Myelofibrosis Patient Stories

Myelofibrosis Stories

Myelofibrosis is a rare cancer of the bone marrow that starts with an abnormal production of blood cells. It’s one of three of the most common myeloproliferative neoplasms or MPNs.

Myelofibrosis, commonly referred to as “MF,” often leads to severe lack of healthy red blood cells, also known as anemia. That’s why common first symptoms of myelofibrosis include fatigue and weakness.

Explore below to hear from myelofibrosis patients on their experiences and top specialists who share the latest in promising and emerging MF treatments and clinical trials.

What is myelofibrosis?

Myelofibrosis is a rare cancer of the bone marrow. Learn more about myleofibrosis symptoms, diagnosis, treatment and more.

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Myelofibrosis Patient Stories

Andrea S. feature profile

Andrea S., essential thrombocythemia (ET) progressing to Myelofibrosis



Symptoms: Fatigue, anemia
Treatments: Targeted therapy (JAK inhibitor), blood transfusions, allogeneic stem cell transplant

Holly S., Myelofibrosis



Symptoms: Severe fatigue, throbbing pain in left calf, significant weight loss, itching and rashes, bruising, and shortness of breath

Treatments: Chemotherapy, Immunotherapy
Ben H.

Ben H., Myelofibrosis



Symptoms: None; caught at a routine blood test
Treatments: Hydroxyurea & aspirin, ruxolitinib
Doug A. feature profile

Doug A., Myelofibrosis



Symptom: Fatigue
Treatments: ruxolitinib, selinexor (clinical trial)

Myelofibrosis Expert Programs