Yiwei and Summer’s Stage 3 Non-Hodgkin Lymphoma Story
Interviewed by: Nikki Murphy
Edited by: Chris Sanchez
In this father-daughter interview, Yiwei, a software engineer originally from China, shares his journey with non-Hodgkin lymphoma, from the initial symptoms to his recovery, alongside his daughter Summer. Yiwei describes how he first experienced severe itching and shortness of breath in early 2022, which led to a series of medical appointments. Despite initially suspecting an allergy, doctors ultimately discovered a large mass in his chest in July 2022. He was diagnosed with primary mediastinal large B-cell lymphoma (PMBCL).
Yiwei reacted calmly to the diagnosis, despite having being a healthy individual for over 20 years. His family, however, was shocked when they first learned of his cancer, particularly his daughter Summer, who recalls how the news interrupted a casual dinner outing. Summer, like her father, had initially thought he had contracted COVID-19, making the cancer diagnosis even more unexpected.
Yiwei underwent 6 rounds of chemotherapy followed by radiation, which he tolerated well, experiencing minimal side effects beyond hair loss. However, soon after completing his initial treatments in early 2023, his cancer relapsed, with tumors returning in his chest and appearing in his liver. This led to a second round of chemotherapy combined with CAR T-cell therapy. By August 2023, scans showed no evidence of cancer, and follow-up PET scans have continued to confirm his remission.
Summer highlights the long, complicated diagnosis process as a key reason for sharing their story on social media. Through her TikTok account, she raises awareness about the possible early signs of cancer, such as the persistent skin issues her father experienced, and the importance of advocating for one’s health. Her videos have connected with a broader community of cancer patients and survivors, helping others identify concerning symptoms and seek timely medical advice.
Yiwei further elaborates on CAR T-cell therapy, which uses the body’s own immune cells to fight cancer. He expresses admiration for this innovative treatment, noting its effectiveness in his case despite some potential side effects, including a temporary drop in his platelet count.
Both Yiwei and Summer emphasize the importance of mental strength during treatment. Yiwei advises others to stay calm and not to worry excessively, as stress can negatively impact recovery. Summer adds that loved ones can offer reassurance and practical help to support patients through their treatment. Together, they hope their story inspires others to stay vigilant about early symptoms and remain hopeful throughout their cancer journeys.
- Name:
- Yiwei T.
- Age at Diagnosis:
- 50
- Diagnosis:
- non-Hodgkin lymphoma (Primary mediastinal large B-cell lymphoma [PMBCL])
- Staging:
- Stage 3
- Initial Symptoms:
- Intense itching and rashes
- Shortness of breath
- Extreme fatigue
- Elevated heart rate
- Lower than normal blood oxygen levels
- Treatment:
- Chemotherapy
- Radiation
- CAR T-Cell Therapy
This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider for treatment decisions.
Inspired by Yiwei and Summer's story?
Share your story, too!
Related Cancer Stories
More Non-Hodgkin Lymphoma Stories
Arielle R., Primary Mediastinal (PMBCL)
1st Symptoms: Swollen neck lymph nodes, fever, appetite loss, weight loss, fatigue, night sweats, coughing, itchy skin, trouble breathing
Treatment: R-EPOCH (dose-adjusted) chemotherapy, 6 cycles
Keyla S., Primary Mediastinal (PMBCL), Stage 1
1st Symptoms: Bad cough, slight trouble breathing
Treatment: R-EPOCH (dose-adjusted) chemotherapy, 6 cycles
Donna S., Primary Mediastinal (PMBCL), Stage 1-2
1st Symptoms: Visible lump in center of throat, itchy legs, trouble swallowing
Treatment: R-EPOCH (dose-adjusted) chemotherapy, 6 cycles
Patrick M., Primary Mediastinal (PMBCL), Stage 2
1st Symptoms: Bump pushing up into sternum
Treatment: 6 cycles of DA-EPOCH-R (dose-adjusted) chemotherapy at 100+ hours each
Crystal Z., Primary Mediastinal (PMBCL), Stage 2
1st Symptoms: Chest pain
Treatment: 6 cycles of R-CHOP chemotherapy