-
Living with Metastatic Papillary Thyroid Cancer: Alyse’s Story
Alyse V., Thyroid Cancer (Papillary Thyroid Carcinoma, Tall Cell Variant, Metastatic) Symptoms: None per se, lump discovered during thyroid examination Treatments: Surgeries (neck dissection, lymphadenectomy), integrative therapies
-
Understanding MPN Biomarkers: JAK2, CALR, MPL & More
Andrew Schorr (MPN patient advocate) sits down with Dr. Angela Fleischman (University of California, Irvine) to unpack what JAK2, CALR, and MPL mean for MPN diagnosis and everyday care. They also explain how added findings (ASXL1, IDH1/2, EZH2), next-generation sequencing (NGS), and risk scores can inform treatment choices and clinical trials.
-
The Patient Story Podcast: I’m a Young Cancer Patient
Taylor S., Patient Advocate, Thyroid Cancer (Oncocytic Carcinoma of the Thyroid Gland), Stage 1 “Give yourself grace, but also do it on your own time.”
-
MPN Lab Results: Feel More Confident Reading Your Labs
Join Dr. Aaron Gerds of Cleveland Clinic and longtime MPN patient advocate Ruth Fein Revell as they explore how mutation testing—including JAK2, CALR, and MPL—can shape care, what trends to watch in your lab results, and how to have more confident conversations with your doctor.
-
Waldenström’s: What IgM and Other Lab Markers Tell Us
Dr. Stephen Ansell of Mayo Clinic breaks down how lab results like IgM, genetic mutations, and CBC results inform diagnosis, treatment timing, and monitoring in Waldenstrom. Patient advocate Annmarie Seldon shares her own story and what she wishes she’d known earlier.
-
Acute Myeloid Leukemia
Acute Myeloid Leukemia: Learn from the Experiences of Other Patients Welcome to The Patient Story’s AML home, your central resource for understanding acute myeloid leukemia (AML) through real patient stories, trusted education, and expert insight. Our mission: Real patients. Real stories. Real answers. Whether you’re newly diagnosed and in the middle of induction, moved to…
-
From Essential Thrombocythemia to Prefibrotic Myelofibrosis: Neal’s Heartfelt Story
Neal H., Prefibrotic Myelofibrosis Symptoms: Night sweats, severe itching, abdominal pain, bone pain Treatment: Tumor necrosis factor blocker, chemotherapy, targeted therapy, testosterone replacement therapy
-
Waldenström’s Macroglobulinemia: Community Care & Clinical Trials
Navigating Waldenström’s: Getting the Best Care Close to Home Waldenström’s macroglobulinemia patient advocate Pete DeNardis, expert hematologist Dr. Hussam Eltoukhy, and practice administrator Maria Lamantia discuss the latest in community-based cancer care, personalized treatment options, and effective communication strategies.
-
Common Chronic Lymphocytic Leukemia (CLL) Symptoms, Described by Real Patients
Common Chronic Lymphocytic Leukemia (CLL) Symptoms, Described by Real Patients Many people who are diagnosed with Chronic Lymphocytic Leukemia (CLL) are surprised to discover they have the disease because they often don’t have symptoms. In fact, most cases of CLL are diagnosed following a routine CBC blood test. Patients often describe flu-like symptoms, including fatigue and…
-
Common Chronic Lymphocytic Leukemia (CLL) Symptoms, Described by Real Patients
Symptoms of CLL Learn about how some of the common CLL symptoms first present themselves from patients who have been diagnosed with CLL.
