’s Honest, Hopeful Story

When vibrant Albita noticed symptoms like stomach pain and blood in her stool back in 2019, she brushed them off, attributing them to stress, diet, and an active lifestyle. It wasn’t until 2024, at the age of 32, that she received the life-altering diagnosis: stage 4 colon cancer.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

Albita’s path to diagnosis was filled with delays due to fear, financial concerns, and misattribution of symptoms to conditions like irritable bowel syndrome (IBS). She experienced persistent weight gain in her midsection, fatigue, and worsening digestive issues. Despite hesitation, she eventually scheduled a colonoscopy, which revealed a tumor. Further scans showed metastases in her liver, confirming stage 4 colon cancer.

Albita’s reaction was a mix of shock and an odd sense of relief. Finally, there was a name for the mysterious health issues she had been facing. As a pharmacy technician, she understood medical jargon but found the reality of cancer overwhelming. Yet, her oncologist offered hope, emphasizing that stage 4 isn’t hopeless. Treatments are available, and many people continue to live full lives.

Albita underwent multiple treatments, including several rounds of chemotherapy, liver resections, and a colon resection with a hysterectomy. That’s when Stella entered her life — her ileostomy, which she’s learned to embrace. Living with an ileostomy has been an adjustment, reshaping her relationship with food, body image, and self-care. She now pays attention to her hydration, nutrient intake, and manages the daily logistics of having a stoma.

Despite the physical toll and side effects of her treatments — fatigue, brain fog, hair loss, and skin issues — Albita’s mindset remains her strongest asset. She acknowledges grief for the life she had before but finds strength in her growth. “I feel stronger as a human being,” she shares, highlighting how facing stage 4 colon cancer has revealed an inner resilience she never knew she had.

Albita’s message to others is clear: listen to your body. Don’t dismiss symptoms like persistent stomach pain, unusual weight changes, or blood in your stool. Early detection can make a significant difference. She also advocates for mental health support, therapy, and maintaining a positive mental attitude, which helps her navigate the emotional waves of living with cancer.

Watch Albita’s video to find out more about:

How important it is to listen to our bodies.
How a diagnosis of stage 4 colon cancer changed everything — and nothing — for her.
Albita’s powerful take on living with an ileostomy.
Why she named her stoma Stella, and other inspiring insights.
The symptoms Albita initially ignored that you shouldn’t.

Name:
- Albita G.
Age at Diagnosis:
- 32
Diagnosis:
- Colon Cancer
Staging:
- Stage 4
Symptoms:
- Blood in stool
- Pain during defecation
- Constant constipation
- Steady weight gain in the midsection despite exercising
Treatments:
- Surgeries: colectomy, hepatectomy, hysterectomy
- Chemotherapy
- Radiation

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.

Thank you for sharing your story, Albita!

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Edie’s Stage 3B Colorectal Cancer Story

Post author By Katrina Villareal
Post date February 21, 2025
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March 3, 2025

Edie’s Stage 3B Colorectal Cancer Story

Edie was diagnosed with stage 3B colorectal cancer at 52, after a positive Cologuard test and subsequent colonoscopy. Initially, she had experienced years of constipation but attributed it to various factors, like medication and scoliosis. When she turned 50, despite not having any risk factors or family history, her doctor recommended a Cologuard test, which came back positive. She initially dismissed it as a false alarm, but a follow-up colonoscopy revealed a mass, prompting further tests. Soon after, she was diagnosed with colorectal cancer, which required urgent treatment.

Interviewed by: Taylor Scheib
Edited by: Katrina Villareal

Edie’s treatment plan included chemotherapy and radiation, which began in April 2021. The chemotherapy was administered in eight rounds, spaced two weeks apart, to reduce cancer in her lymph nodes. She utilized a technique of icing her hands and feet during treatments to reduce the risk of neuropathy. Radiation therapy followed in September, involving daily sessions for six weeks. While Edie experienced some GI symptoms, the treatments were largely manageable.

Afterward, scans showed significant shrinkage of the tumor, leading to surgery in January 2022, which included a lower anterior resection and a temporary ileostomy. Unfortunately, the ileostomy was poorly formed, and Edie required a reversal seven weeks later. Following her surgery, Edie experienced a full recovery. The lymph nodes removed during surgery were negative for cancer and the tumor margins were clean. She continued with regular follow-up care, including scans and colonoscopies, all of which have returned clear since her treatment.

Edie emphasized the importance of screening and self-advocacy, as early detection can greatly improve treatment outcomes. She is also an advocate for colorectal cancer awareness, stressing the need for open conversations about the disease to reduce stigma. Throughout her treatment and recovery, Edie found solace in connecting with others who had cancer and building a supportive community for herself.

In terms of survivorship, Edie has adjusted to a new perspective on life, valuing the present moment and focusing on enjoying life rather than worrying about the future. She encourages others to give themselves grace and seek out support, especially from those who understand the emotional and physical challenges of cancer. Edie’s story highlights the importance of screening, early detection, and staying positive through difficult times.

Name: Edie H.
Age at Diagnosis:
- 52
Diagnosis:
- Colorectal Cancer
Staging:
- Stage 3B
Symptom:
- Chronic constipation
Treatments:
- Chemotherapy
- Radiation
- Surgeries: lower anterior resection & temporary ileostomy (reversed after 7 weeks)

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.

Thank you for sharing your story, Edie!

Inspired by Edie's story?

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Jennifer’s Stage 4 Colon Story

Post author By Katrina Villareal
Post date January 11, 2025
1 Comment on Jennifer’s Stage 4 Colon Story

January 11, 2025

Jennifer’s Stage 4 Colon Cancer Story

Jennifer was diagnosed with early onset colon cancer in 2017 (stage 3) at the age of 23, which progressed to stage 4 in 2020. Her diagnosis came after an iron deficiency flagged by her endocrinologist led to further testing and a colonoscopy revealing a 5 cm tumor. Before her diagnosis, she experienced scattered symptoms including weight loss, coughing, vomiting, sciatica pain, and persistent fatigue, which were initially attributed to depression, stress, and other conditions.

Interviewed by: Taylor Scheib
Edited by: Katrina Villareal

Treatment began with a colectomy in December 2017, followed by six months of FOLFOX chemotherapy. Despite an initial remission, Jennifer’s cancer returned in her lungs in 2020, discovered during post-stroke scans after a medical complication left her blind in one eye. Subsequent treatments included FOLFIRI chemotherapy, cetuximab immunotherapy, and two lung wedge resections to remove nodules.

Jennifer candidly discusses the challenges of navigating complex medical care that came with her early onset colon cancer diagnosis, including periods of insufficient oncology support, medical advocacy struggles, and emotional tolls. She credits her recovery to persistence, family support, and pushing for surgeries against her oncologist’s preference for extended chemotherapy. A wake-up call from her health crises led her to improve her lifestyle, take control of her medical care, and stay deeply involved in her treatment plans.

Reflecting on her experiences, Jennifer emphasizes the importance of advocating for oneself, accepting past circumstances, and maintaining a focus on the present. Her message to others is clear: trust your medical team but actively participate in decisions, avoid panic over statistics, and focus on actionable steps toward treatment and recovery.

Name: Jennifer T.
Age at Diagnosis:
- 23
Diagnosis:
- Colon Cancer
Staging:
- Stage 3 (2017)
- Stage 4 (2020)
Symptoms:
- Weight loss
- Coughing
- Vomiting
- Sciatica pain
- Fatigue
Treatments:
- Surgeries: colectomy, lung wedge resection on both lungs
- Chemotherapy: FOLFOX, FOLFIRI
- Immunotherapy: cetuximab