Multiple Myeloma Stories
Plus Newest Treatment Updates
Explore below for in-depth multiple myeloma stories from our patients who share everything from first symptoms to navigating life with cancer.
Also read our in-depth interviews with experienced myeloma experts who talk about the newest treatment for multiple myeloma.
Our Featured Story
Hip-Hop, Hope, and Health: Oya Gilbert’s Multiple Myeloma Story
Oya Gilbert had always been full of energy. A father, a hip-hop lover, and a man who rarely got sick. But in 2015, his body started sending him signals he couldn’t ignore. But for two years, doctors dismissed his symptoms as anxiety. Watch Oya’s story from misdiagnosis to myeloma advocacy.
Our Featured Expert Interview
Stories by Type
Explore our multiple myeloma stories below, where patients describe things like:
- First myeloma symptoms
- What treatments they underwent
- Living with multiple myeloma
Active myeloma
Typical myeloma
The majority of people diagnosed with myeloma fall under this category:
- IgG k (kappa)
- IgG λ (lambda)
- IgA k (kappa)
- IgA λ (lambda)
Light chain myeloma
It’s estimated that light chain myeloma makes up about 15% of all myeloma diagnoses. There are times when malignant plasma cells produce only the light chain component of the antibody. Patients diagnosed with these cases have what’s known as “light chain myeloma.”
Non-secretory myeloma
Inactive myeloma
Smoldering myeloma
Stories by Treatment
1st line treatment
Relapsed/refractory treatment
Multiple Myeloma Basics
“Multiple myeloma belongs to the group of diseases we think about when we think about blood cancers. Specifically, myeloma is a form of adult bone marrow cancer that comes about when plasma cells convert into malignant cells,” says Dr. Rafael Fonseca of Mayo Clinic.
Learn more about multiple myeloma
Multiple Myeloma Specialist Interviews
Hear directly from experienced myeloma oncologists and specialists. They talk about multiple myeloma in layman’s terms, describe the latest myeloma treatments, and what patients should be asking their doctors.
Dr. Blue on Improving Myeloma Care for Black Patients
Dr. Brandon Blue knew at a young age that he wanted to help people. Decades later, he’s done that and so much more, changing and saving the lives of people who’ve been diagnosed with cancer. Dr. Blue shares key strategies for better health care and saving lives, especially in Black communities impacted by multiple myeloma.
The Role of Bispecific Antibodies in the Treatment of Multiple Myeloma
In this conversation, patient advocate Jack Aiello speaks with Dr. Alfred Garfall, a hematologist at Penn Medicine.
They discuss the advancement of immunotherapy for multiple myeloma, the difference between CAR T-cell therapy & bispecific antibodies, and the role of bispecifics in the myeloma toolkit of immunotherapies.
Newest Treatment for Multiple Myeloma
Top myeloma specialist, Dr. Rafael Fonseca of Mayo Clinic, sits down with The Patient Story for a deep dive into the landscape of treatment for multiple myeloma, from first line treatment to relapsed/refractory treatment, emerging T-cell therapies, and the importance of clinical trials.
