Patient Event Registration – Clinical Trials Update Myelofibrosis, March 2024

Discussion Details

Join Dr. Naveen Pemmaraju from MD Anderson Cancer Center in a discussion on current myelofibrosis treatments and promising developments in clinical trials. Listen in as myelofibrosis patient advocate Ruth Fein Revell makes sure important topics such as anemia and stem cell transplants are covered.

Register now to get an email when the event replay is ready. Discover what brings Dr. Pemmaraju hope in what he calls the “golden era for research” when it comes to myelofibrosis.

Key Topics:

• Current Standard of Care
• Switching JAK Inhibitors
• Clinical Trials: Combination Therapy
• Trials Beyond JAK Inhibitors
• Effective Anemia Treatment
• Is Transplant an Option?
• Hope for Living Longer

Special thanks again to GSK and AbbVie for their support of our independent patient education content. The Patient Story retains full editorial control.

Myelofibrosis Patient Stories

We hope you’ve registered for our program. In the meantime, our patient stories provide valuable insights from others living with myelofibrosis.

Doug A.



Symptoms: Fatigue
Treatment: ruxolitinib, selinexor (clinical trial)

Kristin D.



Symptoms: None; caught at routine blood work
Treatment: Stem cell transplant

Joseph C.



Symptoms: None; caught at routine blood work
Treatment: Clinical trial: VONJO (pacritinib)

Stacy S.



Diagnosis: Myelofibrosis with CALR and ASXL1 mutations
Symptoms: Fatique, cold hands and feet
Treatment: Agrylin (for thrombocythemia), Ruxolitinib (Jakafi), Fedratinib (INREBIC), stem cell transplant

Cathy T.



Diagnosis: Myelofibrosis

Symptoms: None; caught at a routine blood test
Treatment: Stem cell transplant

Natalia A. Diagnosis: Myelofibrosis Symptoms: Anemia, fatigue, weakness, shortness of breath Treatment: Phlebotomies, iron pills, blood transfusion

Ruth R. Diagnosis: Myeloproliferative Neoplasms (MPN) Treatment: Chemotherapy, Bone marrow biopsy, clinical trial

Jeremy S.



Diagnosis: Myeloproliferative Neoplasm (MPN), Polycythemia vera (PV) and Chronic Lymphocytic Leukemia (CLL)

Andrew SchorrDiagnosis: Myelofibrosis, Chronic Lymphocytic Leukemia (CLL)Treatment: Clinical trial, Gazyva, Jakafi, Increbic, Reblozyl and steroids

Mary L.



Diagnosis: Myelofibrosis (MPN)
1st Symptoms: Fatigue, extreme dizziness (later diagnosed as vertigo)
Treatment: Pegasys, hydroxyurea (current)