Redefining Beauty: Alex’s Experience with Stage 4 CIC-DUX4 Sarcoma
Alex was just a high school senior, thriving as a cheerleader and looking forward to graduation, when she noticed a persistent pain in her foot. Initially dismissing it as a minor injury from cheerleading, the discomfort worsened, setting her on a path she never anticipated. By early 2024, she was diagnosed with stage 4 CIC-DUX4 sarcoma, an extremely rare and aggressive type of cancer.
Interviewed by: Nikki Murphy
Edited by: Chris Sanchez
Despite the gravity of her CIC-DUX4 sarcoma diagnosis, Alex’s story isn’t just about the medical hurdles — it’s about resilience, self-discovery, and redefining beauty. She navigated through intense rounds of chemotherapy, radiation, and Gamma Knife surgery to treat brain lesions.

Amid all of this, Alex faced considerable side effects, including a challenge many might overlook: hair loss. For her, losing her hair wasn’t just about aesthetics; it symbolized a shift in identity. She recalls the days she’d rely on bleach, fake lashes, and self-tanner to feel confident. But as her hair fell out, something unexpected happened — she began to embrace her authentic self. Compliments about her natural beauty, short curls, and even baldness made her realize that confidence isn’t tied to appearances. Instead, it’s rooted in acceptance and self-love.
Transitioning from high school to college while managing her stage 4 CIC-DUX4 sarcoma was no small feat. Though she experienced seizures due to treatment complications, Alex’s determination never wavered. She even changed her major from business to pre-med, inspired by her experiences to pursue radiation therapy as a career.
Through all the physical and emotional trials, Alex’s mantra has been simple yet powerful: never give up. Rather than allowing her cancer to define her, she chose to live as fully as possible, embracing every moment with authenticity and courage. She believes that staying positive, even in the face of adversity, made her feel like life hadn’t changed dramatically.
Alex’s story is a testament to the human spirit’s ability to adapt, thrive, and find beauty in vulnerability. Her journey with stage 4 CIC-DUX4 sarcoma is marked not just by medical battles but by personal growth, deepened relationships, and an unshakeable belief in herself.
Watch Alex’s video to learn more:
- How losing her hair helped Alex find her true self.
- From cheerleader to cancer warrior — how Alex’s story redefines resilience.
- The moment a MyChart notification changed everything.
- Why Alex believes hair loss was her most empowering experience.
- Living beyond a diagnosis: How Alex found purpose after stage 4 CIC-DUX4 sarcoma.
- Name:
- Alex P.
- Age at Diagnosis:
- 18
- Diagnosis:
- CIC-DUX4 Sarcoma
- Staging:
- Stage 4
- Symptoms:
- Extreme foot pain
- Limping when walking
- Difficulty breathing
- Treatments:
- Surgery
- Chemotherapy
- Radiation: Gamma Knife
This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.

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