Support after a diagnosis

A DLBCL diagnosis is a lot. You don’t have to sort through it alone.

Feeling frozen, scared or unable to take anything in is normal. Free, trusted support is one message, click, or call away, with real people and reliable answers through Blood Cancer United.

Decisions can come quickly

Some cancers move quickly, so decisions can come sooner than you expect. You may have made a bunch already without the time to even process.

It’s okay that processing it all takes time – the DLBCL kit can help

Our DLBCL Patient Kit was designed by patients and care partners for patients and care partners. You’ll find valuable resources whether you were just diagnosed, dealing with the next step, or managing the long-term impacts of a diagnosis and treatment.

Your Free DLBCL Toolkit

10 printable pages of test explainers, a treatment cycle tracker, and questions to bring to every appointment.

Toolkit page: My Treatment Cycle tracker
Toolkit page: Your First Treatment, Explained
Toolkit page: The Tests That Shape Your Plan
Cover of Partnering Through DLBCL, a treatment toolkit for patients and the people beside them

Need more? Start with whatever feels manageable.

Used by thousands of patients each year, Blood cancer Information Specialists are U.S.-based, highly-trained and licensed oncology social workers and nurses who are ready to help you or your loved one.

Partner Resources

Talk with an oncology nurse or social worker

Information Specialists help you make sense of a diagnosis, think through questions for your doctor, and find financial and emotional support.

  • Free
  • Confidential
  • Interpreters in 350+ languages

Phone lines are open Monday to Friday, 9 a.m. to 9 p.m. ET.

Not sure what to say? Try: “I was just diagnosed and I don’t know where to start.” That’s enough.

From Blood Cancer United

Find people who get it, at your own pace

Ask questions, read what others are going through, and hear about treatment advances and resources in the Blood Cancer United Community.

Hear from people living with DLBCL

Real stories from The Patient Story, told in their own words, about diagnosis, treatment and life afterward.

From the experts

When you’re ready to learn more about DLBCL

Lymphoma specialists explain test results, treatment options and what to ask your care team, in plain language.

A four-part docuseries

The stories behind this page

A four-part series from The Patient Story on life with diffuse large B-cell lymphoma (DLBCL).

1

Episode 1 · Patient story

You’re not alone

Maria’s story

2

Episode 2 · Care partner story

Caring for the carer

Coming in October

3

Episode 3 · Patient story

My voice

Coming in November

4

Episode 4 · Patient and doctor

How to navigate the journey

Coming in December

Subscribe on YouTube to catch each new episode

Stay connected to people who understand

Join The Patient Story community for new stories and expert conversations.