Beyond the Diagnosis: How Amanda Embraces Life with Terminal High-Grade Stage 4 Neuroendocrine Carcinoma
In January 2025, Amanda found out she had high-grade stage 4 neuroendocrine carcinoma. Her story began in 2023 with a persistent UTI and cough. Initially, she was misdiagnosed with an autoimmune disease and treated with immunosuppressants and cortisone. However, her original symptoms persisted, and she also started to experience other symptoms like coughing up blood and having difficulty breathing even while walking.
Interviewed by: Nikki Murphy
Edited by: Chris Sanchez
An ultrasound finally revealed a rapidly growing tumor on one ovary. Amanda immediately had both the tumor and ovary removed. Afterward, pathology results determined it was stage 4 neuroendocrine carcinoma. Although it wasn’t the primary tumor, it had already metastasized to various parts of her body.
Amanda and her family grappled with the reality of terminal cancer. Clinical trials weren’t an option because she has an autoimmune disease and had previously taken cortisone. She struggled with whether or not to undergo chemotherapy, and after consulting with doctors and her family, she decided to try a cycle of chemotherapy. It initially improved her condition. But her fears came true when she soon began to experience serious side effects like throat sores and hair loss.
Despite the prognosis, Amanda remains hopeful. She plans to continue chemotherapy for six to eight months. She’s also exploring alternative and integrative therapies to support her body and potentially extend her life. At the same time, by openly sharing her stage 4 neuroendocrine carcinoma story, Amanda wants to inspire others to maintain hope.
Learn more about the following topics by watching Amanda’s story:
- Learning to embrace life and being hopeful in the face of a terminal cancer diagnosis.
- Finding strength in activities like yoga and meditation.
- Exploring all possibilities for well-being.
- Drawing solace from a strong support system.
- Name:
- Amanda S.
- Age at Diagnosis:
- 32
- Diagnosis:
- High-Grade Neuroendocrine Carcinoma
- Staging:
- Stage 4
- Symptoms:
- Breathing problems, especially during activities like walking
- Persistent cough
- Coughing up blood
- Urinary tract infections
- Pain in belly
- Treatments:
- Chemotherapy
- Surgery
This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.
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