Partway through treatment, Michael began coughing up blood. The situation escalated, and after a bronchoscopy, doctors discovered a massive fistula between his esophagus and airway. The severity of the fistula led doctors to predict he had only days to weeks left to live. This moment marked a shift in his outlook, and doctors admitted him to hospice care in March 2024.

Although given a grim prognosis, Michael has surpassed expectations, living over a year past his initial two-week estimate. During this time, he has reflected on his experiences and learned to set boundaries, especially in managing visits from well-meaning family and friends. He has also witnessed the incredible dedication of his wife, whom he deeply appreciates for her caregiving efforts.

Throughout his illness, Michael has prioritized self-advocacy, recognizing the importance of seeking second opinions and questioning medical decisions when necessary. His wife played a crucial role in reaching out to specialists across the country to confirm the initial diagnosis. He continues to consider undergoing further scans to understand the progression of his condition, although he remains uncertain about the potential emotional toll of receiving updated results.

Michael’s advice to others facing similar situations is to focus on their mental well-being, mend relationships where possible, and ensure their personal affairs are in order. He emphasizes that while doctors provide estimates, they cannot predict an individual’s exact trajectory, as he himself has defied expectations despite his stage 4 neuroendocrine carcinoma of the esophagus diagnosis. Ultimately, Michael’s experience highlights the unpredictability of life with a terminal illness and the importance of both self-advocacy and emotional preparedness.