Myelofibrosis Stories
Myelofibrosis is a rare cancer of the bone marrow that starts with an abnormal production of blood cells. It’s one of three of the most common myeloproliferative neoplasms or MPNs.
Myelofibrosis, commonly referred to as “MF,” often leads to severe lack of healthy red blood cells, also known as anemia. That’s why common first symptoms of myelofibrosis include fatigue and weakness.
Explore below to hear from myelofibrosis patients on their experiences and top specialists who share the latest in promising and emerging MF treatments and clinical trials.
What is myelofibrosis?
Myelofibrosis is a rare cancer of the bone marrow. Learn more about myleofibrosis symptoms, diagnosis, treatment and more.
Myelofibrosis Patient Stories
Demetria J., Essential Thrombocythemia (ET) progressing to Myelofibrosis
Symptoms: Extreme fatigue, stomach pain (later identified as due to an enlarged spleen), dizziness, shortness of breath
Treatments: Spleen-shrinking medication, regular blood transfusions, bone marrow transplant
Neal H., Prefibrotic Myelofibrosis
Symptoms: Night sweats, severe itching, abdominal pain, bone pain
Treatment: Tumor necrosis factor blocker, chemotherapy, targeted therapy, testosterone replacement therapy
Andrea S., essential thrombocythemia (ET) progressing to Myelofibrosis
Symptoms: Fatigue, anemia
Treatments: Targeted therapy (JAK inhibitor), blood transfusions, allogeneic stem cell transplant
Holly S., Myelofibrosis
Symptoms: Severe fatigue, throbbing pain in left calf, significant weight loss, itching and rashes, bruising, and shortness of breath
Treatments: Chemotherapy, Immunotherapy
