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Marisa’s Stage 4 Synovial Sarcoma Story
Marisa C., Synovial Sarcoma, Stage 4 Symptom: Small bump on the foot (stable for years, then grew during pregnancy), pain when pressed Treatments: Surgeries (below-knee amputation, pulmonary wedge resections, segmentectomy), chemotherapy, radiation (lungs & hip)
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Bella’s Malignant Paraganglioma Story
Bella J., Malignant Paraganglioma Symptoms: Severe vomiting, chronic cough, dizziness, swelling in the neck, low heart rate, extreme weight loss, hair loss, dental issues, vocal strain, persistent pain and exhaustion Treatments: Surgeries, radiotherapy, physical therapy
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Kristin’s Stage 3A Melanoma Story
Kristin M., Melanoma, Stage 3A Symptom: Change in color and border of a mole on her leg Treatments: Surgeries (melanoma & lymph node removal), immunomodulator (interferon)
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Building Bonds Episode 2: How to Find and Partner with a Doctor for Better Waldenström Care
Building Bonds Episode 2: How to Find and Partner with a Doctor for Better Waldenström Care Patient advocate Pete DeNardis, hematologist-oncologist Dr. Jonas Paludo from Mayo Clinic, and patient advocate Lisa Ramirez discuss how her decisions led to being treated by Dr. Paludo and forming a trusted patient-doctor relationship.
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Amber’s Stage 4B High-Grade Serous Ovarian Cancer Story
Amber C., High-Grade Serous Ovarian Cancer, Stage 4B Symptoms: bowel irregularities (urgency, alternating constipation & diarrhea), night sweats, unintended weight loss, irregular periods, fatigue, pain while sitting or going to the bathroom, blood in stool Treatments: Surgeries (debulking surgery, radical hysterectomy, oophorectomy, ileostomy placement, preventive double mastectomy with breast reconstruction), chemotherapy, targeted therapy (PARP inhibitor)
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From Short of Breath to a Rare Blood Cancer! Jim’s Myelodysplastic Syndrome Story
Jim C., Myelodysplastic Syndrome Symptoms: Enlarged spleen, fatigue, shortness of breath upon exertion Treatments: Chemotherapy, blood transfusions, allogeneic stem cell transplant
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Shayla’s Metastatic Colorectal Cancer Story
Shayla L., Colorectal Cancer, Stage 4 Symptoms: Stomach sensitivity, food intolerances, exhaustion, blood in stool Treatments: Chemotherapy, surgery (hepatectomy)
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Jim’s Diffuse Large B-Cell Lymphoma (DLBCL) Story
Jim Z., Diffuse Large B-Cell Lymphoma (DLBCL) Symptoms: Sudden and severe head and neck swelling, purplish facial discoloration, bulging neck veins Treatments: Surgery (resection and reconstruction of the superior vena cava), chemotherapy
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Willow’s Rare Grade 1, Stage 2.5 Pelvic Cancer Story
Willow B., Pelvic Cancer, Grade 1, Stage 2.5 Symptoms: Persistent fever-like chills, scratchy throat, fatigue, post-orgasm pain, heavy bleeding, severe cramping Treatments: Surgery (radical hysterectomy), radiation, chemotherapy, hormone replacement therapy (HRT)
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Demystifying Follicular Lymphoma: Latest Advances in Precision Medicine and Emerging Therapies
Demystifying Follicular Lymphoma: Latest Advances in Precision Medicine and Emerging Therapies Dr. Peter Martin, a leading lymphoma expert at Weill Cornell Medicine, Laurie Adami, follicular lymphoma patient and advocate, and Tiffany Drummond, cancer advocate and clinical researcher, discuss the latest advancements in follicular lymphoma treatment.
