Researching online only amplified her fears. What stood out most wasn’t the medical terminology, but the realization that many people discover this disease far too late. Holly caught it early, which her surgeon said was almost unheard of, especially given the tumor’s minuscule size.

Surgery followed, but the first attempt missed the tumor. Undeterred, Holly advocated for a second surgery with an ultrasound used in real-time. It worked. The tumor was finally removed and margins were clear.

Because it was stage 1 adenoid cystic carcinoma, her team decided against radiation due to the clean surgical outcome and the harsh side effects of facial radiation. Instead, they began a rigorous scan schedule. She now gets checked every six months, and so far, everything’s been clear.

Through her entire experience, Holly emphasizes one powerful message: self-advocacy is everything. She was persistent. She didn’t doubt the professionals, but she trusted herself, too. Her story is a powerful reminder that knowing your body, trusting your instincts, and refusing to settle for vague answers can make all the difference, especially with a rare diagnosis like stage 1 adenoid cystic carcinoma.

Today, Holly works full-time, volunteers, and spends every possible moment with the people she loves. She’s not taking anything for granted. Her gratitude is real, her perspective is grounded, and her story might just empower someone else to speak up — and speak out — when something feels off.

Watch the full video of Holly’s interview to find out more about her story:

• What to do when every doctor says wait and see, but your gut says to keep pushing.
• How Holly spotted stage 1 adenoid cystic carcinoma before anyone else even suspected cancer.
• Why she chose to skip radiation and what gave her the confidence to say no.
• What convinced her to keep advocating when the scans looked “normal.”