Ryan’s clinical trial experience at MD Anderson has been both hopeful and challenging. He debunks the myth about placebos in cancer trials, emphasizing that all participants receive the standard of care, with trials testing potentially more effective therapies. His trial opened new avenues in his treatment plan. This part of his experience highlights the critical role of clinical trials in advancing cancer treatment, offering patients like Ryan additional options beyond conventional methods.

Day-to-day life with stage 4 tongue cancer is layered with physical and emotional hurdles. Ryan travels weekly for his treatments, navigating the logistical and financial strains with the support of his family. The emotional weight is substantial — not just for him, but also for his wife and kids. He describes the emotional aftermath akin to grief, with friends and family often reacting as if he’s already gone, which adds to the complexity of living with an ongoing illness.

Ryan’s narrative sheds light on the unseen burdens carried by family and friends. His wife bears the brunt of emotional stress, managing her fears and the daily realities of their children’s lives. Ryan’s determination to stay engaged in his children’s lives drives him, even as he tackles the harsh side effects of treatment.

Ryan’s advice to others facing similar battles? Own your treatment. Speak up, advocate for yourself, and ensure your voice is heard in your care decisions. This proactive approach has been crucial in Ryan’s experience, helping ensure that he receives attentive and appropriate care.

Watch Ryan’s video to find out about:

• How a small white spot led to his stage 4 tongue cancer diagnosis.
• The emotional toll of cancer — not only on patients but also on their families.
• Ryan’s firsthand experience debunking myths about clinical trials.
• Weekly flights, family strains, and fighting for normalcy with cancer.
• Why Ryan believes hope isn’t enough — and about what really matters.