Hodgkin’s Lymphoma Stories

Hodgkin Lymphoma

What is Hodgkin’s lymphoma? Also known as Hodgkin’s Disease, Hodgkin’s lymphoma is a disease in which malignant (cancer) cells form in the lymph system. It may then spread to the liver, lungs, or bone marrow.

Some of the most common first symptoms of Hodgkin’s lymphoma can include:

  • Swelling of the lymph nodes (painless), often in the neck, armpits, or groin area
  • Fever and chills
  • Night sweats
  • Weight loss
  • Loss of appetite
  • Itchy skin

Hodgkin Lymphoma 101

Learn more about Hodgkin lymphoma. In this guide, we will explore the symptoms, signs, screenings, stages, and treatment options for Hodgkin lymphoma. Whether you want to learn about early warning signs or treatments and prognosis, we’ve got you covered.


Hodgkin Lymphoma Patient Stories

Our community members dive deeper into their cancer stories than any others, sharing their first symptoms, different treatment paths and side effects, and reflections on the entire experience. Choose stories based on subtypes below.

Classical

A form of blood cancer that develops when lymphocytes, a type of white blood cell, grow out of control.


Madi J., Hodgkin's, Stage 1B



Cancer details: Most common and most treatable form of Hodgkin lymphoma
1st Symptoms:
Shortness of breath
Treatment:
3 rounds (6 infusions) of ABVD chemo

Danielle D., Hodgkin's, Stage 2



Cancer details: Diagnosed at age 25
1st Symptoms: Swollen lump on right side of neck/chest area, continued to grow
Treatment: ABVD chemotherapy (3 cycles = 6 infusions)

Lani S., Hodgkin's, Stage 2



Cancer details: Tumor pressing on heart
1st Symptoms: Appendicitis led to CT scan that found tumor
Treatment: ABVD chemotherapy, 7 cycles
Jason

Jason F., Hodgkin's, Stage 2A



Cancer details: Diagnosed at 39
1st Symptoms: Itchy legs, bloated face and “upper trunk,” slow-healing wounds, asthma worsened
Treatment: 6 cycles (12 infusion) ABVD chemo, 18 radiation therapy sessions
Logan

Logan A., Hodgkin's, Stage 2A



Cancer details: Diagnosed at age 15
1st Symptoms:
Lump in neck & fatigue
Treatment:
4 cycles of ABVE-PC chemo

Nodular Lymphocyte Predominant

A form of slow-growing blood cancer that form predominantly in lymph nodes as a result of abnormal growth of B lymphocytes.

No post found


Hodgkin Lymphoma Resources

Patient Self-Advocacy: A Conversation on Speaking Up for Ourselves Four incredible Hodgkin lymphoma patients/survivors share how they were able to advocate for themselves throughout their cancer care.

The Latest in Hodgkin Lymphoma with Dr. Matthew Matasar: Dr. Matthew Matasar with Rutgers Cancer Institute discusses emerging and most-promising therapy options for relapsed/refractory Hodgkin lymphoma patients and those newly-diagnosed.

Looking for non-Hodgkin’s lymphoma stories and resources? Visit the non-Hodgkin’s lymphoma stories page.

Hodgkin Lymphoma Oncologists & Experts

Read interviews from medical experts who specialize in blood cancers including Hodgkin’s lymphoma.

Hodgkin Lymphoma Side Effects and Holistic Approach
Optimizing Quality of Life: Reducing Toxicity in Hodgkin Lymphoma Care Dr. Andy Evens from Rutgers Cancer...
Dr. Matthew Matasar
Matthew Matasar, MD, MS Dr. Matthew Matasar, chief of blood disorders at the Rutgers Cancer Institute...
Dr. Matthew Matasar at ASH 2023 feature profile
The Latest in Hodgkin Lymphoma Dr. Matthew Matasar, chief of blood disorders at the Rutgers Cancer...
Hodgkin Lymphoma ASH 2023 feature profile
The Latest in Hodgkin Lymphoma: Treatment Options in 2024 Dr. Matthew Matasar, chief of blood disorders...

Navigating Life With Cancer