Between Visits: FAQs with Experts: Waldenström
Demystifying Waldenström Macroglobulinemia (WM)
What You’ll Learn: A Patient-Led Guide to Waldenström
Move from overwhelmed to empowered. Dr. Stephen Ansell answers your pressing questions on WM diagnosis, “watch and wait,” and the latest treatment options.
Topics:
- The WM Identity: Understand why Waldenström’s is a “hybrid” cancer—sitting right between lymphoma and multiple myeloma—and why that matters for your diagnosis.
- The “Watch and Wait” Strategy: Discover why doing nothing is sometimes the most powerful treatment choice, especially if you have MGUS (an asymptomatic protein abnormality).
- Managing the Daily Impact: We break down how “thick blood” (hyperviscosity) affects your vision and thinking, and what you can do about it.
- Partnering with Your Team: Learn how to use biomarker results—like MYD88 and CXCR4 (genetic markers that guide treatment)—to have more informed conversations with your oncologist.
- Your Actionable Future: Get a clear look at the choice between time-limited infusions and long-term daily pills (BTK inhibitors) so you can choose what fits your lifestyle best.
Expert:
Stephen Ansell, MD, PhD
Professor of Medicine, Department of Hematology
Mayo Clinic, Rochester, MN
Thank you to Blood Cancer United for their partnership. They are here for you with information about clinical trials, resources, and dedicated support through their Information Specialists.
Move from Overwhelmed to Empowered as you listen in to leading experts answer patients’ most pressing questions.