Between Visits: FAQs with Experts: Waldenström

Demystifying Waldenström Macroglobulinemia (WM)

A Patient-Led Guide to Waldenström

Move from overwhelmed to empowered. Dr. Stephen Ansell answers your pressing questions on WM diagnosis, “watch and wait,” and the latest treatment options.

Move from overwhelmed to empowered as you listen in to leading experts answer patients’ most pressing questions.

Program Expert

Stephen Ansell, MD, PhD
Professor of Medicine, Department of Hematology
Mayo Clinic, Rochester, MN

Program Topics

The WM Identity: Understand why Waldenström’s is a “hybrid” cancer—sitting right between lymphoma and multiple myeloma—and why that matters for your diagnosis.
The “Watch and Wait” Strategy: Discover why doing nothing is sometimes the most powerful treatment choice, especially if you have MGUS (an asymptomatic protein abnormality).
Managing the Daily Impact: We break down how “thick blood” (hyperviscosity) affects your vision and thinking, and what you can do about it.
Partnering with Your Team: Learn how to use biomarker results—like MYD88 and CXCR4 (genetic markers that guide treatment)—to have more informed conversations with your oncologist.
Your Actionable Future: Get a clear look at the choice between time-limited infusions and long-term daily pills (BTK inhibitors) so you can choose what fits your lifestyle best.

Program Partner

Thank you to Blood Cancer United for their partnership. They are here for you with information about clinical trials, resources, and dedicated support through their Information Specialists.

This is not medical advice. Please consult with your healthcare provider to make informed treatment decisions.

This interview has been edited for clarity and length. The views and opinions expressed in this interview do not necessarily reflect those of The Patient Story. This content does not replace professional medical advice.