Amrit’s Appendix Cancer Story
Amrit was diagnosed with appendix cancer, or appendiceal adenocarcinoma (ApAC), in 2022 after enduring a series of vague and confusing symptoms. Initially attributing her severe migraines, abdominal bloating, skin changes, and irregular menstrual cycles to perimenopause, she delayed seeking medical attention. However, persistent bloating prompted her to visit her general practitioner, who conducted further tests. A scan revealed a mass on her ovary, leading to a referral to the fast-track cancer pathway. Further imaging uncovered a ruptured appendix and mucin accumulation throughout her peritoneal cavity.
Interviewed by: Nikki Murphy
Edited by: Katrina Villareal
Amrit underwent a grueling 9.5-hour surgery involving extensive procedures: the removal of her appendix, spleen, gallbladder, omentum, ovaries, and visible mucin deposits. This was followed by heated intraperitoneal chemotherapy (HIPEC) to address any residua cancer cells. Post-surgery, she learned her condition was malignant, requiring additional chemotherapy. Amrit described the physical toll of treatment, including neuropathy, extreme fatigue, and other side effects.
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Throughout her appendix cancer experience, Amrit confronted significant mental health challenges, including post-traumatic stress disorder (PTSD). She found coping mechanisms in running, advocating for women’s health, and compartmentalizing for her children’s sake. She emphasized the importance of women advocating for themselves, recognizing symptoms, and prioritizing their health over societal and familial pressures.
Amrit now monitors her condition under a 10-year surveillance program. While her latest scans show no active disease, the possibility of recurrence remains. She continues to process her trauma, engage in physical activities like marathons, and share her story to inspire others to take control of their health.
- Name: Amrit R.
- Age at Diagnosis:
- 46
- Diagnosis:
- Appendiceal Adenocarcinoma (ApAC)
- Symptoms:
- Persistent migraines
- Severe bloating
- Rapid weight loss elsewhere but abdominal enlargement
- Irregular menstrual cycles with heavy bleeding
- Facial rash and skin changes
- Treatments:
- Surgeries: cytoreductive surgery with heated intraperitoneal chemotherapy (HIPEC); removal of the appendix, spleen, gallbladder, ovaries, and omentum
- Chemotherapy
This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.
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Lindsay B., LAMN Appendix Cancer
Symptom: Increasing urge to urinate
Treatments: Cytoreductive surgery (CRS), Hyperthermic Intraperitoneal Chemotherapy (HIPEC)
Faye L., Pseudomyxoma Peritonei (Rare Appendix Cancer)
Symptoms: Severe bloating, bad stomachache, elevated CA 125 and tumor markers
Treatments: Hyperthermic intraperitoneal chemotherapy with mitomycin C (HIPEC), surgeries (removal of spleen, gallbladder, appendix, ovaries, uterus, womb, fallopian tubes, belly button)
Alli M., Appendix Cancer, Stage 4
Symptom: Severe abdominal pain
Treatments: Surgeries (right hemisphere colectomy, appendectomy, HIPEC), chemotherapy
Ariel M., Appendix Cancer, Stage 4, High-Grade
Symptom: Sharp pain with gas & bowel movements
Treatments: Surgery (radical hysterectomy), chemotherapy (FOLFOX & FOLFIRI), PIPAC clinical trial (pressurized intraperitoneal aerosol chemotherapy)
Hannah R., Appendix Cancer, Stage 4
Symptoms: Bloating, fullness, UTIs, blood in urine, pain during intercourse, high blood pressure, spotting
Treatments: Surgery (appendectomy, cytoreductive surgery), chemotherapy, radiation (to treat recurrence)