Jill’s EGFR Non-Small Cell Lung Cancer Story
Jill F., a dedicated lung cancer advocate from Chicago, discusses her unique journey shaped by profound personal loss and her subsequent diagnosis. Her story begins in her youth, with the tragic loss of her grandparents, father, mother, and aunt to cancer, all within a relatively short time frame. This significant impact inspired Jill to advocate for lung cancer research and early detection even before her own diagnosis, including through assuming leadership roles at the LUNGevity Foundation.
Interviewed by: Stephanie Chuang
Edited by: Chris Sanchez
In 2009, doctors diagnosed Jill with stage 1A lung cancer during routine surveillance she had pursued due to her family’s history. Her EGFR-positive status allowed her to benefit from targeted therapies, and she highlights the critical role of biomarker testing in personalized cancer care. Her cancer responded to the treatment, but returned some years later.
Jill emphasizes the stigma surrounding lung cancer, often tied to assumptions about smoking. She argues that such misconceptions detract from providing patients and families with proper support and compassion. Her advocacy aims to shift the narrative and ensure that every patient receives understanding, regardless of their history.
Jill underscores the importance of building trust and empathy between medical professionals and patients, advocating for clear and compassionate communication throughout the diagnostic and treatment journey. Her advocacy extends beyond her diagnosis. She continues to educate others, including on social media, about lung cancer screening and the advancements in treatment that save lives. Jill believes that empowering patients with knowledge about biomarker testing can help them make informed decisions and feel more in control during a challenging time.
Jill’s personal life remains a source of joy and motivation. She cherishes time spent with family and friends, outdoor activities, traveling, and volunteering. She explores new hobbies and finds solace in giving back to the community that supported her.
Jill’s message focuses on hope, resilience, and the power of advocacy. She encourages others to confront stigma, share their stories, and lean on one another for strength. Her journey, intertwined with loss and triumph, illustrates the importance of raising awareness, fostering empathy, and supporting ongoing research for better treatment outcomes. Jill concludes by reminding listeners that every story holds power and that no one should face their journey alone.
- Name:
- Jill F.
- Age at Diagnosis:
- 39
- Diagnosis:
- Non-small cell lung cancer with EGFR exon 19 deletion
- Staging:
- Stage 1A
- Initial Symptoms:
- Nodule found during periodic scan
- Treatment:
- Surgery
- Targeted therapy
- Radiation
This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.
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