Hodgkin’s Lymphoma Stories

Hodgkin Lymphoma

What is Hodgkin’s lymphoma? Also known as Hodgkin’s Disease, Hodgkin’s lymphoma is a disease in which malignant (cancer) cells form in the lymph system. It may then spread to the liver, lungs, or bone marrow.

Some of the most common first symptoms of Hodgkin’s lymphoma can include:

  • Swelling of the lymph nodes (painless), often in the neck, armpits, or groin area
  • Fever and chills
  • Night sweats
  • Weight loss
  • Loss of appetite
  • Itchy skin

Hodgkin Lymphoma 101

Learn more about Hodgkin lymphoma. In this guide, we will explore the symptoms, signs, screenings, stages, and treatment options for Hodgkin lymphoma. Whether you want to learn about early warning signs or treatments and prognosis, we’ve got you covered.


Hodgkin Lymphoma Patient Stories

Our community members dive deeper into their cancer stories than any others, sharing their first symptoms, different treatment paths and side effects, and reflections on the entire experience. Choose stories based on subtypes below.

Kayla

Kayla T., Hodgkin's, Stage 3A



Cancer details: Possibly misdiagnosed the first time; later diagnosed as grey zone lymphoma
1st Symptoms: Pulled muscle in chest
Treatment: ABVD chemo, radiation, high-dose chemo, stem cell transplant
Tylere

Tylere P., Hodgkin, Stage 3



Cancer details: Mother is a nurse practitioner; suspected cancer
1st Symptoms: Swollen lymph nodes in neck
Treatment: Clinical trial; Chemotherapy, BMT
Jade

Jade B., Hodgkin, Stage 2X



Cancer details: Diagnosed at 21 years old
1st Symptoms: Itchy legs and feet
Treatment: ABVD chemotherapy (4 treatments), AVD (remaining treatments)

Mara T., Stage 2BX (Bulky)



1st Symptoms: Shortness of breath, back pains, daily migraines
Treatment: 3 rounds of ABVD, 3 rounds AVD, Radiation
Topics: Self-advocacy, mental health

Katee P., Hodgkin, Stage 2B



Cancer details: Accidentally found in x-ray after months of symptoms
1st Symptoms: Night sweats, fatigue, extreme itchiness, persistent cough
Treatment: AAVD chemo, clinical trial w/brentuximab (Adcetris) + nivolumab (Opdivo) immunotherapy

Chelsea B., Hodgkin's, Stage 2B



Cancer details: Diagnosed at 32
1st Symptoms: Lump in neck
Treatment: ABVD chemotherapy

Hodgkin Lymphoma Resources

Patient Self-Advocacy: A Conversation on Speaking Up for Ourselves Four incredible Hodgkin lymphoma patients/survivors share how they were able to advocate for themselves throughout their cancer care.

The Latest in Hodgkin Lymphoma with Dr. Matthew Matasar: Dr. Matthew Matasar with Rutgers Cancer Institute discusses emerging and most-promising therapy options for relapsed/refractory Hodgkin lymphoma patients and those newly-diagnosed.

Looking for non-Hodgkin’s lymphoma stories and resources? Visit the non-Hodgkin’s lymphoma stories page.

Hodgkin Lymphoma Oncologists & Experts

Read interviews from medical experts who specialize in blood cancers including Hodgkin’s lymphoma.

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