Myelofibrosis Stories
Myelofibrosis is a rare cancer of the bone marrow that starts with an abnormal production of blood cells. It’s one of three of the most common myeloproliferative neoplasms or MPNs.
Myelofibrosis, commonly referred to as “MF,” often leads to severe lack of healthy red blood cells, also known as anemia. That’s why common first symptoms of myelofibrosis include fatigue and weakness.
Explore below to hear from myelofibrosis patients on their experiences and top specialists who share the latest in promising and emerging MF treatments and clinical trials.
What is myelofibrosis?
Myelofibrosis is a rare cancer of the bone marrow. Learn more about myleofibrosis symptoms, diagnosis, treatment and more.
Myelofibrosis Patient Stories
How to Support Someone with Cancer: Karina & Jesse's Myelofibrosis Story
“I underwent a lot of sadness, hardship, and difficulty, and all that entails. But I pressed forward in hope for sure. There was a lot of hope that just kept me going all those years.”
Demetria J., Essential Thrombocythemia (ET) progressing to Myelofibrosis
Symptoms: Extreme fatigue, stomach pain (later identified as due to an enlarged spleen), dizziness, shortness of breath
Treatments: Spleen-shrinking medication, regular blood transfusions, bone marrow transplant
Neal H., Prefibrotic Myelofibrosis
Symptoms: Night sweats, severe itching, abdominal pain, bone pain
Treatment: Tumor necrosis factor blocker, chemotherapy, targeted therapy, testosterone replacement therapy
Andrea S., essential thrombocythemia (ET) progressing to Myelofibrosis
Symptoms: Fatigue, anemia
Treatments: Targeted therapy (JAK inhibitor), blood transfusions, allogeneic stem cell transplant
