Gianna’s Rare Desmoplastic Small Round Cell Tumors (DSRCT) Story

Gianna, a graphic designer from Philadelphia, PA, shares her journey after being diagnosed with desmoplastic small round cell tumor (DSRCT), a rare sarcoma, in 2024. Her symptoms began as UTI-like discomfort and stomach pain, leading to visits to the ER. Initially, doctors could not identify anything alarming. However, 6 months later, Gianna also began experiencing fainting spells, due to internal bleeding from an 8-centimeter mass identified in her abdominal cavity. Initially misdiagnosed as a benign cyst, the mass was surgically removed, leaving Gianna frightened as she awaited diagnosis.

Interviewed by: Nikki Murphy
Edited by: Chris Sanchez

In October, Gianna finally received a definitive diagnosis of DSRCT. Her treatment plan at Fox Chase Cancer Center involved chemotherapy over 7 rounds, translating to 14 cycles. Gianna’s routine includes hospital stays for chemotherapy, interspersed with rest periods at home. Due to her chemotherapy, she consequently experiences side effects like a runny nose, bone pain, and hair loss. However, she remains upbeat, having prepared for these challenges by purchasing wigs and finding empowerment in shaving her head with her father’s, boyfriend’s, and brother’s support.

Beyond dealing with the physical challenges brought about by desmoplastic small round cell tumor (DSRCT), Gianna also emphasizes the importance of mental health. Walking outdoors and speaking with a therapist contribute significantly to her well-being. Social media connections with other cancer survivors offer further support, strengthening her resolve. Her family and friends also provide vital encouragement, reinforcing her positive outlook.

Gianna advocates maintaining hope and staying positive. She likewise stresses the value of focusing on activities that bring joy and taking life one day at a time. Moreover, by sharing her story, Gianna aims to inspire others facing similar battles to remain hopeful and resilient. She additionally emphasizes that despite her DSRCT diagnosis, it is nevertheless possible to continue living a fulfilling life.

In her message, Gianna urges those listening to cherish every moment and engage in activities they love. She further underscores the significance of maintaining hope and living in the present, asserting that cancer does not dictate one’s ability to enjoy life. Lastly, Gianna’s story serves as a beacon of positivity, offering encouragement and solidarity to others battling DSRCT and other forms of cancer.

• Name: 
  • Gianna C.
• Diagnosis:
  • Desmoplastic Small Round Cell Tumors (DSRCT)
• Age at Diagnosis:
  • 27
• Initial Symptoms:
  • Urinary tract infection (UTI)
  • Consistent pressure in stomach
  • Stomach pains
  • Passing out
• Treatment:
  • Chemotherapy
  • Surgery

This interview has been edited for clarity and length. This is not medical advice. Please consult with your healthcare provider for treatment decisions.

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