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Amanda’s Rare Genetic Condition, Li-Fraumeni Syndrome, Led to Breast Cancer and Osteosarcoma Back to Back
Amanda’s Rare Genetic Condition, Li-Fraumeni Syndrome, Led to Breast Cancer and Osteosarcoma Back to Back Amanda was a mother of six and a marathon runner when a breast lump, first found by her midwife in 2018, was dismissed on ultrasound as cystic breast tissue. Because she wasn’t yet 40, insurance wouldn’t cover screening, and the…
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Jade Thought She Had Appendicitis; When She Found Out It Was Stage 4 Appendix Cancer, Her World Changed Forever
Jade F., Appendix Cancer (Appendix Adenocarcinoma with Mucinous Features), Stage 4 (Metastatic) Symptoms: Constant pain on the right side, constipation, bloatedness, exhaustion Treatments: Surgeries (appendectomy, hemicolectomy, hepatectomy, cytoreductive surgery or CRS), chemotherapy (hyperthermic intraperitoneal chemotherapy or HIPEC, FOLFOX)
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Every Symptom Had an Explanation: One Young Mom’s Burkitt Lymphoma Experience
Jessica S., Burkitt Lymphoma, Stage 4 Symptoms: Extreme fatigue, back pain (sacroiliac joint area), severe tooth pain, growing lump in the jaw, multiple lumps on the head (that initially appeared as hematomas), difficulty walking, inability to lift the baby, severe pain preventing sleep Treatment: Chemotherapy
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My Breast Cancer Diagnosis at 15 Weeks Pregnant as a Surrogate: Shelby’s Extraordinary Story
Shelby M., Breast Cancer, Stage 2B, HER2+ Symptom: Palpable breast lump Treatments: Surgery (bilateral mastectomy), chemotherapy (doxorubicin, cyclophosphamide, paclitaxel), targeted therapy (planned post-delivery)
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From Active Duty to Lifelong Cancer Patient: Rachel on Living with Recurrent, Incurable Lymphoma
Rachel H., Nodular Lymphocyte Predominant Hodgkin Lymphoma (NLPHL) Symptom: Large, palpable lymph nodes Treatments: Radiation therapy, monoclonal antibody (rituximab), surgery (upcoming)
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Meg’s Stage 4 Non-Hodgkin Lymphoma Story: I Said Yes to Bispecific Antibodies
Meg L., Follicular Lymphoma, Stage 4 Symptoms: Lower back pain, general feeling of unwellness Treatments: Clinical trial (bispecific antibody and immunotherapy)
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From Misdiagnosed Hemorrhoids to Stage 3B Rectal Cancer
Laura B., Rectal Cancer, Stage 3B Symptoms: Rectal bleeding, one instance of pencil-thin stool, fatigue, bowel urgency Treatments: Radiation therapy, chemotherapy, surgery (rectum and colon resection, temporary ileostomy, ileostomy reversal)
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Young Mom, Big Diagnosis: Shannon’s Story of Stage 4 EGFR+ Lung Cancer, and Her Life on Targeted Therapy
Shannon M., NSCLC, Stage 4 (Metastatic) Symptoms: Persistent neck pain, lingering cough Treatments: Radiation therapy, chemotherapy, targeted therapy
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14 Years Later and Still Here: How Katie Smith Has Survived ‘Inoperable’ Brain Cancer
Katie S., Glioblastoma, Grade 4, IDH1+ Symptoms: Left arm heaviness and weakness, reduced fine motor control in the left hand, intermittent tingling in the left fingers Treatments: Surgeries (craniotomy, twice), radiation therapy, chemotherapy (temozolomide, CCNU), monoclonal antibody (bevacizumab)
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From Multiple Tumors to a Liver Transplant: How Keaton Survived Rare Bile Duct Cancer (Intrahepatic Cholangiocarcinoma)
Keaton H., Bile Duct Cancer (Intrahepatic Cholangiocarcinoma) Symptoms: Mild heartburn and gastrointestinal discomfort, persistent low-grade abdominal pain Treatments: Chemotherapy (gemcitabine, cisplatin, FOLFOX), monoclonal antibodies (durvalumab, zenocutuzumab), radiation therapy (Y-90 radioembolization), surgery (liver transplant)
Bile Duct Cancer, Chemotherapy, durvalumab, FOLFOX (folinic acid, fluorouracil, oxaliplatin), Gemzar (gemcitabine), Immunotherapy, Intrahepatic Cholangiocarcinoma, Liver transplant, Monoclonal Antibody, Patient Stories, Platinol (cisplatin), Radiation Therapy, Treatments, Y-90 radioembolization, Zenocutuzumab
