Angela’s Stage 4 Leiomyosarcoma Story
Interviewed by: Nikki Murphy
Edited by: Chris Sanchez
Angela J., who has been diagnosed with uterine leiomyosarcoma, shares her experiences and challenges related to her illness. She provides a detailed account of her journey from the onset of symptoms to the current state of her health.
Angela describes how she first started experiencing irregular menstrual cycles in 2017. Over time, these cycles became progressively worse, accompanied by increased pain, heavier bleeding, and other symptoms. She sought medical help and was put on hormone treatments to manage the symptoms. Additionally, she underwent a uterine ablation in hopes of reducing the bleeding and controlling her condition. However, despite these efforts, the symptoms persisted and worsened over time.
In 2023, Angela’s condition deteriorated, leading to severe pain and significant weight gain. An emergency situation ensued, which required her to undergo surgery. It was only then that the doctors discovered that she had uterine leiomyosarcoma, a rare and aggressive form of cancer. This diagnosis marked a turning point in Angela’s journey, leading to a shift in treatment and care.
Following the diagnosis, Angela underwent chemotherapy. The chemotherapy regimen brought its own set of challenges, including difficult side effects. Despite these hardships, she received the positive news that her cancer had stabilized and is not currently progressing.
Angela shares her experience with the ongoing adjustments to her life post-diagnosis. She is currently on disability retirement, which has allowed her to focus more on personal interests and passions, such as painting, arts and crafts, and spending time with her grandchildren. She finds solace and joy in these creative activities, as well as in writing a book, which has become another outlet for her emotions and reflections during this period.
Angela expresses a sense of resilience and hope as she navigates her new reality. She expresses gratitude for her current stable condition, acknowledging the difficulties she has faced but also the strength she has found in creativity and family support.
- Name:
- Angela J.
- Diagnosis:
- Uterine leiomyosarcoma
- Age at Diagnosis:
- 46
- Staging:
- Stage 4
- Initial Symptoms:
- Pain in the left hip, thigh, back, and abdominal area
- Difficulty passing stools, alternating with diarrhea
- Nausea
- Swollen abdomen and stomach
- Feeling full quickly
- Rapid weight gain
- Treatment:
- Surgery (hysterectomy, partial salpingectomy)
- Chemotherapy
This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider for treatment decisions.
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