Myelofibrosis Stories
Myelofibrosis is a rare cancer of the bone marrow that starts with an abnormal production of blood cells. It’s one of three of the most common myeloproliferative neoplasms or MPNs.
Myelofibrosis, commonly referred to as “MF,” often leads to severe lack of healthy red blood cells, also known as anemia. That’s why common first symptoms of myelofibrosis include fatigue and weakness.
Explore below to hear from myelofibrosis patients on their experiences and top myelofibrosis specialists who share the latest in promising and emerging MF treatments and clinical trials.
Table Of Contents
What is myelofibrosis?
Myelofibrosis is a rare cancer of the bone marrow. Learn more about myleofibrosis symptoms, diagnosis, treatment and more.
Myelofibrosis patient stories
Stacy S., Myelofibrosis
Symptoms: Fatique, cold hands and feet
Treatments: Agrylin (for thrombocythemia), Ruxolitinib (Jakafi), Fedratinib (INREBIC), stem cell transplant
Ruth R., Myeloproliferative Neoplasm (MPN)Symptoms: Anemia, bleeding Treatments: Chemotherapy, clinical trial
Natalia A., Myelofibrosis Symptoms: Anemia, fatigue, weakness, shortness of breath Treatments: Phlebotomies, iron pills, blood transfusion
Mary L., Myelofibrosis
Symptoms: Fatigue, extreme dizziness (later diagnosed as vertigo)
Treatments: Pegasys, hydroxyurea (current)
Kristin D., Myelofibrosis
Symptoms: None; caught at routine blood work
Treatment: Stem cell transplant
Joseph C., Myelofibrosis
Symptoms: None; caught at routine blood work
Treatment: Clinical trial: VONJO (pacritinib)
Jeremy S., Myeloproliferative Neoplasm
Concurrent Diagnoses: Polycythemia vera (PV) & Chronic Lymphocytic Leukemia (CLL)
Holly S., Myelofibrosis
Symptoms: Severe fatigue, throbbing pain in left calf, significant weight loss, itching and rashes, bruising, and shortness of breath
Treatments: Oral chemotherapy (hydroxyurea), immunotherapy injections (peginterferon)
Cathy T., Myelofibrosis
Symptoms: None; caught at a routine blood test
Treatment: Stem cell transplant
Ben H., Myelofibrosis
Symptoms: None; caught at a routine blood test
Treatments: Hydroxyurea & aspirin, ruxolitinib
Andrew SchorrDiagnosis: Myelofibrosis, Chronic Lymphocytic Leukemia (CLL)Treatment: Clinical trial, Gazyva, Jakafi, Increbic, Reblozyl and steroids
Andrea S., Myelofibrosis
Symptoms: Fatigue, anemia
Treatments: Targeted therapy (JAK inhibitor), blood transfusions, allogeneic stem cell transplant