Spencer, diagnosed with stage 3 multiple myeloma in June 2023 at the age of 39, reflects on his experience from the onset of symptoms to treatment. Initially, Spencer experienced discomfort in his rib cage and chest area, which persisted despite normal X-rays. He later developed pneumonia and, during his ER visit, was informed of his anemia. Follow-up blood work confirmed low white and red blood cell counts, prompting a referral to a hematologist. Initially, the hematologist was unconcerned, but after further testing, Spencer was diagnosed with stage 3 multiple myeloma, a term unfamiliar to him at the time.

Following the diagnosis, Spencer began aggressive treatment, including chemotherapy and immunotherapy to prepare for a stem cell transplant. His first chemotherapy cycle was particularly challenging and he suffered significant side effects, including strep throat and severe discomfort from the medications. The side effects lessened in subsequent cycles and after completing chemotherapy, a biopsy and PET scan revealed no signs of myeloma in his bone marrow, allowing him to proceed to the next stage: an autologous stem cell transplant.

The stem cell transplant process was intensive. Spencer first underwent stem cell collection, which was interrupted by a COVID-19 diagnosis. Despite this setback, the procedure was eventually completed successfully and the transplant itself involved high-dose chemotherapy before reinfusing his harvested stem cells. Spencer faced challenges post-transplant, including extreme fatigue and lack of appetite, but was fortunate to avoid the more severe side effects often associated with the procedure.

Following his transplant, Spencer entered a maintenance phase. He focused on improving his physical health through walking and running, even signing up for a marathon. His treatment and recovery allowed him to reconnect with family and friends and adapt to his “new normal” life. He emphasizes the importance of finding hope in difficult situations and now actively participates in a myeloma support group, where he encourages others, especially younger patients like himself.

Spencer is determined to maintain his health and well-being, recognizing the long-term nature of managing multiple myeloma. His experience highlights the significance of choosing the right medical team, staying active, and embracing support networks to navigate the challenges of living with cancer.