Categories
Chemotherapy Multiple Myeloma Patient Stories Radiation Therapy Smoldering Myeloma Targeted Therapies Treatments

Yolanda’s Multiple Myeloma Story

Yolanda B., Multiple Myeloma

Symptoms: Anemia, unusual craving for starchy food, ‘clicking’ sound produced by knees under certain circumstances (such as when walking up stairs)

Treatments: Radiation, chemotherapy, targeted therapy

Why Listening to Your Body Matters: Yolanda’s Multiple Myeloma Story

Yolanda has been navigating life with multiple myeloma since 2008. Before her diagnosis, she was immersed in the fast-paced fashion industry. Back then, she began noticing some odd symptoms, like a constant craving for starchy foods and her knee joints clicking when she moved. Cancer wasn’t even on her radar.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

It wasn’t until routine bloodwork revealed unusually high protein levels that Yolanda consulted a hematologist. This eventually led her to the Mayo Clinic where she received a diagnosis of smoldering myeloma, a stage that comes before active multiple myeloma. This was a pivotal moment, as it highlighted just how crucial it is to have a specialist who truly understands the disease. Thanks to an oncologist focusing on multiple myeloma, Yolanda’s knowledge about her condition grew significantly.

Yolanda then entered what’s called a “watch and wait” period. While it’s typically a year-long phase, for her, it stretched to five years before her myeloma became active and needed treatment. This phase brought its share of emotional ups and downs, along with the challenge of grasping all the medical details.

When it was time for treatment, Yolanda started with radiation and later moved on to chemotherapy and targeted therapy. The road wasn’t easy. Managing medication side effects was tough, but she eventually reached remission. Along the way, she became a strong advocate for herself, learning the importance of open communication with her doctors. She also discovered how beneficial regular exercise and staying active are in managing multiple myeloma.

Yolanda’s advice to others? Take a deep breath, stay engaged in your healthcare decisions, and focus on living well. She believes in speaking up during doctor’s appointments and stresses the value of having a supportive, knowledgeable medical team.

For Yolanda, multiple myeloma doesn’t define her life; it’s just one part of her story, and she’s determined to live it fully. Watch her video to learn more from her about:

  • The unexpected symptoms that led her to her multiple myeloma diagnosis.
  • How Yolanda’s stressful career masked signs of a serious condition.
  • Why having the right doctor made all the difference.
  • How Yolanda turned exercise into a powerful tool for managing her health.
  • Self-advocacy from someone who’s been through the ups and downs of multiple myeloma.

  • Name:
    • Yolanda B.
  • Age at Diagnosis:
    • 38
  • Diagnosis:
    • Multiple Myeloma
  • Symptoms:
    • Anemia
    • Unusual craving for starchy food
    • ‘Clicking’ sound produced by knees under certain circumstances (such as when walking up stairs)
  • Treatments:
    • Radiation
    • Chemotherapy
    • Targeted therapy

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.


Thank you for sharing your story, Yolanda!

Inspired by Yolanda's story?

Share your story, too!


More Multiple Myeloma Stories


Maui B., Smoldering Myeloma



Symptoms: Inflammatory eye disease, uterine bleeding

Treatment: Watch and wait; routine biopsies ands scans
...

Brad H., Smoldering High-Risk Multiple Myeloma



Symptoms: Abnormal kidney function (stage 2 kidney disease), mild anemia

Treatments: To be started at the time of interview
...
Yolanda B. multiple myeloma

Yolanda B., Multiple Myeloma



Symptoms: Anemia, unusual craving for starchy food, ‘clicking’ sound produced by knees under certain circumstances (such as when walking up stairs)

Treatments: Radiation, chemotherapy, targeted therapy
...
Clay

Clay D., Relapsed/Refractory Multiple Myeloma



Symptoms: Persistent kidney issues, nausea

Treatments: Chemotherapy (CyBorD, KRd, VDPace), radiation, stem cell transplant (autologous & allogeneic), targeted therapy (daratumumab), immunotherapy (elotuzumab)
...
Melissa

Melissa V., Multiple Myeloma, Stage 3



Symptoms: Frequent infections

Treatments: IVF treatment & chemotherapy (RVD) for 7 rounds
...

Elise D., Refractory Multiple Myeloma



Symptoms: Lower back pain, fractured sacrum

Treatments: CyBorD, Clinical trial of Xpovio (selinexor)+ Kyprolis (carfilzomib) + dexamethasone
...
Marti P multiple myeloma

Marti P., Multiple Myeloma, Stage 3



Symptoms: Dizziness, confusion, fatigue, vomiting, hives



Treatments: Chemotherapy (bortezomib & velcade), daratumumab/Darzalex, lenalidomide, revlimid, & stem cell transplant
...
Ray H. feature

Ray H., Multiple Myeloma, Stage 3



Symptoms: Hemorrhoids, low red blood cell count

Treatments: Immunotherapy, chemotherapy, stem cell transplant
...

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.