Nicholas Has Terminal Grade 4 Brain Cancer — But He’s Not Giving Up Hope
Nicholas, a carpenter and fitness enthusiast from Canada, was diagnosed with terminal grade 4 brain cancer (glioblastoma multiforme). He reveals his initial shock upon diagnosis, following a multitude of seizures that revealed a large tumor. Despite the grim prognosis, he afterwards underwent three craniotomies over 16 months, exceeding the initial prognosis of three to 12 months with treatment. Concurrently, he pursued chemotherapy and radiation as well as experimental treatments, albeit without expected success due to the nature of glioblastomas.
Interviewed by: Nikki Murphy
Edited by: Chris Sanchez
Nicholas additionally discusses his participation in clinical trials, including one in Calgary that involves personalized oncogenomics. This trial employed organoids to test drugs on his tumor, and aims to identify effective treatment. He concurrently details the logistical, financial, and systemic challenges he faced in gaining access to treatments.
In addition to medical treatments for his grade 4 brain cancer, Nicholas also maintains a rigorous fitness routine, alternates between carnivore and ketogenic diets, and practices Stoic philosophy to build and maintain mental resilience. He additionally finds support from a strong online community and also draws strength from his family. He shares a strong belief in hope and willpower as crucial survival tools.
Nicholas conveys a proactive approach, insisting on being his own advocate within the healthcare system. He furthermore recounts an incident where his frequent requests for additional tests, despite the initial refusal of his doctors, prevented a potentially fatal delay in surgery. His story consequently highlights the importance of questioning medical advice and pushing for necessary interventions.
Nicholas encourages others struggling with grade 4 brain cancer, as well as those in similar situations, to never give up. He stresses the importance of fighting and, moreover, of holding onto hope. Despite the challenges, Nicholas nevertheless remains optimistic and determined to continue his fight against cancer. His story demonstrates resilience and perseverance in the face of adversity.
- Name:
- Nicholas W.
- Age at Diagnosis:
- 29
- Diagnosis:
- Brain cancer (glioblastoma multiforme)
- Grade:
- Grade 4
- Symptom:
- Clonic seizures
- Treatments:
- Radiation
- Chemotherapy
- Surgery
This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.
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