Between Visits: FAQs with Experts: Follicular Lymphoma

Demystifying “Incurable But Treatable” Follicular Lymphoma

A Patient-Led Guide to Follicular Lymphoma

The transition from a follicular lymphoma (FL) diagnosis to a place of confidence can feel overwhelming, especially when faced with terms like “slow-growing” and “incurable.”

This session of informal “Office Hours” is designed to bridge that gap, moving you from confusion to becoming an active agent in your own care. We tackle the common anxieties surrounding staging, the “watch and wait” period, and the timing of advanced therapies.

Move from overwhelmed to empowered as you listen in to leading experts answer patients’ most pressing questions.

Program Experts

Celeste Bello, MD
Hematologist-Oncologist, Senior Member of the Malignant Hematology Program
Moffitt Cancer Center, Tampa, FL

Stephanie Chuang
Non-Hodgkin Lymphoma Patient Advocate
Founder of The Patient Story

Program Topics

Why staging isn’t everything (and what actually matters): Discover why the specific type of lymphoma and how you actually feel are often more important indicators for your care plan.
The truth about “incurable” vs. “manageable”: Hear an expert explanation of how many patients live normal lifespans while managing FL like a chronic condition.
Finding peace in “watch and wait”: Understand the clinical reasons behind waiting and why “hitting it hard” early isn’t always the best path for your long-term health.
When to introduce advanced therapies (CAR T-cell therapy & bispecifics): Gain an actionable understanding of the “treatment ladder.”
The essential step of securing a specialist review: Walk away with a clear plan on getting a second opinion on your pathology (the laboratory study of your tissue) to ensure your diagnosis is 100% accurate before you begin treatment.

Program Partner

Thank you to Blood Cancer United for their partnership. They are here for you with information about clinical trials, resources, and dedicated support through their Information Specialists.

This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

This interview has been edited for clarity and length. The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story. This content does not replace professional medical advice.