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Ashlee’s Stage 4 Burkitt Lymphoma Story
Ashlee K., Burkitt Lymphoma, Stage 4 Symptoms: Abdominal pain, night sweats, visible mass in the abdomen Treatments: Surgery (partial colectomy to remove 14 inches of intestine), chemotherapy
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Stephanie’s Stage 2 ALK+ Non-Small Cell Lung Cancer Story
Stephanie W., Non-Small Cell Lung Cancer, ALK+, Stage 2B Symptoms: Persistent cough, wheezing Treatments: Surgery (bilobectomy), chemotherapy, targeted therapy
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Jennifer’s Stage 4 Colon Story
Jennifer T., Colon Cancer, Stage 4 (Metastatic) Symptoms: Weight loss, coughing, vomiting, sciatica pain, fatigue Treatments: Surgeries (colectomy, lung wedge resection on both lungs), chemotherapy, immunotherapy
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Nicole’s Chronic Lymphocytic Leukemia (CLL) Story
Nicole B., Chronic Lymphocytic Leukemia Symptoms: Extreme fatigue, night sweats, lumps on neck, rash, shortness of breath Treatments: BCL-2 inhibitor, monoclonal antibody
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Marisa’s Stage 4 Synovial Sarcoma Story
Marisa C., Synovial Sarcoma, Stage 4 Symptom: Small bump on the foot (stable for years, then grew during pregnancy), pain when pressed Treatments: Surgeries (below-knee amputation, pulmonary wedge resections, segmentectomy), chemotherapy, radiation (lungs & hip)
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Bella’s Malignant Paraganglioma Story
Bella J., Malignant Paraganglioma Symptoms: Severe vomiting, chronic cough, dizziness, swelling in the neck, low heart rate, extreme weight loss, hair loss, dental issues, vocal strain, persistent pain and exhaustion Treatments: Surgeries, radiotherapy, physical therapy
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Kristin’s Stage 3A Melanoma Story
Kristin M., Melanoma, Stage 3A Symptom: Change in color and border of a mole on her leg Treatments: Surgeries (melanoma & lymph node removal), immunomodulator (interferon)
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Building Bonds Episode 2: How to Find and Partner with a Doctor for Better Waldenström Care
Building Bonds Episode 2: How to Find and Partner with a Doctor for Better Waldenström Care Patient advocate Pete DeNardis, hematologist-oncologist Dr. Jonas Paludo from Mayo Clinic, and patient advocate Lisa Ramirez discuss how her decisions led to being treated by Dr. Paludo and forming a trusted patient-doctor relationship.
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Amber’s Stage 4B High-Grade Serous Ovarian Cancer Story
Amber C., High-Grade Serous Ovarian Cancer, Stage 4B Symptoms: bowel irregularities (urgency, alternating constipation & diarrhea), night sweats, unintended weight loss, irregular periods, fatigue, pain while sitting or going to the bathroom, blood in stool Treatments: Surgeries (debulking surgery, radical hysterectomy, oophorectomy, ileostomy placement, preventive double mastectomy with breast reconstruction), chemotherapy, targeted therapy (PARP inhibitor)
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From Short of Breath to a Rare Blood Cancer! Jim’s Myelodysplastic Syndrome Story
Jim C., Myelodysplastic Syndrome Symptoms: Enlarged spleen, fatigue, shortness of breath upon exertion Treatments: Chemotherapy, blood transfusions, allogeneic stem cell transplant
