Advocacy and Authenticity: Alessandra’s Experience with Stage 2 Bile Duct Cancer (Cholangiocarcinoma)

Alessandra’s story is a profound and emotional narrative, highlighting her life before and after being diagnosed with stage 2 bile duct cancer (cholangiocarcinoma) in 2020. Life took a dramatic turn when she started experiencing severe health issues, leading to panic attacks, abdominal pain, and weight loss. After multiple misdiagnoses and frustrations with healthcare professionals, Alessandra’s persistent advocacy for her health led to the discovery of a large tumor through an MRI.

Interviewed by: Taylor Scheib
Edited by: Chris Sanchez

Transitioning into the phase of treatment, Alessandra underwent a challenging surgical process, which she describes as being worse than the ensuing six months of chemotherapy. The experience was isolating due to COVID-19 restrictions, but it was a necessary step. Afterward, despite having to endure intense pain, Alessandra found solace in finally having a diagnosis, which alleviated her panic attacks. Her subsequent chemotherapy was taxing and caused severe neuropathy, but she correspondingly managed it with humor and support from loved ones. Her friend’s companionship during chemotherapy sessions became a source of strength and laughter.

Alessandra’s experience with stage 2 bile duct cancer (cholangiocarcinoma) has profoundly altered her perception of life and relationships. She faced the distress of hair loss, which impacted her identity and self-perception significantly. Her struggle with body dysmorphia and fatigue was ongoing, but it did not deter her from continuing her modeling career. Remarkably, she maintained her public persona and remained active in her art.

The diagnosis also had a ripple effect on her family, with her father being diagnosed with cancer shortly after her surgery. This shared experience within the family tested their resilience but conversely also strengthened their familial bonds. Through it all, Alessandra realized the importance of living without regrets and advocating for one’s well-being.

Reflecting on her stage 2 bile duct cancer experience, Alessandra encourages open discussions about death and planning, and underscores the importance of living a life true to oneself. Above all, her story serves as a testament to resilience, self-expression, and prioritizing personal happiness despite societal norms.

• Name: 
  • Alessandra G.
• Diagnosis:
  • Cholangiocarcinoma (bile duct cancer)
• Staging:
  • Stage 2
• Age at Diagnosis:
  • 32
• Symptoms:
  • Abdominal pain
  • Dizziness and vertigo
  • Back pain
  • Pain during digestion
• Treatments:
  • Surgery
  • Chemotherapy

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider for treatment decisions.

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