Hamish’s Rare Desmoplastic Small Round Cell Tumors (DSRCT) Story

At 25, Hamish was diagnosed with desmoplastic small round cell tumors (DSRCT), a rare and aggressive sarcoma (cancer that starts in the body’s soft tissues or bones, like muscles, fat, or blood vessels). His diagnosis followed months of fatigue, weight loss, and nausea, initially dismissed as long COVID or dietary issues, until he discovered a lump in his abdomen. Swift action by his general practitioner, including a CT scan and biopsy, confirmed the diagnosis and revealed stage 4 cancer with tumors in his abdomen and a lymph node above the diaphragm.

Interviewed by: Taylor Scheib
Edited by: Katrina Villareal

Despite the daunting statistics surrounding desmoplastic small round cell tumors (DSRCT), Hamish remained hopeful, focusing on his relatively favorable position: no organ involvement and early detection. His oncologist initiated an intensive treatment regimen, including interval-compressed chemotherapy, followed by cytoreductive surgery, a peritonectomy, hyperthermic intraperitoneal chemotherapy (HIPEC), right hemicolectomy, and low anterior resection. The surgery successfully removed all visible tumors, marking a significant milestone in his treatment.

Hamish credits the support of healthcare professionals, particularly oncology nurses, his family, and friends, for helping him navigate the emotional and physical toll of cancer. He emphasizes the importance of finding joy, staying connected, and seeking hope even in uncertainty. Reflecting on his experience, Hamish shares that positivity doesn’t always mean optimism but rather embracing vulnerability, caring for others, and cherishing meaningful connections. His most recent PET scan showed no evidence of disease, a moment of relief and encouragement.

As humans, as natural humans, we need hope.

Through his story, Hamish aims to inspire others to radically embrace hope, build support networks, and find strength in both community and perspective.

• Name: Hamish S.
• Age at Diagnosis:
  • 25
• Diagnosis:
  • Desmoplastic small round cell tumor (DSRCT)
• Staging:
  • Stage 4
• Symptoms:
  • Persistent fatigue
  • Nausea
  • Unexplained weight loss
  • Discovery of a hard abdominal lump
• Treatments:
  • Interval-compressed chemotherapy
  • Surgeries: cytoreductive surgery, peritonectomy, hyperthermic intraperitoneal chemotherapy (HIPEC), right hemicolectomy, and low anterior resection

This interview has been edited for clarity. This is not medical advice. Please consult with your healthcare provider to make treatment decisions.

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