Amanda’s initial symptom of Hodgkin lymphoma was intense itching, which emerged during a ski trip in her junior year in high school. The itching persisted and worsened, leading her to seek medical advice. A dermatologist, unable to find any external cause, referred her to a pediatrician, who suspected scabies. After undergoing treatment, Amanda saw no improvement. Further tests indicated she was anemic but despite taking iron supplements, her symptoms worsened. She eventually developed more serious symptoms, including a fever, swollen lymph nodes, severe fatigue, and back pain.

Her worsening condition led her to see multiple doctors, but no one could pinpoint the cause of her symptoms. After researching her symptoms online, Amanda was convinced she had Hodgkin lymphoma and repeatedly suggested the possibility to her doctors, but they remained skeptical. Finally, after months of seeking answers, an infectious disease doctor recommended a lymph node biopsy, which confirmed Amanda’s suspicion: she had Hodgkin lymphoma.

By the time of her diagnosis, the cancer had spread beyond her lymph nodes to her liver, spleen, and shoulder, though fortunately, it had not reached her bone marrow. Amanda was diagnosed with stage 4 Hodgkin lymphoma and received A+AVD chemotherapy. The treatment caused significant side effects, including hair loss and severe bone pain, which was especially difficult for her as a young patient.

Despite these challenges, Amanda maintained a sense of autonomy and positivity. She found solace in small acts, like spending time with friends and family. Four days before Christmas of her senior year, she learned she was in remission.

Although remission brought relief, Amanda struggled with survivor’s guilt, especially as she witnessed others with similar diagnoses who weren’t as fortunate. She also found it challenging to transition to college life after treatment, dealing with both physical changes and emotional trauma. Amanda continues to advocate for mental health and the importance of finding joy in small moments during difficult times.

In retrospect, Amanda stresses the importance of holding onto autonomy and maintaining a positive mental outlook, no matter how challenging the circumstances. The Patient Story has been a source of support, as she found comfort in reading stories of others who had walked a similar path.