Metastatic Cancer Stories
After speaking to cancer patients and cancer patient advocates, it’s clear that no matter where the origin of the cancer, metastatic cancer patients share similar questions and experiences.
Find metastatic cancer stories from patients below. With emerging cancer treatments, the stories are changing all the time. If you have a story you’d like to contribute or have any feedback, we’d love to have it.
Table Of Contents
- Metastatic Breast Cancer Stories
- Metastatic Colorectal Cancer Stories
- Metastatic Hodgkin Lymphoma Stories
- Metastatic Lung Cancer Stories
- Metastatic Non-Hodgkin Lymphoma Stories
- Metastatic Ovarian Cancer Stories
- Metastatic Sarcoma Stories
- Metastatic Testicular Cancer Stories
- Metastatic Thyroid Cancer Stories
Metastatic Breast Cancer Stories
Sherri O., Metastatic Breast Cancer & Colon Cancer Diagnosis: Colon & Metastatic Breast Cancer Symptoms: Shortness of breath, lump under armpit, not feeling herself Treatment: Chemotherapy, Transfusions
April D., Metastatic Triple Negative, BRCA1+
Symptoms: Four lumps on the side of the left breast
Treatment: Chemotherapy (carboplatin, paclitaxel doxorubicin, surgery (double mastectomy), radiation (proton therapy), PARP inhibitors
Brittney B., Metastatic Breast Cancer Diagnosis: Stage 4 Breast Cancer Symptoms: Lump in the right breast, inverted nippleTreatment: Surgery, chemo, immunotherapy, radiation
Bethany W., Stage 4 Metastatic
Symptoms: Lower back pain
Treatment: Chemotherapy, radiation, maintenance treatment
Abigail J., Stage 4, Metastatic
Cancer Details: HER2-low, node negative, PIK3CA mutation
1st Symptoms: Back and leg pain, lump in breast
Treatment: Surgery, chemotherapy, radiation, CDK4/6 inhibitors
Alison R., Partially Differentiated DCIS, Stage 4 Metastatic
Cancer details: Triple positive = positive for HER2, estrogen receptor (ER), progesterone receptor (PR)
1st Symptoms: Lump in underarm/breast
Treatment: Chemotherapy, surgery, radiation, targeted therapy
Erin C., IDC, Stage 2B/4, Metastatic, Triple Negative
Cancer details: Triple negative doesn’t have any receptors commonly found in breast cancer making it harder to treat
1st Symptoms: Pain in breast
Treatment: Surgery, chemotherapy, radiation
Shari S., Stage 4, Metastatic, Triple Positive
Cancer details: Triple positive = positive for HER2, estrogen receptor (ER), progesterone receptor (PR)
1st Symptoms: Lump in breast
Treatment: Surgery, chemotherapy, radiation
Renee N., IDC, Stage 3-4, HER2+
Cancer details: IDC is most common kind of breast cancer.
1st Symptoms: Lump in breast
Treatment: chemotherapy, bilateral mastectomy, radiation
Metastatic Colorectal Cancer Stories
Lindsay D., Colon Cancer, Stage 4
Cancer Details: Diagnosed at 32, cancer spread to ovary and lung
1st Symptoms: Lump in pelvic area, funny-smelling food, weight loss
Treatment: Chemotherapy, colectomy (surgery)
Metastatic Hodgkin Lymphoma Stories
Lia S., Nodular Sclerosis, Stage 4A
Cancer details: Most common and most treatable form of Hodgkin's lymphoma
1st Symptoms: Extreme lower back pain
Treatment: ABVD chemotherapy
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CC W., Hodgkin's, Stage 4
Cancer details: Diagnosed at 29, misdiagnosed as mono
1st Symptoms: Achiness, extreme fatigue, reactive rash on chest and neck. Later: chills, night sweats
Treatment: ABVD chemotherapy (6 cycles)
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Metastatic Lung Cancer Stories
Lisa G., Non-Small Cell, ROS1+, Stage 4 (Metastatic)
Cancer Details: ROS1+ tends to be aggressive. It can spread to the brain and to the bones.
1st Symptoms: Persistent cough (months), coughing a little blood, high fever, night sweats
Treatment: Chemo (4 cycles), maintenance chemo (4 cycles)
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Tara S., Non-Small Cell, ALK+, Stage 4 (Metastatic)
Cancer details: ALK+ occurs in 1 out of 25 non-small cell lung cancer patients
1st Symptoms: Numbness in face, left arm and leg
Treatment: Targeted radiation, targeted therapy (Alectinib)
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Metastatic Non-Hodgkin Lymphoma Stories
Erin R., DLBCL & Burkitt Lymphoma, Stage 4
Cancer details: Characteristics of both subtypes
1st Symptoms: Lower abdominal pain, blood in stool, loss of appetite
Treatment: Chemotherapy (Part A: R-CHOP, HCVAD, Part B: Methotrexate, Rituxan, Cytarabine)
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Emily G., Diffuse Large B-Cell (DLBCL), Stage 4
1st Symptoms: Pain in left knee
Treatment: R-CHOP chemo (6 cycles), high-dose methotrexate chemo (3 cycles)
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Metastatic Ovarian Cancer Stories
Cheyann S., Low-Grade Serous Carcinoma, Stage 4B
Cancer details: Makes up approximately 10% of cases of serous ovarian cancer.
1st Symptoms: Stomach pain, constipation, lump on right side above pubic area
Treatments: Cancer debulking surgery, chemotherapy (Carboplatin & Taxol, then Doxil & Avastin)
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Susan R., High-Grade, Metastatic
Cancer details:Account for up to 70% of cases
1st Symptoms:Pulling sensation when emptying bladder; abdominal pain
Treatment: Chemotherapy (Carboplatin & Paclitaxel) & surgery
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Jodi S., Epithelial Ovarian Cancer, Stage 4 (IV)
Cancer Details: Metastatic
1st Symptoms: Extreme bloating, extremely tight skin, changes in digestive tract, significant pelvic pain, sharp-shooting pains down inner thighs, extreme fatigue
Treatment: 4 rounds of chemotherapy, hysterectomy, 3 rounds of additional chemotherapy
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Metastatic Sarcoma Stories
Alicia B., Desmoid Tumor, Stage 4
Cancer details: Rare, <3% of all soft tissue tumors, more common in women
1st Symptoms: lump found in right armpit
Treatment: Chemo, radiation, targeted therapy, clinical trials, surgery, including forequarter amputation
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Metastatic Testicular Cancer Stories
Ben F., Testicular Cancer Diagnosis: Metastatic Testicular Cancer Symptoms: Hard, swollen testicleTreatment: Surgery, laparoscopy, orchiectomy
Metastatic Thyroid Cancer Stories
Jenna C., Metastatic Papillary Thyroid Cancer, Stage 2
Cancer details: Spread to lymph nodes
1st Symptoms: Hoarse voice, painful talking, lump in neck
Treatment: Thyroidectomy (entire removal of thyroid), radioactive iodine treatment
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Greg S., Metastatic Papillary Thyroid Cancer, Stage 2
Cancer details: Spread to lymph nodes
1st Symptoms: Fatigue, lump in neck near Adam’s apple
Treatment: Thyroidectomy (entire removal of thyroid), radioactive iodine treatment
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