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Building Bonds Episode 1: Patient-Doctor Partnerships for Better Waldenström Care
Building Bonds Episode 1: Patient-Doctor Partnerships for Better Waldenström Care Dr. Shayna Sarosiek and Waldenström macroglobulinemia patient advocate Jason Euzukonis discuss what makes their patient-doctor teamwork truly effective.
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Caitlyn’s Stage 4 Melanoma Story
Caitlyn M., Melanoma, Stage 4 Symptoms: Severe pain on the side pain that worsened over time, pelvic pain and a feeling of pressure resembling labor, swollen lymph node on the cheek Treatments: Multiple surgeries to remove tumors, targeted therapy (Opdualag/nivolumab and relatlimab-rmbw)
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Melinda’s Stage 4 Rare Adrenal Cancer Story
Melinda N., Adrenal Cancer, Stage 4 Symptoms: Swelling in the face, stomach, hands, and feet, high blood pressure, acne on back and chest, itchy and tingling tongue, burning in the eyes with discharge, hair loss on the head, hair growth on upper lip and chin, bloating and stomach pain, food aversions, easy bruising, slow healing,…
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Tina’s Crohn’s Disease (IBD) Story
Tina A., Crohn’s Disease (IBD) Symptoms: Irritable bowel syndrome (IBS), gastroesophageal reflux disease (GERD), constipation, red eyes (allergic conjunctivitis), joint pain, weight loss, frequent bowel movements with bleeding Treatments: Surgeries (total proctocolectomy, permanent ileostomy, J-pouch which was later reversed due to complications, nearly two dozen additional surgeries related to Crohn’s complications)
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Maddee’s Stage 2 Colon Cancer Story
Maddee M., Colon Cancer, Stage 2 Symptoms: Severe fatigue, burning sensation in the stomach, intermittent lower right abdominal pain, dizziness, shortness of breath, difficulty walking up inclines, anemia Treatment: Surgery (hemicolectomy & lymphadenectomy)
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CLL 360°: It’s Time for Treatment – Making the Right Decision for Me
CLL 360°: It’s Time for Treatment – Making the Right Decision for Me Hosted by CLL patient advocate Michele Nadeem-Baker, this webinar will help you learn how shared treatment decision-making can help you navigate the rapidly evolving landscape of CLL treatment options.
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Jeff’s Stage 4 Stomach Cancer Story
Jeff S., Stomach Cancer, Stage 4 (Metastatic) Symptoms: None; found during the evaluation process for kidney donation Treatments: Surgery (partial gastrectomy & nephrectomy), chemotherapy (oxaliplatin & capecitabine), radiation
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Chasity’s Stage 1A Uterine Cancer Story
Chasity J., Uterine Cancer, Stage 1A Symptoms: Irregular bleeding that progressed to heavy bleeding with large clots, severe anemia, exhaustion Treatment: Surgery (full hysterectomy, including ovaries & some lymph nodes)
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Lauren’s Stage 2A IDC Breast Cancer Story
Lauren O., IDC, Stage 2A Symptom: Lump in the right breast Treatments: Surgery (lumpectomy), chemotherapy (AC-T), steroids, radiation
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Dee’s Stage 4 Metastatic Breast Cancer Story
Dee D., Metastatic Breast Cancer, IDC & DCIS, ER+ Symptoms: Inability to produce milk on the left breast while breastfeeding, breast pain (palpable and radiating to the back), lumps in the breast and armpit Treatments: Chemotherapy (AC-T), surgery (bilateral mastectomy & axillary lymph node clearance), radiotherapy, hormone therapy (Zoladex/goserelin), aromatase inhibitor (letrozole), targeted therapy (Kisqali/ribociclib)
