Hodgkin’s Lymphoma Stories

Hodgkin Lymphoma

What is Hodgkin’s lymphoma? Also known as Hodgkin’s Disease, Hodgkin’s lymphoma is a disease in which malignant (cancer) cells form in the lymph system. It may then spread to the liver, lungs, or bone marrow.

Some of the most common first symptoms of Hodgkin’s lymphoma can include:

  • Swelling of the lymph nodes (painless), often in the neck, armpits, or groin area
  • Fever and chills
  • Night sweats
  • Weight loss
  • Loss of appetite
  • Itchy skin

Hodgkin Lymphoma 101

Learn more about Hodgkin lymphoma. In this guide, we will explore the symptoms, signs, screenings, stages, and treatment options for Hodgkin lymphoma. Whether you want to learn about early warning signs or treatments and prognosis, we’ve got you covered.


Hodgkin Lymphoma Patient Stories

Our community members dive deeper into their cancer stories than any others, sharing their first symptoms, different treatment paths and side effects, and reflections on the entire experience. Choose stories based on subtypes below.


Delishea A., Hodgkin's, Stage 4B



1st Symptoms: Extreme itchiness and dry cough
Treatment: 6 cycles of chemo, radiation, immunotherapy (Adcetris)
Topics: Finding community & support, self-advocacy
Ava

Ava O., Stage 4B



1st Symptoms: Trouble digesting, weak immune system, raised glands, night sweats, chest pain, extreme fatigue
Treatment: 6 cycles of ABVD chemotherapy
Topics: Emotional grieving, mental health, letting go

Lia S., Nodular Sclerosis, Stage 4A



Symptom: Extreme lower back pain

Treatment: ABVD chemotherapy

CC W., Hodgkin’s, Stage 4



Symptoms: Achiness, extreme fatigue, reactive rash on chest & neck, chills, night sweats
Treatment: ABVD chemotherapy (6 cycles)

Nicole M., Hodgkin's, Stage 4



Cancer details: Staged 2 then 4 after second opinion
1st Symptoms: Extreme fatigue, persistent itching on lower half of legs
Treatment: 6 cycles (12 infusions) chemo, ABVD then AVD (dropped bleomycin)

Erica H., Hodgkin's, Stage 3B



Cancer details: Staged at 3B
1st Symptoms: Intense itchiness, fatigue, night sweats, weight loss
Treatment:ABVD chemotherapy, 6 cycles (12 infusions)

Hodgkin Lymphoma Resources

Patient Self-Advocacy: A Conversation on Speaking Up for Ourselves Four incredible Hodgkin lymphoma patients/survivors share how they were able to advocate for themselves throughout their cancer care.

The Latest in Hodgkin Lymphoma with Dr. Matthew Matasar: Dr. Matthew Matasar with Rutgers Cancer Institute discusses emerging and most-promising therapy options for relapsed/refractory Hodgkin lymphoma patients and those newly-diagnosed.

Looking for non-Hodgkin’s lymphoma stories and resources? Visit the non-Hodgkin’s lymphoma stories page.

Hodgkin Lymphoma Oncologists & Experts

Read interviews from medical experts who specialize in blood cancers including Hodgkin’s lymphoma.

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Navigating Life With Cancer