Take Charge of Your MPN: Tracking Symptoms & Advocating for Better Care
Join us on Wednesday, July 30, 2025 at 3pm PDT | 6pm EDT (U.S.)
In this free patient-led discussion, MPN advocates Ruth Fein Revell, Nick Napolitano, and Demetria open up about what it means to live proactively with an MPN—whether it’s ET, PV, or MF.
They share honest insights on:
How fatigue, brain fog, itching, and other symptoms show up in real life
Why tracking those symptoms can shape better care and decisions
The emotional weight of living with a chronic cancer—and how to cope
How care partners can support advocacy and communication
The role of clinical trials in expanding future treatment options
Thank you to The Leukemia & Lymphoma Society for their partnership. The Leukemia & Lymphoma Society is here for you with information about clinical trials, resources, and dedicated support through their Information Specialists.
From groundbreaking studies to insightful patient stories, MPN Research Foundation is at the forefront of making real change for those directly affected by essential thrombocythemia (ET), polycythemia vera (PV), and myelofibrosis (MF).
Register for this informative program then invite a Friend or Care Partner.
Whether you’re newly diagnosed or have been living with an MPN for years, this conversation is for you.
Thank you to Incyte and Karyopharm Therapeutics for supporting our patient education program. The Patient Story retains full editorial control over all content.